Autism in Poland in comparison to other countries

Piskorz-Ogórek, Krystyna; Ogórek, Sławomir; Cieślińska, Anna; Kostyra, Elżbieta

doi:10.1016/j.poamed.2015.03.010

Cited by 27 publications

(26 citation statements)

References 31 publications

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“…This reflects a recent spurt in autism diagnoses in Poland, which may result from better availability of diagnostic measures [25] and higher public awareness of autism [26]. However, accessible data from educational [24] and health registers [27] do not cover adults with ASD who may be the most underdiagnosed and thus the most underserved population of people with ASD, resembling the situation in others countries [28].…”

Section: Introductionmentioning

confidence: 99%

Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland

Płatos

Pisula

2019

BMC Health Serv Res

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Background: Despite a growing number of adolescents and adults diagnosed with autism spectrum disorder (ASD), little is known about service needs and barriers to services in this population. Existing research shows that youth with ASD are more underserved as they approach final years of their high school education and that adequate services for individuals with ASD after transition to adulthood are even scarcer. However, few studies have directly compared differences in service availability between adolescents and adults with ASD, and even fewer studies are published on service use outside Anglo-Saxon countries. The purpose of the present study was to examine service access, perceived barriers, and unmet needs, as reported by parents of adolescents and young adults with ASD in Poland. Methods: The study used a subsample of parents of young people with ASD (aged 12-38 years; N = 311) from the Polish Autism Surveya survey covering different areas of functioning of people with ASD in Poland, based on a convenience sample. Responding parents were recruited via different service providers, social media, and press, and completed a survey using a web platform or a paper-and-pencil questionnaire. Results: As expected, adults used services less often than adolescents, with 80.1% of adolescents and 61.1% of adults with ASD using services in the previous 12 months. Mental health services were among the most used and the most needed services, followed by educational services, while needs for sensory/motor services remained largely unmet. Young people with a coexisting intellectual disability used more services than those without it. Nongovernmental organizations, private clinics, and schools were the most common service providers. Parents indicated that most of young people with ASD had unmet service needs for services (93.5%) and faced barriers to access them (82.7%). Low-income families and those living outside large cities were at the highest risk of facing barriers to service access. Conclusions: The results confirm still a thin body of evidence from different countries suggesting that adolescents and adults with ASD were both largely underserved populations. Policy-makers should address economic, regional, and age-related inequities in access to services for individuals with ASD.

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Section: Introductionmentioning

confidence: 99%

Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland

Płatos

Pisula

2019

BMC Health Serv Res

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“…Due to the lack of access to the data of non-GDM mothers, we were unable to form a control group and asses the prevalence of ASD in it. Instead, we used the best available epidemiological data on the prevalence of ASD in all children aged 0-18 years in Poland that uses ICD-10 criteria [10]. A small number of patients in the ASD group results from low prevalence of ASD in the general population.…”

Section: Discussionmentioning

confidence: 99%

“…The estimated median prevalence of ASD in children aged 0-18 years in Poland, diagnosed using ICD-10 criteria, based on the registries of the National Health Fund is 17.6/10 000 [10].…”

Section: Methodsmentioning

confidence: 99%

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The association of maternal gestational diabetes mellitus with autism spectrum disorders in the offspring

Kania

Herbut

Dybała

et al. 2017

Clinical Diabetology

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“…The American Psychiatric Association's Diagnostic and Statistical Manual, Fifth Edition (DSM-5) provides standardized criteria to help diagnose ASD [1]. The prevalence of ASD is at least 1 in 160 children worldwide [2][3][4].…”

Section: Introductionmentioning

confidence: 99%

Untitled

2015

HCIIN

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There is a rising interest in the use of dietary interventions to ameliorate prevalent brain diseases, including Autism Spectrum Disorder (ASD). Nowadays, the existence of communication between gut and brain is well accepted and thus diet can influence brain functioning. A well-known nutrition based intervention for ASD is the gluten-free and casein-free diet. However, only some of the patients experience a relief in symptoms and thus efficacy seems to be limited to certain phenotypes. However, not much is known about the mechanism of action through which this diet might work, or about interpersonal differences that could lead to variation in response to the diet. Current evidence for efficacy of the GFCF diet is poor. Large scale, good quality randomized controlled trials are needed. Genetic and environmentally induced interpersonal differences were found in intestinal membrane permeability and blood brain barrier integrity as well as in activity of peptidase enzymes. These differences probably affect responsiveness to the diet. In addition, age and duration of the dietary intervention play a role in the efficacy of the gluten-free and casein-free diet. This is the reason why all these factors need to be taken into account to give appropriate advice about whether or not to follow this diet.Keywords: Autism spectrum disorder; Casein-free; Casomorphin; Diet; Gluten-free; Intervention; Opioid; Peptides; Permeability Treating Autism Spectrum Disorder with Gluten-free and Casein-free Diet: The underlying Microbiota-Gut-Brain Axis MechanismsCitation: Cieślińska A, Kostyra E, Savelkoul HFJ (2017) Treating Autism Spectrum Disorder with • (GFCF) diet is strongly promoted while there are additional diets without salicylates and phenols, and anti-candida diets since many ASD patients are affected by this yeast [17]. However, so far it has been difficult to prove the effectiveness of this diet in all patients [10,18]. Limited information is available on the underlying mechanism as well as explanatory factors of differences in response to the GFCF diet. Here, we focus on the mechanism of action underlying this dietary intervention as well as the origin of differences in response to the GFCF diet. Gluten-Free and Casein-Free Diet Might Alleviate Autism Spectrum Disorder SymptomsPeople with ASD are often in need of intensive care and guidance, leading to loss of parental productivity and high emotional and economic costs [8,19]. Therefore it is important to investigate potential treatments that alleviate the symptoms or preferably cure the disease. So far, sometimes life long, educational and behavioral interventions are used, although these therapies have limited efficacy for ASD [6,20]. Currently, there is growing interest in nutritional interventions for this disorder and there are promising mechanisms underlying the putative success of such interventions [19].In 1983 it was suggested that gluten and casein containing products could cause autism-like symptoms by altering the functioning of the brain. It was propo...

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Autism in Poland in comparison to other countries

Cited by 27 publications

References 31 publications

Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland

Service use, unmet needs, and barriers to services among adolescents and young adults with autism spectrum disorder in Poland

The association of maternal gestational diabetes mellitus with autism spectrum disorders in the offspring

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