Attitudes Toward Telehealth Services Among People Living With Parkinson's Disease: A Survey Study

Xu, Yaqian; Feeney, Megan; Surface, Matthew; Novak, Dan; Troche, Michelle S.; Beck, James C.; Alcalay, Roy N.

doi:10.1002/mds.28990

Cited by 8 publications

(13 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Although this survey was deployed during the coronavirus pandemic, our findings related to utilization of services was not different from other surveys we pushed in this same time frame ( 20 , 44 ). Although not reported in detail here, a portion of this survey was dedicated to telehealth services.…”

Section: Discussioncontrasting

confidence: 62%

See 1 more Smart Citation

Understanding health care needs among Veterans with Parkinson's disease: A survey study

et al. 2022

View full text Add to dashboard Cite

Among Veterans, it is estimated that 110,000 are living with Parkinson's disease (PD) in the United States. Whether or not Veterans living with PD are enrolled in the Veterans Health Administration (VHA), they may require special considerations when it comes to their care. We administered a survey to Parkinson's Foundation constituents with PD who had previously reported their Veteran status. Our goal was to identify areas where intervention can lead to improved health outcomes for Veterans living with Parkinson's disease. We specifically wanted to examine 1) the proportion of our Veteran constituents receiving services through the VHA, 2) the comprehensive care services that were utilized by Veterans living with PD, and 3) self-reported mental health and mobility status. We also wanted to compare those receiving care within and outside the VHA to see where there may be areas for improvement. With a response rate of 29.8% we received surveys from 409 United States Veterans with PD. As expected, mental health (MH) concerns in the previous 12 months were common with 36.0% of Veterans reporting concerns. Only 22.1% of respondents received care through VHA. Respondents with more falls and mental health concerns as well as those with higher levels of education and younger age were more likely to be seen at a VHA facility. In this sample, education level, household income, marital status, and VHA status were positively associated with increased health care utilization among Veterans. Those seen within the VHA were more likely to utilize MH and speech and language pathology consultation. This study highlights the importance of targeting educational outreach about care best practices for Veterans living with PD beyond VHA's current reach as well as the importance of access to good MH resources.

show abstract

Section: Discussioncontrasting

confidence: 62%

“…The study response rate of 29.83% also suggests that respondents may not have been representative of the Veterans living with PD population. Although our sample was <500, our respondent demographics were similar to previous research studies hosted by the Foundation ( 20 , 44 , 45 ). All data in this study were self-reported.…”

Section: Discussionmentioning

confidence: 68%

Understanding health care needs among Veterans with Parkinson's disease: A survey study

et al. 2022

View full text Add to dashboard Cite

show abstract

“…Telehealth/m-health is found to be a potentially low-cost and efficient element within healthcare treatment programs [ 69 , 70 ], and both patients and caregivers are generally positive to these forms of treatment [ 69 – 71 ]. This also includes people with PD who in one study responded that telehealth was convenient, easy to use, had the potential to give the same quality of follow-up care as in-person visits, and that telehealth could make follow-up easier in cases were traveling was problematic [ 71 ]. Even though the transition to more digital solutions was already established, the recent pandemic has accelerated the development of digital health care [ 71 – 74 ], increasing the relevance of these types of interventions.…”

Section: Introductionmentioning

confidence: 99%

“…This also includes people with PD who in one study responded that telehealth was convenient, easy to use, had the potential to give the same quality of follow-up care as in-person visits, and that telehealth could make follow-up easier in cases were traveling was problematic [ 71 ]. Even though the transition to more digital solutions was already established, the recent pandemic has accelerated the development of digital health care [ 71 – 74 ], increasing the relevance of these types of interventions. A monthly digital follow-up on physical activity, exercise, and nutrition, might make long-term follow-up more accessible and less time-consuming for individuals, potentially reducing costs to society [ 69 ] and hopefully improving long-term self-management in people with PD.…”

