Attitudes Among Healthcare Providers and Patients Diagnosed With Sickle Cell Disease

O’Connor, Stefani; Hanes, Deborah; Lindsey, Amy; Weiss, Mary Jane; Petty, Lorie; Overcash, Janine

doi:10.1188/14.cjon.675-680

Cited by 7 publications

(6 citation statements)

References 28 publications

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“…Self‐care activities are inherent to living with a chronic illness‐ especially when the healthcare system often does not meet expectations as evidenced by negative interactions between individuals with SCD and healthcare providers being common (O'Connor et al . ). Participants in this study reported being negatively perceived by healthcare providers, experiencing poor pain control and receiving inadequate information about treatment options.…”

Section: Discussionmentioning

confidence: 97%

Perceptions of young adults with sickle cell disease concerning their disease experience

Matthie

Hamilton

Wells

et al. 2015

Journal of Advanced Nursing

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Aim To describe the perceptions of young adults with sickle cell disease concerning their disease experience. Background Sickle cell disease is a lifelong, genetic condition with both acute and chronic painful exacerbations. Little is known of the experiences of young adults with sickle cell disease. Design This study used a qualitative, descriptive design with semi-structured, life-review interviews. Methods Between August 2010 – September 2012, purposive sampling was used to recruit participants with a known sickle cell disease diagnosis who were ages 18–35 years, were being seen in an outpatient sickle cell clinic and were English speaking. Participants provided demographic information and responded to two interviews. A content analysis was then used to interpret participants’ narratives of their experiences of living with sickle cell disease. Results/Findings A sample of 29 young adults with sickle cell disease consisted of 79.3% females, 35.6% employed full-time or part-time, 71.6% single/never married and 57.8% with sickle cell anemia. Their mean age was 25.8 with 13.2 years of education. Four major interview themes were identified: 1) struggles to maintain or achieve good quality of life or life satisfactions; 2) strategies to maintain self-care; 3) interruptions to family, work and social roles; and 4) difficulties accessing needed healthcare. Conclusion Young adults face many challenges while living with sickle cell disease. With a better understanding of their disease experience and how it influences their quality of life, researchers can begin tailoring appropriate interventions to improve health outcomes in this vulnerable, minority population.

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Section: Discussionmentioning

confidence: 97%

Perceptions of young adults with sickle cell disease concerning their disease experience

Matthie

Hamilton

Wells

et al. 2015

Journal of Advanced Nursing

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“…[ 18 ] and other studies also revealed that health-care providers’ views and distrust had an impact on the quality of treatment they provided to patients. [ 19 20 ] Family health-care qualifications were found to have a statistically significant correlation with accurate responses. In order to better care for children with SCD, primary health-care providers must receive more education and training, according to the study findings.…”

Section: Discussionmentioning

confidence: 99%

Knowledge and attitudes of nurses toward sickle cell disease patients in Jazan

Alaajmi

Abdeldafie

2022

Journal of Family Medicine and Primary Care

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A BSTRACT Background: In this study, we look at the role of nurses in dealing with sickle cell disease (SCD) patients in Jazan city. Objectives: The aim of this study was to determine the knowledge of nurses and their attitudes toward SCD patients in Jazan hospitals, Saudi Arabia. Materials and Methods: In this cross-sectional, hospital-based study, based on the inclusion and exclusion criteria, we recruited 240 nurses from Prince Mohammed bin Nasser and Jazan general hospitals in Jazan city, Saudi Arabia. We depend on the validity and reliability of the instrument that were done by the author who prepared the tool of the primary research, and data management processing was incorporated. Statistical analysis was performed with the obtained data. Results: In this study, 24.2% of males and 75.8% of females were included. Of these, 40.4% of nurses between 35 and 40 years of age. About 50.4% has 10–15 years of working experience. 5% of the study participants’ salary is equal to 5000 SR which is the lower salary in the group of the participants. Also, 54.6% of nurses had a bachelor’s degree, 32.9% had a diploma, and only 12.5% had a master’s degree. Approximately 65% of nurses were married. Around 52% of nurses knew that SCD patients should have daily intake of 3 l of liquid and 44% of them recommended pop, juice, and broth. Among the sociodemographic variables, gender and income source were associated with attitude and knowledge scales, whereas among nurses’ groups, only marital status was associated ( P < 0.05). Also, among the sociodemographic variables of nurses, There is statistically significant relation between the nurses’ knowledge and attitude and the demographic characteristics such as income levels, marital status and experiences as revealed by P.vale <0.05. In this study, 72.5% of nurses had poor knowledge score levels and 27.5% had good knowledge. Conclusion: This study concludes that the average total knowledge score was 8.41 and only 27.5% of nurses had good knowledge about SCD in Jazan region. This study also suggests increasing educational interventions, which could aid in improving nurses’ knowledge and attitudes toward SCD. It is recommended to conduct a similar study with a large number of professionals in order to generalize the findings.

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“…Due to the characteristics of geriatric diseases and the nature of the work, the departmental atmosphere can be relatively depressing and stressful. In addition, some eldercare institution wards are crowded, dirty, and malodorous (O'Connor et al, 2014). Measures should be taken to create healthy and safe work environments for employees, to facilitate successful and sustainable aging-in-workplace.…”

Section: Discussionmentioning

confidence: 99%

Turnover intention and coping strategies among older nursing assistants in China: a qualitative study

Tan,

Zhao,

Yang

et al. 2023

Front. Psychol.

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IntroductionWith the increasing aging population, older nursing assistants have made significant contributions to institutional eldercare. However, there is a high turnover rate among these workers, and it is crucial to address this issue and find ways to stabilize the workforce. This study aimed to explore the factors influencing turnover intention and coping strategies among older nursing assistants, in order to provide targeted assistance and guidance to reduce their intention to resign and ultimately lower the turnover rate.MethodsQualitative research methods were employed to conduct semi-structured interviews with older nursing assistants in Changsha. The data obtained from these interviews were then analyzed using a phenomenological analysis approach and NVIVO (QSR International, Doncaster, Australia) software version 11.0.ResultsIt is found that several factors influence turnover intention among older nursing assistants. Which include work pay, work environment, professional identity, external motivation, and work pressure. Additionally, the coping strategies employed by these individuals in relation to their intention to resign include self-regulation, seeking support, self-improvement, and exploring motivation.DiscussionIt is also evident from our study that reducing the turnover intention of older nursing assistants requires a collaborative effort from older adult care institutions, functional departments, and eldercare nursing assistants themselves. By addressing the factors influencing turnover intention and providing support and resources for coping strategies, we can work towards stabilizing the workforce and improving institutional eldercare.

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Attitudes Among Healthcare Providers and Patients Diagnosed With Sickle Cell Disease

Cited by 7 publications

References 28 publications

Perceptions of young adults with sickle cell disease concerning their disease experience

Perceptions of young adults with sickle cell disease concerning their disease experience

Knowledge and attitudes of nurses toward sickle cell disease patients in Jazan

Turnover intention and coping strategies among older nursing assistants in China: a qualitative study

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