Audiological approaches to address the psychosocial needs of adults with hearing loss: perceived benefit and likelihood of use

Bennett, Rebecca J.; Barr, Caitlin; Cortis, Alex; Eikelboom, Robert H.; Ferguson, Melanie A.; Gerace, Daniel; Heffernan, Eithne; Hickson, Louise; Leeuwen, Lisette van; Montano, Joseph; Preminger, Jill E.; Pronk, Marieke; Saunders, Gabrielle H.; Singh, Gurjit; Timmer, Barbra H B; Weinstein, Barbara E.; Bellekom, Sandra R.

doi:10.1080/14992027.2020.1839680

Cited by 15 publications

(14 citation statements)

References 54 publications

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“…Clinicians need to ensure that they discuss these with sensitivity and confidentiality and establish appropriate multidisciplinary supports that were required [ 43 ]. However, a recent survey undertaken exploring audiologists' knowledge of and skills for detecting and addressing their patients' mental health needs indicated that many audiologists may lack these skills [ 47 , 48 ]. For clinicians working with children who experience tinnitus, developing such skills is highly recommended.…”

Section: Discussionmentioning

confidence: 99%

Reducing the Impact of Tinnitus on Children and Adolescents’ Lives: A Mixed-Methods Concept Mapping Study

Tegg-Quinn

Eikelboom

Brennan‐Jones

et al. 2021

International Journal of Pediatrics

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Objectives. To generate a conceptual framework describing what is done to reduce the impact of chronic tinnitus on the lives of children and adolescents. Design. Views and experiences of 32 adults from two participant groups informed this concept mapping study: (i) a tinnitus group (adults who experienced tinnitus during childhood/adolescence, and primary carers of children/adolescents with tinnitus) and (ii) a clinicians’ group (clinicians who provided care for children/adolescents with tinnitus). Participants produced statements describing what is done to reduce the impact of chronic tinnitus on the lives of children and adolescents who experience it. Through grouping and rating processes, they identified key concepts and inferred their associated benefit. Results. The participants generated 102 unique statements across four concepts: (1) Education, Support, and Counselling; (2) Support from Parents and Teachers; (3) Clinical Assessments and Management; and (4) Self-Management Techniques. Many statements highlighted the need for child-friendly and patient-centred care. Adults with personal experience of childhood tinnitus tended to perceive many of the statements as more beneficial than did the clinician group. Conclusions. Although many children will develop management strategies to assist them with their tinnitus, both the adults who experienced tinnitus as children and their parents valued strategies involving clinical care, knowledge, and expertise. Participants from the tinnitus group perceived a greater degree of benefit associated with strategies from all four clusters than the clinicians’ group. However, both groups perceived the greatest degree of benefit as being associated with activities and strategies within the Education, Support, and Counselling and the Clinical Assessments and Management clusters. Both groups identified that recognising the occurrence of tinnitus for children and adolescents, acknowledging the potential for associated distress, and initiating clinical care provide the nexus of effective management. Addressing the concerns and needs of parents was also perceived as valuable; hence, approaching the management of tinnitus during childhood and adolescence from a family-centred care framework is recommended.

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Section: Discussionmentioning

confidence: 99%

Reducing the Impact of Tinnitus on Children and Adolescents’ Lives: A Mixed-Methods Concept Mapping Study

Tegg-Quinn

Eikelboom

Brennan‐Jones

et al. 2021

International Journal of Pediatrics

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“…Such statements highlight the importance of extending the scope of care beyond just the child experiencing tinnitus to include their family using family-centred care and family-centred practice. These care models not only consider the needs of the child with tinnitus but also those of their family and regard them as central to decision making and implementation processes (Bennett et al, 2020;Johnson, 1990;King et al, 2004).…”

