Augmenting home exercise programmes in multiple sclerosis with ‘exercise buddies’: A pilot study

Toomey, Elaine; Coote, Susan

doi:10.12968/ijtr.2017.24.2.54

Cited by 3 publications

(1 citation statement)

References 30 publications

(30 reference statements)

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“…Although overall ACQOL in the current study was higher than other studies that employed the same measurement [32,33], a difference between spousal and non-spousal caregivers is noteworthy regarding conflict experience. For spousal caregivers, work conflicts due to caregiving was significant, while non-spousal caregivers experienced family conflicts due to work as a significant factor for their ACQOL.…”

Section: Summary Of Results and Implicationscontrasting

confidence: 83%

Attributes of caregivers' quality of life: A perspective comparison between spousal and non-spousal caregivers of older patients with cancer

Jeong

Shin

Park

et al. 2020

Journal of Geriatric Oncology

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a b s t r a c tPurpose: With the aging population, our current understanding of patients with cancer and their family caregivers needs to be expanded to older patients with cancer and their caregivers. By differentiating spousal caregivers and non-spousal caregivers, we aimed to investigate the universalities and particularities of caregiving for older patients with cancer. Methods: Through 11 cancer centers in South Korea, 358 patient-caregiver pairs were recruited in this crosssectional study. Patients were of gastric, colorectal, or lung cancers, and caregivers were those who accompanied the patients to the clinic. Along with socio-demographic variables, medical records of the patients, and caregiving-related measurements, the caregiver's quality of life (AC-QOL) was rated both by patients and by caregivers. Results: Statistically significant attributes of ACQOL included patient's age, caregiving duration, caregiver's concern about financial burden, caregiver's self-evaluation of their own physical health, and work conflicts due to caregiving for spousal caregivers (R 2 = 0.687). For non-spousal caregivers, caregiving duration, caregiver's concern about financial burden, caregiver's self-evaluation of their own physical health, and family conflicts due to work were found significant (R 2 = 0.272). Also patients rated ACQOL in higher accordance with their spousal caregivers than with non-spousal caregivers. Conclusion: The needs of spousal caregivers and non-spousal caregivers might vary, which should inform the effective and efficient channeling of support for family caregivers. Future research suggestions, along with the study limitations, are discussed.

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Section: Summary Of Results and Implicationscontrasting

confidence: 83%

Attributes of caregivers' quality of life: A perspective comparison between spousal and non-spousal caregivers of older patients with cancer

Jeong

Shin

Park

et al. 2020

Journal of Geriatric Oncology

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The effect of exercise on mental health and health-related quality of life in individuals with multiple sclerosis: A Systematic review and meta-analysis

Beratto,

Bressy,

Agostino

et al. 2024

Multiple Sclerosis and Related Disorders

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Promoting Physical Activity in Huntington’s Disease: Co-Design of a Care Partner Resource

Jones,

Hamana,

Busse

2024

JHD

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Background: Clinical guidelines recommend that people with Huntington’s disease (HD) should exercise to maintain/improve fitness and motor function, yet physical activity levels remain low in this group. Promotion of physical activity is often via care partners with little evidence that they are supported in this role. Objective: The aim was to co-design a resource for care partners of people with HD to support promotion of physical activity. Methods: A four-step co-design approach was used to develop a care partner resource. Five care partners took part in an online workshop exploring experiences and the knowledge, support and skills needed by care partners to promote physical activity. A co-design team (n = 7) developed a prototype that was user tested by three people who had attended the workshop. Findings from user testing were used to develop the final resource. Results: An easy to read, image-based prototype was developed that contained tips on planning activity, safety and activity examples. User testing identified the need for grouping of activities suitable for 10, 20, and 30 minutes of available time, information on maintaining and improving activity and re-organization of information to support engagement of activity. Conclusions: A resource for care partners that has been translated into seven languages was developed to promote physical activity. User testing indicated confidence in using the resource and appreciation of the autonomy provided to the person with HD to plan activities. Further work is needed to evaluate the impact of the resource in promotion of physical activity and the impact on care partner burden.

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Augmenting home exercise programmes in multiple sclerosis with ‘exercise buddies’: A pilot study

Abstract: Abstract:Background: Non-ambulatory people with MS (PwMS) comprise 25% of the MS

Cited by 3 publications

References 30 publications

Attributes of caregivers' quality of life: A perspective comparison between spousal and non-spousal caregivers of older patients with cancer

Attributes of caregivers' quality of life: A perspective comparison between spousal and non-spousal caregivers of older patients with cancer

The effect of exercise on mental health and health-related quality of life in individuals with multiple sclerosis: A Systematic review and meta-analysis

Promoting Physical Activity in Huntington’s Disease: Co-Design of a Care Partner Resource

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