Atypical Bleeding in Hemophilia: Application of the Conversion Model to the Case Study of A Child

Chilcote, Robert R.; Baehner, Robert L.

doi:10.1097/00006842-198001001-00014

Cited by 5 publications

(4 citation statements)

References 9 publications

(9 reference statements)

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“…Feelings of guilt were reported by Browne et al (2) but, according to Madden and colleagues (14), feelings of guilt for most mothers are a minor problem compared with fear of the possible consequences of bleedings. Chilcote and Baehner (4), Simon (25), and Pawlowsky (18) reported on case studies and point to the fact that the mother’s feelings of guilt often give rise to overprotective behavior on her part and disengagement on the father’s part.…”

Section: Family Burdenmentioning

confidence: 99%

Family burden in families with a hemophilic child.

Varekamp¹,

Suurmeijer²,

Fr³

et al. 1990

Family Systems Medicine

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The parents of 111 children with hemophilia were interviewed to assess family bürden due to the child's chronic condition. A distinction was made between psychological distress and the bürden caused by daily practical problems. The latter were perceived äs minor burdens by the majority of parents. Scores an the psychological distress scale, howeuer, showed a large variance, and were associated with fear of the occurrence of bleeding, concern about the child's futurc, and support from the partncr in childrearing, Farn Syst Med 8:291-301,1990 * We thank J.B.F. Hütten for his valuable contributions äs well äs the parents of hemophilic children for participation in this study,

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Section: Family Burdenmentioning

confidence: 99%

Family burden in families with a hemophilic child.

Varekamp¹,

Suurmeijer²,

Fr³

et al. 1990

Family Systems Medicine

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“…Much of our evidence are clinical anecdotes. Chilcotte describes a young boy who developed repeated spontaneous bleeds in his right elbow after witnessing his father severely injure his right arm (Chilcotte & Baehner 1980). Compelling evidence suggests this represents a conversion reaction, that is, the timing and location of bleeds were determined by psychic conflict.…”

Section: Psychophysiological Bleedingmentioning

confidence: 99%

Hemophilia — Psychological Factors and Comprehensive Management

Agle

1984

Scandinavian Journal of Haematology

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Since chronic disease compounds the difficulties of child rearing and increases the incidence of psychological problems in all age groups, patient care emphasizing technology alone is inadequate. Instead, a biopsychosocial approach is necessary t o correlate medical care with vital information about the patient's psychological and social state. Hemophilia acts as a chronic recurrent stress on the individual and his family requiring the development of coping behaviors for adaptation. While many hemophiliacs achieve normal psychological development, some are overwhelmed by t h e illness contributing to maladaptation and a variety of psychological disorders. Accordingly, medical staff efforts and attitudes that promote effective coping are a vital part of comprehensive care. The goals of coping include carrying out acceptable life goals despite illness handicaps, keeping uncomfortable feelings within manageable limits and the maintenance of a positive self-image. Efforts t o support effective coping begin with effective medical care including adequate relief for acute pain, educational programs that promote optimal child rearing and self-care and the opportunity for the patient and family t o talk about concerns and feelings. Comprehensive care also provides for the identification and specific treatment of psychiatric disorders that may develop.

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“…Parenting stress is higher in the mothers of hemophilic children compared to the mothers of healthy children [8]. In addition, stress of the parents is correlated with increase in bleeding frequency of the hemophilic children while psychosocial support decreases need of transfusion in hemophilic patients [9,10].…”

Section: Introductionmentioning

confidence: 98%

Effect of a self‐help program for mothers of hemophilic children in Korea

et al. 2012

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Mothers of hemophilic children are under stressful situations because of the characteristics of disease and inheritance. The purpose of this study was to evaluate the effect of the self-help group program for the mothers of hemophilic children. Fifty one mothers of hemophilic children were participated. The experiment group (n = 24) participated in the self-help group program for 5 weeks, while the control group (n = 27) received a self-help booklet only. Knowledge, self-efficacy, depression, parenting stress, and quality of life were evaluated using questionnaires. Data were analyzed using χ(2) -test, t-test, and analysis of covariance (ancova). The experiment and control groups were homogeneous in general characteristics and depending variables except knowledge (P < 0.05; P > 0.05, respectively). Knowledge, self-efficacy, and quality of life in the experiment group were increased after the program (P < 0.001). Especially, the knowledge in the experiment group was lower than the control group in pretest, but higher in the posttest (P < 0.001). Depression and parenting stress were reduced in the experiment group compared to the control group (P < 0.001). It is suggestive that the self-help group program can be a useful opportunity for mothers of hemophilic children to improve knowledge and self-efficay of child care and quality of life of themselves; to decrease depression and parenting stress. Extended application of the program to fathers or all family members may be needed to investigate in the future.

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Atypical Bleeding in Hemophilia: Application of the Conversion Model to the Case Study of A Child

Cited by 5 publications

References 9 publications

Family burden in families with a hemophilic child.

Family burden in families with a hemophilic child.

Hemophilia — Psychological Factors and Comprehensive Management

Effect of a self‐help program for mothers of hemophilic children in Korea

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