Section: Discussionmentioning

confidence: 99%

Reflections on How Tinnitus Impacts the Lives of Children and Adolescents

et al. 2021

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Objectives The aim of this study was to generate a conceptual framework describing which aspects of children and adolescents' lives are affected by chronic tinnitus. Design Views and experiences of 32 participants from two participant groups informed this study: (a) a tinnitus group, consisting of adults who had experienced tinnitus during childhood and/or adolescence and primary carers of children/adolescents with tinnitus, and (b) a clinicians' group, consisting of clinicians who provided care for children/adolescents with tinnitus. Participants produced statements describing aspects of children/adolescents' lives that may be affected by chronic tinnitus. Key concepts were identified through the processes of sorting the statements and rating them for degree of associated impact. Result Participants identified 118 unique aspects of the lives of children/adolescents who may be affected by chronic tinnitus. These were clustered into four concepts: (a) emotional well-being, (b) academic performances, (c) social/relationa, and (d) auditory/cognitive processing. At a group level, participants rated the impact of tinnitus as above a slight degree but below a moderate degree of impact. However, individual participant's ratings indicated a range of perceived impact for each statement. Conclusions The experience of chronic tinnitus during childhood and adolescence extends beyond the mere perception of sound. The perception of tinnitus may impact a child's emotional well-being, academic performances, social/relational, and auditory/cognitive processing. The impact of tinnitus in one aspect of a child's life may influence other aspects of their life. While at a group level, participants regarded the impact of tinnitus as “somewhat more than mild” to “less than moderate”; individual participant's ratings indicate that the impact from chronic tinnitus may be highly individual and highlighted the importance of individual assessment and management. Clinically, tinnitus management during childhood and adolescence may be improved if clinicians consider the impact and manifestation of tinnitus within each child's daily life and tailor tinnitus education and management strategies accordingly.

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“…54 It is also fully consistent with two themes identified in Bennett et al's survey results collected from patients and audiologists about perceived benefits of patient-centered rehabilitation: "promoting patient responsibility" (outcomes being dependent on active involvement) and "client empowerment" (self-efficacy, taking control of the rehabilitation process). 55 An example of a simple intervention that supports these goals is called "photovoice," wherein patients who are comfortable taking pictures with cellphone cameras are invited to take photos of events and situations throughout their week and email them to the audiologist, with a sentence briefly explaining what the picture meant to them. 56 The photos serve as the focus of subsequent appointments, provid-ing personalized context for communication concerns.…”

Section: Apso Standard 13mentioning

confidence: 99%

Section: Apso Standard 13mentioning

confidence: 99%

Guidance on Providing Patient-Centered Care

English

2022

Semin Hear

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This article explores the clinical applications of Audiology Practice Standards Organization (APSO) Standards 2 and 13, both of which keep us fully focused on the patient-as-person. The topics within Standard 2 include audiologists' interpersonal communication skills, specifically clarity (ensuring patient comprehension) and empathy (understanding the patient's experiences). Standard 2 also addresses the topic of health literacy, which has been recently expanded to consider not only the degree to which individuals are able to find, understand, and use information and services to inform health-related decisions but also how organizations equitably support those necessary skills. The characteristics and benefits of services provided in patient- and family-centered care contexts are also described. Standard 13 addresses audiologists' support toward overall successful adjustment as defined by the patient, including both technical and personal adjustment to amplification, nontechnical communication issues, and rehabilitation support using readily available technologies. A new assessment protocol that includes goal setting and intervention is described, as well as a patient-centered intervention strategy involving discussion of personally meaningful photographs. Both standards provide a necessary balance to our technology-reliant profession.

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Audiological approaches to address the psychosocial needs of adults with hearing loss: perceived benefit and likelihood of use

Cited by 15 publications

References 54 publications

Reducing the Impact of Tinnitus on Children and Adolescents’ Lives: A Mixed-Methods Concept Mapping Study

Reducing the Impact of Tinnitus on Children and Adolescents’ Lives: A Mixed-Methods Concept Mapping Study

Reflections on How Tinnitus Impacts the Lives of Children and Adolescents

Guidance on Providing Patient-Centered Care

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