Section: Introductionmentioning

confidence: 99%

Mobile health technology, exercise adherence and optimal nutrition post rehabilitation among people with Parkinson’s Disease (mHEXANUT) – a randomized controlled trial protocol

et al. 2023

View full text Add to dashboard Cite

Background Although it is well known that regular physical activity and exercise, as well as maintaining adequate nutritional status is important to delaying symptom development and maintaining physical capacity and function in people with Parkinson’s Disease (PD), many are unable to follow self-management recommendations. Active interventions have shown short-term effects, but there is a need for interventions that facilitate self-management over the course of the disease. Until now, no studies have combined exercise and nutritional interventions with an individual self-management approach in PD. Thus, we aim to examine the effect of a six-month mobile health technology(m-health)-based follow-up programme, focusing on self-management in exercise and nutrition, after an in-service interdisciplinary rehabilitation programme. Methods A single-blinded, two-group randomised controlled trial. Participants are Adults aged 40 or older, with idiopathic PD, Hoehn and Yahr 1–3, living at home. The intervention group receives a monthly, individualized, digital conversation with a PT, combined with use of an activity tracker. People at nutritional risk get additional digital-follow-up from a nutritional specialist. The control group receives usual care. The primary outcome is physical capacity, measured by 6-min walk test (6MWT). Secondary outcomes are nutritional status, Health related quality of life (HRQOL), physical function and exercise adherence. All measurements are performed at baseline, after 3 months and after 6 months. Sample size, based on primary outcome, is set at 100 participants randomized into the two arms, including an estimated 20% drop out. Discussion The increasing prevalence of PD globally makes it even more important to develop evidence-based interventions that can increase motivation to stay active, promote adequate nutritional status and improve self-management in people with PD. The individually tailored digital follow-up programme, based on evidence-based practice, has the potential to promote evidence-based decision-making and to empower people with PD to implement exercise and optimal nutrition in their daily lives and, hopefully, increase adherence to exercise and nutritional recommendations. Trial registration ClinicalTrials.gov (NCT04945876). First registration 01.03.2021.

show abstract

“…Disruptions in medical care accompanied by an increase in distress 5 and social isolation 6 have contributed to a rising disease burden for PwP. Telemedicine approaches have been shown to provide appropriate medical care for PwP while complying with pandemic‐related contact restrictions 7,8 . However, this technology has not been universally implemented and may therefore, not be available to all PwP 3,9 …”

mentioning

confidence: 99%

Long‐Lasting Impact of the COVID‐19 Pandemic on Patients with Parkinson's Disease and Their Relatives

Wolff

Haller

Demleitner

et al. 2023

Movement Disord Clin Pract

View full text Add to dashboard Cite

Background The coronavirus disease 2019 (COVID‐19) pandemic has heavily impacted medical care of patients with Parkinson's disease (PwP). Objective To assess the longitudinal impact of the COVID‐19 pandemic on PwP and their relatives in Germany. Methods Two online, nationwide, cross‐sectional surveys were conducted from December 2020 to March 2021 and from July to September 2021. Results A total of 342 PwP and 113 relatives participated. Despite partial resumption of social and group activities, healthcare was continuously disrupted during times of loosened restrictions. Respondents’ willingness to use telehealth infrastructure increased, yet the availability remained low. PwP reported worsened symptoms and further deterioration during the pandemic, resulting in an increase in new symptoms and relatives’ burden. We identified patients at particular risk: young patients and those with long disease duration. Conclusions The COVID‐19 pandemic persistently disrupts the care and quality of life of PwP. Although willingness to use telemedicine services has increased, its availability needs to be improved.

show abstract

Attitudes Toward Telehealth Services Among People Living With Parkinson's Disease: A Survey Study

Cited by 8 publications

References 15 publications

Understanding health care needs among Veterans with Parkinson's disease: A survey study

Understanding health care needs among Veterans with Parkinson's disease: A survey study

Mobile health technology, exercise adherence and optimal nutrition post rehabilitation among people with Parkinson’s Disease (mHEXANUT) – a randomized controlled trial protocol

Long‐Lasting Impact of the COVID‐19 Pandemic on Patients with Parkinson's Disease and Their Relatives

Contact Info

Product

Resources

About