Assessment of patient centredness through patient-reported experience measures (ASPIRED): protocol of a mixed-methods study

Abstract

IntroductionThe impact of patient centredness (PC) in healthcare has grown over the years. However, conceptualisations of PC are heterogeneous. Existing patient-reported measures of PC have shown inconsistencies and shortcomings. This impedes the comparison of results across studies. To foster PC, it is important to know which dimensions matter most to patients and to be able to measure its current extent from the patients’ perspective. This study aims (1) to assess relevance of dimensions of PC from the patients’ perspective, (2) to develop and psychometrically test a core set of patient-reported experience measures (PREMs) assessing PC and (3) to investigate the feasibility of implementation of this core set in routine healthcare.Methods and analysisA mixed-methods approach will be used. In phase 1, 200 patients will assess the relevance of the dimensions of PC in a Delphi study using a plain language description. In phase 2, the core set of PREMs will be developed through literature reviews, focus groups, key informant interviews and content validity ratings. The core set will be tested psychometrically in a cross-sectional study with 2000 inpatient and outpatients with different chronic conditions (ie, cancer, cardiovascular diseases, mental disorders and musculoskeletal disorders). In phase 3, the feasibility of implementation of the core set will be assessed through semistructured interviews with healthcare practitioners after piloting in routine care. Furthermore, an expert workshop will be held on how to foster implementation.Ethics and disseminationThe study will be carried out in accordance to the latest version of the Helsinki Declaration of the World Medical Association and principles of good scientific practice. The study was approved by the Ethics Committee of the Medical Association Hamburg, Germany (study ID: PV5724). The study results will be disseminated in scientific journals and through collaboration partners and plain language press releases.

Construction and content validation of a measurement tool to evaluate person-centered therapeutic relationships in physiotherapy services

“…Concerning the number of experts necessary when using this methodology, there is no established consensus, although a number of experts of around 10 is usually considered sufficient to be considered valid [53,54]. In our case, the number of experts was nine, which we consider to be sufficient, considering the heterogeneity of the sample [55]. The high rate of agreement achieved after the consultation rounds, and the fact that all the domains and subdomains were recognized as being relevant, without suggestions for further items to be included on behalf of the experts, helps support the validity of the instrument content.…”

Assessing the relevance and implementation of patient-centredness from the patients’ perspective in Germany: results of a Delphi study

“…This Delphi study was conducted as part of the study ‘Assessment of patient-centeredness through patient-reported experience measures (ASPIRED) 22. Within the study ASPIRED, a patient-reported experience measure will be developed to foster PC care.…”

Patients’ perceptions with musculoskeletal disorders regarding their experience with healthcare providers and health services: an overview of reviews

“…While efforts have been made to collect and measure information about the patient experience using qualitative studies or surveys, actions and strategies on systematically improving quality of care and promoting patient-centered care according to patient-reported experience measures have not yet been fully undertaken [ 67 ]. Considering the positive correlation between the patient experience and clinical outcomes, it needs to be considered as a tool to refine the quality of care and enhance the implementation of the concept of patient-centeredness [ 18 , 64 , 68 ]. In a recent study evaluating key drivers of the patient experience in pediatric population with heart disorders, cheerfulness during practice, the cohesiveness of staff, and explanation of problems and conditions from the providers were identified as predictive of overall satisfaction [ 69 ].…”