Association Between Participant Contact Attempts and Reports of Being Bothered in a National, Longitudinal Cohort Study of ARDS Survivors

Eakin, Michelle N.; Eckmann, Thomas; Dinglas, Victor D.; Akinremi, Ayodele; Hosey, Megan M.; Hopkins, Ramona O.

doi:10.1016/j.chest.2020.02.050

Cited by 4 publications

(5 citation statements)

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“…Moreover, best practices for participant retention in healthcare-related studies have been published, 14 along with four empirical analyses relating to participant retention. [40][41][42][43] Such publications are important in ensuring evidence-based advancement of methods for participant retention.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, one of the publications from this project provides empirical evidence to debunk the myth that intensive retention efforts are bothersome to participants. 41 Ultimately, this national infrastructure project has shared >30 downloadable tools, including customizable telephone scripts and letters, as well as templates relevant to participant follow-up, such as a detailed participant contact information form. With increasing interest in posthospital outcomes of trauma patients, 5 10 44 improving participant retention in studies evaluating long-term outcomes is critical to help reduce bias and better inform the care of critically injured patients.…”

Section: Discussionmentioning

confidence: 99%

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Participant retention in trauma intensive care unit (ICU) follow-up studies: a post-hoc analysis of a previous scoping review

Rawal

Young²,

Nikooie

et al. 2020

Trauma Surg Acute Care Open

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BackgroundThe study aimed to synthesize participant retention-related data for longitudinal follow-up studies of survivors from trauma intensive care units (ICUs).MethodsWithin a published scoping review evaluating ICU patient outcomes after hospital discharge, two screeners independently searched for trauma ICU survivorship studies.ResultsThere were 11 trauma ICU follow-up studies, all of which were cohort studies. Twelve months (range: 1–60 months) was the most frequent follow-up time point for assessment (63% of studies). Retention rates ranged from 54% to 94% across time points and could not be calculated for two studies (18%). Pooled retention rates at 3, 6, and 12 months were 75%, 81%, and 81%, respectively. Mean patient age (OR 0.85 per 1-year increase, 95% CI 0.73 to 0.99, p=0.036), percent of men (OR 1.07, 95% CI 1.04 to 1.10, p=0.002), and publication year (OR 0.89 per 1-year increase, 95% CI 0.82 to 0.95, p=0.007) were associated with retention rates. Early (3-month) versus later (6-month, 12-month) follow-up time point was not associated with retention rates.DiscussionPooled retention rates were >75%, at 3-month, 6-month, and 12-month time points, with wide variability across studies and time points. There was little consistency with reporting participant retention methodology and related data. More detailed reporting guidelines, with better author adherence, will help improve reporting of participant retention data. Utilization of existing research resources may help improve participant retention.Level of evidenceLevel III: meta-analyses (post-hoc analyses) of a prior scoping review.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Participant retention in trauma intensive care unit (ICU) follow-up studies: a post-hoc analysis of a previous scoping review

Rawal

Young²,

Nikooie

et al. 2020

Trauma Surg Acute Care Open

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“…Fourth, we compensate participants for their effort each time they complete a study procedure. Last, to we will attempt to attenuate loss to follow up using the guidance of recent guidelines from clinical research experts [ 13 ].…”

Section: Methodsmentioning

confidence: 99%

Optimizing a self-directed mobile mindfulness intervention for improving cardiorespiratory failure survivors' psychological distress (LIFT2): Design and rationale of a randomized factorial experimental clinical trial

Cox

Olsen

Gallis

et al. 2020

Contemporary Clinical Trials

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Introduction Although as many as 75% of the >2 million annual intensive care unit (ICU) survivors experience symptoms of psychological distress that persist for months to years, few therapies exist that target their symptoms and accommodate their unique needs. In response, we developed LIFT, a mobile app-based mindfulness intervention. LIFT reduced distress symptoms more than either a telephone-based mindfulness program or education control in a pilot randomized clinical trial (LIFT1). Objective To describe the methods of a factorial experimental clinical trial (LIFT2) being conducted to aid in the development and implementation of the version of the LIFT intervention that is optimized across domains of effect, feasibility, scalability, and costs. Methods and analysis The LIFT2 study is an optimization trial conceptualized as a component of a larger multiphase optimization strategy (MOST) project. The goal of LIFT2 is to use a 2 × 2 × 2 factorial experimental trial involving 152 patients to determine the ideal components of the LIFT mobile mindfulness program for ICU survivors across factors including (1) study introduction by call from a therapist vs. app only, (2) response to persistent or worsening symptoms over time by therapist vs. app only, and (3) high dose vs. low dose. The primary trial outcome is change in depression symptoms 1 month from randomization measured by the PHQ-9 instrument. Secondary outcomes include anxiety, post-traumatic stress disorder, and physical symptoms; measures of feasibility, acceptability, and usability; as well as themes assessed through qualitative analysis of semi-structured interviews with study participants conducted after follow up completion. We will use general linear models to compare outcomes across the main effects and interactions of the factors.

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“…Strategies to improve study retention are also likely to be useful, including increased contact attempts. 24 In addition, we assessed dissociative symptoms to reflect patients' peritraumatic reactions during hospitalization, and reserved assessment of posttraumatic symptoms for the post-hospital period. In future work, it may also be helpful to include a broader index of trauma-related symptoms at baseline for comparison (e.g., IES-R, IES-6), a limitation of this study.…”

Section: Discussionmentioning

confidence: 99%

“…A larger study is needed to determine whether these findings are generalizable to the broader population of ICU survivors. Strategies to improve study retention are also likely to be useful, including increased contact attempts ( 24 ). In addition, we assessed dissociative symptoms to reflect patients’ peritraumatic reactions during hospitalization and reserved assessment of posttraumatic symptoms for the posthospital period.…”

Section: Discussionmentioning

confidence: 99%

Peritraumatic Stress Symptoms during Early Post–Intensive Care Unit Recovery

et al. 2021

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Association Between Participant Contact Attempts and Reports of Being Bothered in a National, Longitudinal Cohort Study of ARDS Survivors

Cited by 4 publications

References 25 publications

Participant retention in trauma intensive care unit (ICU) follow-up studies: a post-hoc analysis of a previous scoping review

Participant retention in trauma intensive care unit (ICU) follow-up studies: a post-hoc analysis of a previous scoping review

Optimizing a self-directed mobile mindfulness intervention for improving cardiorespiratory failure survivors' psychological distress (LIFT2): Design and rationale of a randomized factorial experimental clinical trial

Peritraumatic Stress Symptoms during Early Post–Intensive Care Unit Recovery

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