Attendance at a psychological support group for people with multiple sclerosis and low mood

Holmes, Jessica; Ford, Emma; Yuill, Faye; Drummond, Avril; Lincoln, Nadina B.

doi:10.3109/09638288.2011.642927

Cited by 10 publications

(10 citation statements)

References 19 publications

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“…The therapeutic effects of the attending support groups has been documented in various conditions, such as cancer (Goodwin et al, 2001), and MS (Holmes, Ford, Yuill, Drummond, & Lincoln, 2012;Lincoln et al, 2011); and was endorsed by all three groups in our study. Research in ageing has indicated that psychological and social factors, including lifestyle-related activities have an interaction effect that may reduce adverse effects of brain dysfunction on cognition (e.g., Dawson, Winocur, & Moscovitch, 1999).…”

Section: Therapeutic Effects Of the Groupsupporting

confidence: 63%

The effectiveness of memory rehabilitation following neurological disabilities: A qualitative inquiry of patient perspectives

Nair

Lincoln

2013

Neuropsychological Rehabilitation

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A note on versions:The version presented here may differ from the published version or from the version of record. If you wish to cite this item you are advised to consult the publisher's version. Please see the repository url above for details on accessing the published version and note that access may require a subscription.For more information, please contact eprints@nottingham.ac.uk The evidence for the effectiveness of memory rehabilitation following neurological conditions, mainly studied through quantitative methodologies, has been equivocal. This study aimed to examine feedback from participants who had been through a randomised controlled trial (RCT) comparing two types of memory rehabilitation with a self-help control. It was envisaged that this information would offer a detailed understanding of patient experience of going through a trial and the perceived effects of having attended group sessions. Through 31 in-depth interviews, data collected were thematically analysed. The seven themes identified highlighted improvements in insight and awareness of memory problems and their neurological conditions, knowledge and skills about using memory aids; and as a consequence, improvements in cognitive functions, mood, and confidence, assertiveness and control over their condition. Participants also reported an altered perspective of life that helped them deal with their problems, and the therapeutic effects of attending group sessions. While these improvements were mainly reported in the intervention groups, even those in the control group reported some benefits. This study highlights that it is both feasible and advantageous to embed qualitative research within the traditional RCT methodology to arrive at a more nuanced understanding of patient experiences and intervention outcomes.

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Section: Therapeutic Effects Of the Groupsupporting

confidence: 63%

The effectiveness of memory rehabilitation following neurological disabilities: A qualitative inquiry of patient perspectives

Nair

Lincoln

2013

Neuropsychological Rehabilitation

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“…MS may cause cognitive disturbance or dementia and, less often, organic psychopathology encompassing behavioural/personality disturbance, mood/affective disorders or psychosis. 83, 84, 85, 86, 87, 88, 89, 90, 91, 92, 93, 94, 95, 96, 97, 98, 99, 100, 101, 102, 103, 104 Psychiatric syndromes, such as bipolar disorders and atypical psychosis, often unassociated with cognitive disturbance or dementia, have been described, and euphoria sclerotica is a characteristic psychosyndrome in MS. 83, 84, 85, 89, 91, 94, 95, 96, 99, 104, 105, 106, 107 Pure psychiatric presentation in MS is rare, as is the case for CTX. 83, 89, 91, 106, 107 Major depressive disorder, which often is prodromal leading to diagnostic delay, is overrepresented in MS patients, as are suicidal ideation, anxiety and sleep disorders, and they are mainly believed to be secondary to physical illness and/or disease-modifying treatment.…”

