Associations between care network types and psychological well-being among Dutch older adults

Groenou, M.I. Broese Van

doi:10.1332/239788220x15833754379590

Cited by 5 publications

(4 citation statements)

References 42 publications

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“…As shown in Table 2 below, for the participants in our studies in Australia and the United States, attending appointments alone increased the emotional burden on the patient (patients were "petrified" and "lonely") and made the appointments less effective for conveying important information as patients noted they were too "overwhelmed" to absorb information or ask important questions. This, of course, speaks to enduring concerns around the (often undervalued) practical and emotional caregiving performed by friends and families of people living with cancer (31,42,43). Caregivers themselves felt powerless to help from outside the hospital and, furthermore, health professionals carried an increased emotional load when discussing care and difficult prognoses without anyone to provide the necessary emotional support to the patient.…”

Section: The Impact Of Pandemic Living On Network Of Carementioning

confidence: 99%

“…In terms of the secondthe undulations of informal caresocial science scholarship has routinely pointed to the interdependencies between formalized and informal sectors, both in cancer care and beyond [see, for example, literature on reliance on informal care and mixed-care networks (28), including family and non-kin caregivers (29) in the contexts of ill health (30) and/or aging (31)]. This work has also emphasized the opaqueness of reliance on informal caring networks, and what their role is in survivorship (32).…”

Section: Introductionmentioning

confidence: 99%

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The Enduring Effects of COVID for Cancer Care: Learning from Real-Life Clinical Practice

Broom

Veazey

Kenny

et al. 2023

Clinical Cancer Research

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For three years, COVID-19 has circulated among our communities and around the world, fundamentally changing social interactions, health care systems, and service delivery. For people living with (and receiving treatment for) cancer, pandemic conditions presented significant additional hurdles in an already unstable and shifting environment, including disrupted personal contact with care providers, interrupted access to clinical trials, distanced therapeutic encounters, multiple immune vulnerabilities, and new forms of financial precarity. In a 2020 perspective in this journal, we examined how COVID-19 was reshaping cancer care in the early stages of the pandemic and how these changes might endure into the future. Three years later, and in light of a series of interviews with patients and their caregivers from the United States and Australia conducted during the pandemic, we return to consider the potential legacy effects of the pandemic on cancer care. While some challenges to care provision and survivorship were unforeseen, others accentuated and amplified existing problems experienced by patients, caregivers, and health care providers. Both are likely to have enduring effects in the “post-pandemic” world, raising the importance of focusing on lessons that can be learned for the future.

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Section: The Impact Of Pandemic Living On Network Of Carementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Enduring Effects of COVID for Cancer Care: Learning from Real-Life Clinical Practice

Broom

Veazey

Kenny

et al. 2023

Clinical Cancer Research

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“…In case of dissatisfaction, they can turn to another care provider without excessive administrative procedures. This provides LTC recipients with more control over the care arrangement, which might be one of the reasons for the higher psychological wellbeing among recipients of privately paid care (Broese van Groenou, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…worrying, sleeplessness) and are often prevalent in LTC recipients (Pot et al., 2005). However, having unmet care needs (Pepin et al., 2017) and receiving insufficient care (Broese van Groenou, 2020) can be similarly detrimental to one's PWB, which highlights the importance of the subjective evaluation of LTC.…”

Section: Introductionmentioning

confidence: 99%

How does long‐term care impact the psychological wellbeing of older adults in different care policy contexts in the Netherlands?

Abbing

Suanet

Groenou

2022

Health Social Care Comm

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Receipt of long-term care (LTC) is generally associated with worse psychological wellbeing for community-dwelling older adults. In addition to objective features of care use (e.g. formal vs. informal care), the subjective evaluation of care provision in terms of perceived sufficiency might be particularly predictive of one's wellbeing but is seldomly considered in the literature. Substantial changes in the availability of long-term care in past decades raise the question to what extent these effects, if present, are consistent over historic time. The present study, therefore, aims at better understanding the associations between types of LTC use and perceived care sufficiency on psychological wellbeing in a changing LTC context in the Netherlands. Data from the Longitudinal Aging Study Amsterdam (LASA) were used from three points in time: 1998 (N = 582), 2008 (N = 459) and 2018 (N = 415). At each wave, participants were between 75 and 85 years of age and living independently. The results show that afteradjusting for age, gender, education and health, using formal LTC had a negative effect on depressive symptoms only in 2018, but that this effect was not significantly worse compared to previous cohorts. Perceived care sufficiency was consistently negatively associated with depressive symptoms in all three points in time. This suggests that despite a less generous Dutch LTC system, psychological wellbeing among LTC users remains stable. Perceiving care provision as sufficient, however, can help older adults maintain psychological wellbeing and should be considered by researchers and policymakers that aim to improve care recipients' wellbeing.

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Transitions between care networks: a prospective study among older adults in the Netherlands

Gardeniers,

Huisman,

Meijboom

et al. 2024

Eur J Ageing

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As health impairment increases, older adults utilize care from different types of caregivers, but little is known about changes in the composition of care networks. We mapped the transitions between different care networks to gain insight into which people develop care networks that include informal, privately and publicly paid care. We used three waves (2012–2015–2018) of the Longitudinal Aging Study Amsterdam with 1413 Dutch community-dwelling adults, aged 64–100. Network types were identified using six types of caregivers: (1) co-resident, (2) non-co-resident children, (3) other kin, (4) neighbours/friends/acquaintances, (5) publicly paid, (6) privately paid, in a latent transition analysis with mortality and moving to a care facility as missing states. Five types of care networks were identified: (1) no care, (2) privately paid, (3) mixed informal, (4) mixed publicly paid, (5) co-resident. The co-resident network was the most unstable and had a high transition rate to nursing homes. Participants from the privately paid care network often transitioned to a mixed informal network and rarely transitioned to a mixed publicly paid network. Transitions out of the no-care network were mostly to the privately paid network. The two mixed care networks were the most stable. Transitions appeared to be most triggered by deteriorating health. Transitions to institutional care were most likely in the mixed informal, mixed publicly paid and the co-resident network. Thus, these networks appear to require additional support to facilitate ageing in place.

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Associations between care network types and psychological well-being among Dutch older adults

Cited by 5 publications

References 42 publications

The Enduring Effects of COVID for Cancer Care: Learning from Real-Life Clinical Practice

The Enduring Effects of COVID for Cancer Care: Learning from Real-Life Clinical Practice

How does long‐term care impact the psychological wellbeing of older adults in different care policy contexts in the Netherlands?

Transitions between care networks: a prospective study among older adults in the Netherlands

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