Attitudes and perceptions of pregnant women with CHD: results of a single-site survey

Sabanayagam, Aarthi; Briston, David; Zaidi, Ali N.

doi:10.1017/s1047951116002857

Cited by 7 publications

(2 citation statements)

References 17 publications

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“…Despite this, in our study, women with CHD had learnt to live with their illness, accepting their condition. These study results suggest that the interviewed women are aware of their clinical status, unlike previous descriptions for women with other chronic conditions in which the women were observed to underestimate their condition,31 almost minimising the risks of the disease 32. In many interviews, women nicknamed themselves ‘warrior women’, as they were able to face both the joyfulness and difficulties during their lives.…”

Section: Discussionmentioning

confidence: 61%

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

et al. 2020

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ObjectiveThis study explored the lived experiences of women with congenital heart disease (CHD) during pregnancy and early motherhood.DesignQualitative study using semistructured interviews. Data were analysed according to interpretative phenomenological analysis.SettingSan Donato Milanese, Italy.Participants12 adult women during pregnancy or early motherhood.ResultsThree main themes emerged from the analysis that were labelled as follows: ‘Being a woman with CHD’; ‘Being a mother with CHD’; and ‘Don’t be alone’. Mothers described both positive and negative feelings about their pregnancies and transitions from childless women to mothers with CHD. They needed supportive care to improve the management of their health during pregnancy and early motherhood.ConclusionThis study explored the lived experiences of women with CHD during pregnancy and early motherhood. The emerged themes represent an initial framework for implementing theory-grounded educational and supportive strategies that improve self-care, engagement and quality of life for women with CHD. Furthermore, the study’s results provide guidance for operationalising the described experiences into items and domains for future cross-national surveys.

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Section: Discussionmentioning

confidence: 61%

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

et al. 2020

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“…Decision-making depended on favourable enabling factors such as strong desire to carry a pregnancy, supporting data, confidence in the healthcare team, social support, and self-efficacy. Our study adds detail and depth to concepts described in previous studies, [14][15][16][17][18] specific to a large United States healthcare setting and diverse adult CHD complexity. We also suggest a schema of decision-making factors to help clinicians better support their patients in pregnancy-related considerations (Fig 1).…”

Section: Discussionmentioning

confidence: 95%

Adults with CHD balancing motivations and concerns in pregnancy decision-making

et al. 2023

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Background: While the incidence of pregnancy has increased among individuals with adult CHD, little has been described about considerations and experiences of patients with adult CHD regarding pregnancy. Objective: We aimed to explore patients’ motivations, concerns, and decision-making processes regarding pregnancy. Methods: In April 2019–January 2020, we conducted in-depth telephone interviews with patients (n = 25) with simple, moderate, or complex adult CHD, who received prenatal care at the University of Washington during 2010–2019 and experienced a live birth. Transcripts were analysed using thematic analysis. Results: Participants described motivations for pregnancy as both internal desires (motherhood, marriage fulfillment, biological connection, fetal personhood, self-efficacy) and external drivers (family or community), as well as concerns for the health and survival of themselves and the fetus. Factors that enabled their decision to maintain a pregnancy included having a desire that outweighed their perceived risk, using available data to guide their decision, planning for contingencies and knowing their beliefs about termination, plus having a trusted healthcare team, social support, and resources. Factors that led to insurmountable risk in subsequent pregnancies included desire having been fulfilled by the first pregnancy, compounding risk with age and additional pregnancies, new responsibility to an existing child, and reduced healthcare team and social support. Conclusions: Understanding individuals’ motivations and concerns, and how they weigh their decisions to become or remain pregnant, can help clinicians better support patients with adult CHD considering pregnancy. Clinician education on patient experiences is warranted.

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Contraceptive counselling and uptake of contraception among women with cardiovascular diseases: a systematic review and meta-analysis

Feyissa,

Akter,

Harris

2024

Clin Res Cardiol

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To address the lack of clarity regarding contraceptive counselling and uptake of contraception among women with cardiovascular disease (CVD), this study aimed to conduct a systematic review and meta-analysis on contraceptive counselling and the subsequent uptake of contraception among women with CVD. A search across six databases identified 1228 articles, with 11 studies (2580 participants) included. The pooled prevalence of contraceptive counselling was 63%, varying from 36 to 94% in individual studies. Inconsistent delivery and documentation of counselling were noted, along with a lack of knowledge about pregnancy complications and misconceptions regarding CVD severity. For contraceptive uptake (n = 5), the pooled prevalence was 64% (95% confidence interval, 45 to 82%). Women with CVD were also found to use less effective methods as well as methods not recommended for their condition (e.g., combined hormonal methods among participants with absolute or relative contraindications). Improving contraceptive counselling and choices for women with CVD can not only enhance knowledge and decision-making for women with CVD in line with their reproductive goals and preferences but reduce high-risk unintended pregnancies and adverse pregnancy outcomes. Graphical Abstract

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Attitudes and perceptions of pregnant women with CHD: results of a single-site survey

Cited by 7 publications

References 17 publications

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

Exploring the lived experiences of pregnancy and early motherhood in Italian women with congenital heart disease: an interpretative phenomenological analysis

Adults with CHD balancing motivations and concerns in pregnancy decision-making

Contraceptive counselling and uptake of contraception among women with cardiovascular diseases: a systematic review and meta-analysis

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