Association of atrial septal fenestration with outcomes after atrioventricular septal defect repair

Callahan, Connor P.; Jegatheeswaran, Anusha; Barron, David J.; Husain, S. Adil; Fuller, Stephanie; Overman, David M.; McCrindle, Brian W.; Blackstone, Eugene H.; Caldarone, Christopher A.; Dabal, Robert J.; DeCampli, William M.; Eghtesady, Pirooz; Honjo, Osami; Jacobs, Jeffrey P.; Kirklin, James K.; Mitchell, Michael E.; Nelson, Jennifer S.; Paramananthan, Tharini; Phillips, Alistair; Polimenakos, Anastasios C.; Toth, Andrew J.; Ramakrishan, Karthik; Rajeswaran, Jeevanantham; Turek, Joseph W.

doi:10.1016/j.jtcvs.2021.06.067

Cited by 7 publications

(7 citation statements)

References 21 publications

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“…Overall, 64 peer-reviewed papers have been published based on the CHSS Database: 59 peer-reviewed articles have been published based on the 12 Diagnostic Inception Cohorts, 1-26,29,31-39,42-64 and 5 additional articles have been published based on Data Science. 27,28,30,40,41 The 64 articles generated by the CHSS Data Center are listed in the references list of this current article in chronological order based on their dates of publication.…”

Section: Resultsmentioning

confidence: 99%

“…27,28,30,40,41 The 64 articles generated by the CHSS Data Center are listed in the references list of this current article in chronological order based on their dates of publication. 1-64 The first cohort (TGA) began enrolling patients on January 1, 1985. Appendix 1 provides the original 1984 letter to members of CHSS from James W. Kirklin, MD and Eugene H. Blackstone, MD that proposes this ...…”

Section: Resultsmentioning

confidence: 99%

“…Anomalous Aortic Origin of a Coronary Artery (AAOCA) 34,39,42,44,49,56,61 11. Atrioventricular Septal Defect (AVSD) 31,32,37,54,60,64 12. Ebstein Anomaly (Ebstein malformation of tricuspid valve)…”

Section: Congenital Heart Surgeons' Society Cohortsmentioning

confidence: 99%

“…The first CHSS cohort, neonates with transposition of the great arteries (TGA), began enrolling patients on January 1, 1985. The purpose of this current analysis and article is to estimate the academic impact of CHSS research by reviewing all 64 articles ever published by the CHSS Data Center 1-64 and assessing the citations generated by these CHSS publications.…”

Section: Introductionmentioning

confidence: 99%

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The Academic Impact of Congenital Heart Surgeons’ Society (CHSS) Studies

Jacobs,

DeCampli,

Karamlou

et al. 2023

World J Pediatr Congenit Heart Surg

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Purpose We reviewed all 64 articles ever published by The Congenital Heart Surgeons’ Society (CHSS) Data Center to estimate the academic impact of these peer-reviewed articles. Materials and Methods The Congenital Heart Surgeons’ Society has performed research based on 12 Diagnostic Inception Cohorts. The first cohort (Transposition) began enrolling patients on January 1, 1985. We queried PubMed to determine the number of publications that referenced each of the 64 journal articles generated by the datasets of the 12 Diagnostic Inception Cohorts that comprise the CHSS Database. Descriptive summaries of the data were tabulated using mean with standard deviation and median with range. Results Sixty-four peer-reviewed papers have been published based on the CHSS Database. Fifty-nine peer-reviewed articles have been published based on the 12 Diagnostic Inception Cohorts, and five additional articles have been published based on Data Science. Excluding the recently established Diagnostic Inception Cohort for patients with Ebstein malformation of tricuspid valve, the number of papers published per cohort ranged from 1 for coarctation to 11 for transposition of the great arteries. The 11 articles generated from the CHSS Transposition Cohort were referenced by a total of 111 articles (median number of references per journal article = 9 [range = 0-22, mean = 10.1]). Overall, individual articles were cited by an average of 11 (mean), and a maximum of 41 PubMed-listed publications. Overall, these 64 peer-reviewed articles based on the CHSS Database were cited 692 times in PubMed-listed publications. The first CHSS peer-reviewed article was published in 1987, and during the 35 years from 1987 to 2022, inclusive, the annual number of CHSS publications has ranged from 0 to 7, with a mean of 1.8 publications per year (median = 1, mode = 1). Conclusion Congenital Heart Surgeons’ Society studies are widely referenced in the pediatric cardiac surgical literature, with over 10 citations per published article. These cohorts provide unique information unavailable in other sources of data. A tool to access this analysis is available at: [ https://data-center.chss.org/multimedia/files/2022/CAI.pdf ].

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Congenital Heart Surgeons' Society Cohortsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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The Academic Impact of Congenital Heart Surgeons’ Society (CHSS) Studies

Jacobs,

DeCampli,

Karamlou

et al. 2023

World J Pediatr Congenit Heart Surg

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“…Callahan and the Working Group studied the association of the presence of an atrial septal fenestration (ASF) after biventricular repair with outcomes in the AVSD cohort. 14 ASF was present in 133 of 581(23%) of total patients. The five-year survival of patients with and without ASF was 83% and 93%, respectively ( P = .001).…”

Section: Recent Era: 2018 To Presentmentioning

confidence: 98%

Research Enterprise of the Congenital Heart Surgeons’ Society 2018 to 2023: History, Accomplishments, Transformation, and Challenges

DeCampli

2023

World J Pediatr Congenit Heart Surg

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The history of the research arm of the Congenital Heart Surgeons’ Society (CHSS) through 2017 was contained within two prior publications that covered CHSS history in general. The present article is the first to focus explicitly on the research enterprise, with emphasis on the period 2018 to 2023. During this time, the challenges of continuing to build multiple cohorts with lifelong follow-up and to transform the enterprise to a premiere research organization became manifest. Although continuing its commitment to produce impactful research results and to educate the Kirklin/Ashburn Fellow, the research team devoted considerable effort to defining the problems of cohort relevance, workflow, data management, long-term patient follow-up, CHSS member engagement, and the regulatory burden. The team wrote a proposal outlining ways to solve the challenges. A major change from a single-institution “Data Center” to a two-institution Center for Research & Quality (CRQ) was made, assuring increased faculty members and resources. The proposed changes to structure and process began execution in mid-2022. A second Kirklin/Ashburn Fellowship position was created. Between 2018 and 2022, the CRQ produced 17 publications and launched five new research initiatives. This article chronicles the exciting five-year period in which the CHSS research enterprise began a transformation with the intent to become the premiere research organization in the world in the specialty of congenital cardiac surgery.

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