Autism Spectrum Disorder Parent Report for Outcome Monitoring

Levin, April R.; Baumer, Nicole; Amaral, Joseph F.; Sargado, Sabrina; Pawlowski, Katherine; Chiujdea, Madeline; Schmitt, Rachel; Weissman, Laura; Chan, Eugenia; Sideridis, Georgios D.; Bridgemohan, Carolyn

doi:10.1037/t84123-000

Cited by 1 publication

(5 citation statements)

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“…However, the ND-PROM is now available in additional languages, thus future analyses can include a more diverse population. Though previously parents reported that use of the ND-PROM had a positive impact on their child's care (20), the length of the ND-PROM may be a limitation for its widespread application, especially in primary care clinics or other, non-tertiary care environments. In this study, the DS and ASD cohorts were not matched by cognitive level, thus more pronounced group differences may have been observed if the DS group were directly compared to a group with ASD and Intellectual Disability.…”

Section: Discussionmentioning

confidence: 99%

“…Additionally, this study did not assess the stability of responses across repeated tests or the sensitivity of the measure to change over time, and therefore it is not clear how clinically meaningful changes in function might be represented on the ND-PROM. Additionally, though convergent validity was previously assessed in the ASD propulation (20), it was not repeated in the DS population as a part of this study. Finally, the ND-PROM responses were collected as part of clinical care visits to a specialty clinic within a tertiary pediatric care center.…”

Section: Discussionmentioning

confidence: 99%

“…The ND-PROM contains 128 Likert-scale items that cover a wide range of developmental skills and behaviors relevant to children with neurodevelopmental disabilities. Prior work using the ND-PROM in individuals ages 2-20 years old with ASD demonstrated clinical utility, test-re-test reliability, and good convergent validity with the Vineland-II (20). Further development of the ND-PROM involved delineation of 93 of the individual items into 12 clinical domains, which were subsequently supported using confirmatory factory analysis in the ASD population: Expressive Language, Receptive Language, Nonverbal Communication, Social Communication, Social Interaction, Independent Play, Adaptive Skills, Restricted and Repetitive Behaviors, Sensory Processes, Challenging/Aggressive Behaviors, Impulse/ADHD, and Mental Health (21).…”

Section: Introductionmentioning

confidence: 95%

“…A comparison group consisting of 246 patients with a diagnosis of ASD and not DS were used to test measurement invariance, and to assess latent mean differences among DS, ASD, and DS+ASD groups. Details about this group, including diagnostic determination and data collection methodology, is available in Levin et al (20). Caregivers completed the ND-PROM as part of standardized clinical procedures prior to clinical visits, to streamline clinical history taking and developmental and behavioral monitoring as a quality improvement initiative in the programs.…”

Section: Participants and Proceduresmentioning

confidence: 99%

“…The Neurodevelopmental Parent Report for Outcome Monitoring (ND-PROM; previously published as the Autism Spectrum Disorder Parent Report for Outcome Monitoring, ASD-PROM) is a freely-available tool initially developed to clinically monitor caregiver report of developmental and behavioral functions in children with ASD (20). The ND-PROM contains 128 Likert-scale items that cover a wide range of developmental skills and behaviors relevant to children with neurodevelopmental disabilities.…”

Section: Introductionmentioning

confidence: 99%

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Validation of factor structure of the neurodevelopmental parent report for outcome monitoring in down syndrome: confirmatory factor analysis

Baumer,

Pawlowski,

Zhang

et al. 2024

Front. Psychiatry

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IntroductionThe Neurodevelopmental Parent Report for Outcome Monitoring (ND-PROM), initially developed to monitor developmental and behavioral functions in children with autism spectrum disorder (ASD), assesses symptoms across a wide range of domains relevant in Down syndrome (DS).MethodsPsychometric properties of ND-PROM were assessed in 385 individuals with DS and 52 with a combined diagnosis of DS and ASD (DS+ASD), whose caregivers completed the ND-PROM questionnaire for a clinical visit in a specialized Down syndrome program at a tertiary pediatric hospital. Confirmatory factor analysis was conducted to evaluate the internal structure validity of the ND-PROM. Measurement invariance was assessed, with a comparison group of 246 individuals with ASD, and latent mean differences between the DS and ASD-only groups, as well as the combined DS+ASD groups, were assessed.ResultsFindings support the existence of the 12 clinically-derived factors in the DS population: Expressive Language, Receptive Language, Adaptive skills/Toileting, Social Emotional Understanding, Social Interaction, Independent Play, Sensory Processes, Challenging Behaviors, Impulse/ADHD, and Mental Health. Differences in response patterns of development and behaviors were observed between those with DS and those with ASD, including those with DS having higher abilities in nonverbal communication, social emotional understanding, and social interaction, and fewer restricted and repetitive behaviors and interests, impulsivity or ADHD symptoms, and mental health concerns compared to those with ASD. Individuals in the DS+ASD group had more difficulties with expressive and receptive language, nonverbal and social communication, social interaction, independent play, and adaptive skills than either the DS-only group or the ASD-only groups.DiscussionThe ND-PROM has a desirable factor structure and is a valid and clinically useful tool that captures a range of distinct and independent areas of developmental and behavioral functioning in DS, for individuals with and without an ASD diagnosis.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%