Assessment of Shame and Stigma in Head and Neck Cancer: A Meta-Analysis

Goyal, Atul Kumar; Bakshi, Jaimanti; Panda, Naresh K.; Kapoor, Rakesh; Vir, Dharam; Kumar, Krishan; Aneja, Pankaj

doi:10.1007/s12663-021-01658-2

Cited by 14 publications

(7 citation statements)

References 33 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The following well-validated measures were used in the current study: Shame and Stigma Scale (SSS) [ 15 ] (the English version and a French translation were used), Body Image Coping Strategies Inventory (BICSI) [ 20 ], Body Image Scale (BIS) [ 21 ], Hospital Anxiety and Depression Scale (HADS) [ 22 , 23 ], Centre of Epidemiologic Studies Depression (CES-D) [ 24 ], Illness Intrusion Ratings Scale (IIRS) [ 25 , 26 ], Functional Assessment of Cancer Therapy—General (FACT-G) [ 27 ], and Functional Assessment of Cancer Therapy—Head and Neck (FACT-H&N) [ 28 ], Buss–Perry Aggression Questionnaire—Short Form (BPAQ) [ 29 , 30 ], and Marlowe–Crown Social Desirability—Short Form (MCSD) [ 31 , 32 ]. The SSS was translated into French using backtranslation [ 33 ].…”

Section: Methodsmentioning

confidence: 99%

Validation of the Canadian Version of the Shame and Stigma Scale for Head and Neck Cancer Patients

et al. 2023

View full text Add to dashboard Cite

Cancers of the head and neck and their treatment can cause disfigurement and loss of functioning, with a profound negative impact on the person’s self-image and psychosocial wellbeing. This can lead to experiences of shame and stigma, which are important targets for psychosocial interventions. Accurate measurement and identification of these problems enables clinicians to offer appropriate interventions and monitor patients’ progress. This study aimed to validate the Canadian version of the Shame and Stigma Scale (SSS) among French- and English-speaking head and neck cancer patients. Data from 254 patients from two major Canadian hospitals were analysed. The existing four-factor structure of the SSS was supported, with the following subscales: Shame with Appearance, Sense of Stigma, Regret, and Social/Speech Concerns. The Canadian SSS showed adequate convergent and divergent validity and test–retest reliability. Rasch analysis suggested scale improvement by removing two misfitting items and two items with differential functioning between French- and English-speaking patients. The final 16-item scale version was an adequate fit with the Rasch model. The SSS provides more accurate measures for people with high levels of shame and stigma, and thus has utility in identifying patients with more severe symptoms who may be in need of psychosocial interventions.

show abstract

Section: Methodsmentioning

confidence: 99%

Validation of the Canadian Version of the Shame and Stigma Scale for Head and Neck Cancer Patients

et al. 2023

View full text Add to dashboard Cite

show abstract

“…Meacham et al (2016) showed stigma associated with breast cancer had an influence on treatment and care engagement [8]. While in head and neck cancer patients, stigma greatly affects psychological well-being [9], and it is significantly correlated to negative psychological consequences, especially in those who suffers from severe facial disfigurement [10]. In addition, medical help-seeking was found to be independently related to stigma in lung cancer patients [11].…”

Section: Introductionmentioning

confidence: 98%

Validation of the Malay Version of the Shame and Stigma Scale among Cancer Patients in Malaysia

Zhang¹,

Azman²,

Eyu³

et al. 2022

Preprint

View full text Add to dashboard Cite

Assessment of stigma among cancer patients is of utmost importance as stigma may lead to various psychological sequelae and lower quality of life. This study aimed to translate the English version of the Shame and Stigma Scale (SSS) into Malay and validate the Malay version of the SSS (SSS-M) among cancer patients in Malaysia. Initially, concurrent translation and back translation of the SSS-M was performed, and face and content validity were assessed. Then, the SSS-M was administered to a total of 234 patients of mixed types of cancer to assess its reliability (internal consistency and test-retest reliability), construct validity (convergent and discriminant validity), exploratory factor analysis (EFA) and confirmatory factor analysis (CFA). The SSS-M total score registered good internal consistency (Cronbach’s α of 0.886) and test-retest reliability (intraclass correlation coefficient of 0.846, p < 0.001). EFA and CFA confirmed that the SSS-M consisted of 20 items in 5 domains. Its convergent and discriminant validity were achieved. Hence, the SSS-M demonstrated good psychometric properties and is available for use to assess stigma among cancer patients in Malaysia.

show abstract

“…Using the same instrument, Tseng et al [14] found that HNC patients reported mild-to-moderate (mean = 17.51) stigma, with descending levels of shame with appearance, regret, social and speech concerns, self-discrimination, and sense of stigma. In a review, Goyal et al [15] found that HNC patients perceived stigma following intense surgical procedures, which began postoperatively and persisted over time, negatively impacting their quality of life.…”

Section: Introductionmentioning

confidence: 99%

Stigma and Its Influencing Factors in Patients with Head and Neck Cancer

Peng,

Chen

2023

Preprint

View full text Add to dashboard Cite

Aims: Head and neck cancer (HNC) patients often suffer from stigma after treatment. The purpose of this study was to assess perceived body image, depression, physical function, psychosocial function, and stigma, as well as to identify factors associated with stigma in patients with HNC. Methods: This cross-sectional study recruited 156 HNC patients from the outpatient radiation department of a medical center in Northern Taiwan. Patients were assessed for patient reported outcomes using the Body Image Scale (BIS), the Hospital Anxiety and Depression Scale–Depression Subscale (HADS–Depression Subscale), the University of Washington Quality of Life Scale (UW-QOL) version 4.0, and the Shame and Stigma Scale (SSS). Data were analyzed by descriptive analysis, Pearson’s product-moment correlation, and multiple regression. Results: The two top ranked subscales of stigma were: “speech and social concerns” and “regret”. Stigma was positively correlated with younger age, longer time since the completion of treatment, being employed, body image dissatisfaction, depression, less physical function, and less psychosocial function. Multiple regression analysis showed that higher levels of body image concern, greater depression, a longer time since completing treatment, younger age, and less physical function were associated with greater stigma. These factors explained 69.2% of the variance in stigma. Conclusion: Patients’ body image concerns strongly influence overall stigma as well as each subscale of stigma. Oncology nurses should assess and record psychological status, provide available resources, and refer appropriate HNC patients to counselling.

show abstract

Assessment of Shame and Stigma in Head and Neck Cancer: A Meta-Analysis

Cited by 14 publications

References 33 publications

Validation of the Canadian Version of the Shame and Stigma Scale for Head and Neck Cancer Patients

Validation of the Canadian Version of the Shame and Stigma Scale for Head and Neck Cancer Patients

Validation of the Malay Version of the Shame and Stigma Scale among Cancer Patients in Malaysia

Stigma and Its Influencing Factors in Patients with Head and Neck Cancer

Contact Info

Product

Resources

About