Australian health professionals’ perspectives of psychosocial adjustment to visible differences: A qualitative analysis of pediatric populations

Gee, Caroline; Maskell, Jessica; Newcombe, Peter; Kimble, Roy; Williamson, Heidi

doi:10.1016/j.bodyim.2020.02.004

Cited by 15 publications

(16 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…As highlighted in recent research concerning other appearance-altering pediatric conditions (e.g. skin and craniofacial conditions), there is limited evidence concerning factors or processes which may exacerbate or ameliorate appearance (dis)satisfaction among these pediatric populations ( Gee et al, 2020 ). Given the importance of body image development in adolescence, appearance satisfaction is recognized as a key outcome in AIS care ( Negrini et al, 2006 ) and future research could seek to identify factors which may buffer against negative body image in AIS.…”

Section: Discussionmentioning

confidence: 99%

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Motyer

Kiely

Fitzgerald

2021

Journal of Pediatric Psychology

View full text Add to dashboard Cite

Objective Adolescent idiopathic scoliosis (AIS) is a sideways curvature of the spine that can progress severely during adolescent development and require surgical intervention. This qualitative study was conducted to explore the psychosocial experiences of adolescents with idiopathic scoliosis during the presurgical stage of treatment. Methods Fourteen adolescents with moderate-to-severe AIS aged 12–17 years participated in semistructured interviews and data were analyzed using inductive reflexive thematic analysis. Results Four key themes were generated from the analysis. “Proceeding with Caution” described adolescents’ adaptation to the physical impact of their AIS, while “Am I Different?” encompassed adolescents’ perceptions of their changing appearance and visibility of their condition. “An Emotional Journey” captured the rollercoaster of emotions from shock at diagnosis to the daunting realization of the severity of their condition, while knowing others with AIS could ease the emotional burden. Finally, adolescents’ concerns and expectations about their prospective surgery were captured by the theme “No Pain, No Gain”, whereby they were often keen to put surgery behind them. Conclusions Understanding and addressing adolescents’ psychosocial support needs as they manage the challenges associated with idiopathic scoliosis is a key component of promoting better outcomes among this patient group. Clinical implications and opportunities for support provision are discussed.

show abstract

Section: Discussionmentioning

confidence: 99%

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Motyer

Kiely

Fitzgerald

2021

Journal of Pediatric Psychology

View full text Add to dashboard Cite

show abstract

“…Similarly, limited specialized nursing training and inadequate sta ng result in a longer hospital stay and more complications amongst patients in general (14,15). However, another study mentioned that the challenges of the pediatric oncology nurses are close to minimal (16).…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study of Ghanaian Pediatric Oncology Nurses’ Care Practice Challenges.

Nukpezah

Fomani

Hasanpour

et al. 2021

Preprint

View full text Add to dashboard Cite

Background: Pediatric cancer is a global problem, and some studies have emphasized that nurses caring for these children experience work-related challenges. This has caused many children diagnosed with cancer to have a prolonged hospital stay and suffer unnecessary pain. However, there is insufficient documentary evidence on this issue. This study aims to explore and understand the challenges faced by pediatric oncology nurses in caring for children in Ghana.Methods: An exploratory qualitative research design study was conducted from August 2019 to April 2020. The study was conducted at the pediatric oncology unit which is located at the Tamale Teaching Hospital (TTH), Ghana. The study was conducted among 14 Ghanaian pediatric oncology nurses who were purposively sampled. A semi-structured interview guide was used to collect data. The interviews were recorded, transcribed verbatim, and analyzed inductively using Elo and Kyngas content analysis approach. The criteria proposed by Guba and Lincoln were used to ensure the validity of the study.Results: From the analysis of participants transcripts, eight subcategories emerged from two major categories. The subcategories were; time-consuming care, low job motivations, inadequate logistics, work stress, reduced labour force, low knowledge level, lack of teamwork and the perception of contracting cancer.Conclusions: The results point to several organizational and personal constraints experienced by the nurses who work at the pediatric oncology ward. It is hoped that by addressing these challenges, it would lead to further improvement in the care that is provided to children with cancer. There is the need for the administrative managers of hospitals, government and other stakeholders to invest in human, material and financial resources for delivering childhood cancer care services.

show abstract

“…A trustworthy, friendly, enthusiastic, honest and affectionate paediatric nurse is essential for building a battle of hope against cancer (Offen, 2015). However, another study reported that health professionals could not communicate with cancer patients due to lack of appropriate communication skills or due to a lack of confidence in responding to emotional issues (Tafjord, 2020), there is complexity in providing information to relatives of a sick child (Gee et al., 2020). However, in this current study, the nurses gave education, information and support to clients.…”

Section: Discussionmentioning

confidence: 99%

Striving to reduce suffering: A Phenomenological Study of nurses experience in caring for children with cancer in Ghana

et al. 2020

View full text Add to dashboard Cite

Aim To provide insights into nurses lived experiences in caring for children with cancer. Background Little is known about the paediatric oncology nurses shared practices of caring for children with cancer in Ghana. Design A hermeneutic phenomenological qualitative study. Methods A semi‐structured interview with 14 purposely sampled Ghanaian paediatric oncology nurses. Findings were analysed using Diekelman, Allen and Tanner's approach. Results The theme "Striving to reduce suffering" and three relational subthemes: "knowing children's needs," “Rendering a hopeful fight” and “Ensuring continuity and coordination of care” emerged. Increased awareness of this phenomenon for the nurses who care for these children is vital to ensure quality and holistic care that is meaningful and satisfying by nurses for children with cancer. Paediatric oncology nurses can use the result of the study to evaluate their caring practice and as an avenue to develop better caring practice.

show abstract

Australian health professionals’ perspectives of psychosocial adjustment to visible differences: A qualitative analysis of pediatric populations

Cited by 15 publications

References 38 publications

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

Adolescents’ Experiences of Idiopathic Scoliosis in the Presurgical Period: A Qualitative Study

A Qualitative Study of Ghanaian Pediatric Oncology Nurses’ Care Practice Challenges.

Striving to reduce suffering: A Phenomenological Study of nurses experience in caring for children with cancer in Ghana

Contact Info

Product

Resources

About