Section: Discussionmentioning

confidence: 99%

Psychiatric manifestations in cerebrotendinous xanthomatosis

Fraidakis

2013

Transl Psychiatry

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Cerebrotendinous xanthomatosis (CTX) is a rare and severe, but treatable, inborn disorder of bile acid biosynthesis and sterol storage with autosomal recessive inheritance and variable clinical presentation. CTX treatment consists of chenodeoxycholic acid and must be started as early as possible to prevent permanent disability. Psychiatric manifestations are rare and non-specific, and often lead to significant diagnostic and treatment delay. Therefore, better recognition of the gamut of psychiatric manifestations in CTX can diminish the risk of misdiagnosis and irreversible neurological deterioration. We hereby describe the psychiatric features in CTX. A complete review of all published cases of CTX in the medical literature was undertaken and the case reports with psychiatric presentation were collected and analyzed. We also describe the psychiatric features in relation to the neurological semeiology in six patients with CTX diagnosed at the La Salpêtrière Hospital. We conclude that psychiatric manifestations in CTX follow a bimodal/bitemporal pattern, appearing early in the disease course in the form of a behavioral/personality disorder associated with learning difficulties or mental retardation, or manifesting in advanced disease in the setting of dementia as rich neuropsychiatric syndromes, such as frontal, orbitofrontal or frontotemporal syndromes of cortico-subcortical dementia encompassing behavioral/personality disturbance, affective/mood disorders or psychotic disorders. Behavioral/personality disturbance in childhood or adolescence, especially when accompanied by learning difficulties, should therefore lead to further investigation to exclude CTX, as early diagnosis and treatment is critical for prognosis.

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“…While all participants had low mood and multiple sclerosis, this in itself may not have been sufficient to foster cohesion. For the Holmes et al 16 study, non-attendance was more common among men than women. They were in the minority in each group and may not have been able to connect to the others.…”

Section: Discussionmentioning

confidence: 99%

“…Attendance at group sessions has been found to be a problem previously and the proportion attending was consistent with that found in previous research. 16 One hypothesis is that the success of the groups is dependent on group cohesion, which is often linked to shared identities, ideologies, and interests. While all participants had low mood and multiple sclerosis, this in itself may not have been sufficient to foster cohesion.…”

Section: Discussionmentioning

confidence: 99%

Comparing individual and group intervention for psychological adjustment in people with multiple sclerosis: a feasibility randomised controlled trial

et al. 2016

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Objective: To modify a published group intervention for adjustment to multiple sclerosis (MS) to suit an individual format, and to assess the feasibility of a randomised controlled trial (RCT) to compare individual and group intervention for people with multiple sclerosis and low mood. Design: Feasibility randomised controlled trial. Setting: Participants were recruited through healthcare professionals at a hospital-based multiple sclerosis service and the MS Society. Subjects: People with multiple sclerosis. Interventions: Adjustment to multiple sclerosis in individual or group delivery format. Main measures: Participants completed mood and quality of life assessments at baseline and at four-month follow-up. Measures of feasibility included: recruitment rate, acceptability of randomisation and the intervention (content and format), and whether the intervention could be adapted for individual delivery. Participants were screened for inclusion using the General Health Questionnaire-12 and Hospital Anxiety and Depression Scale, and were randomly allocated to receive either individual or group intervention, with the same content. Results: Twenty-one participants were recruited (mean age 48.5 years, SD 10.5) and were randomly allocated to individual (n=11) or group (n=10) intervention. Of those offered individual treatment, nine (82%) completed all six sessions. Of those allocated to group intervention, two (20%) attended all six sessions and three (30%) attended five sessions. There were no statistically significant differences between the groups on the outcome measures of mood and quality of life. Conclusions: The intervention could be provided on an individual basis and the trial design was feasible. There were lower attendance rates at group sessions compared to individual sessions.

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Attendance at a psychological support group for people with multiple sclerosis and low mood

Abstract: Men were less likely to attend group treatment sessions than women, but no other variables were associated with non-attendance. Attendance rates influence the effectiveness of interventions and reasons for non-attendance need to be determined.

Cited by 10 publications

References 19 publications

The effectiveness of memory rehabilitation following neurological disabilities: A qualitative inquiry of patient perspectives

The effectiveness of memory rehabilitation following neurological disabilities: A qualitative inquiry of patient perspectives

Psychiatric manifestations in cerebrotendinous xanthomatosis

Comparing individual and group intervention for psychological adjustment in people with multiple sclerosis: a feasibility randomised controlled trial

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