Assessment of Mother's Knowledge and Practices Regarding their Children with Systemic Lupus Erythematosus

Abstract

Background: Systemic lupus erythematosus is a long-term autoimmune disease characterized by multiple organs damage resulting in potentially lifethreatening complications. Aim: This study was aimed to assess mother's knowledge and practices regarding their children with systemic lupus erythematosus. Research design: A descriptive research design was utilized in this study. Setting: This study conducted at Allergy and Immunity Out-Patient Clinic in Pediatric Hospital affiliated to Ain Shams University Hospitals. Subjects: A purposive sample composed of 120 mothers accompanying their children with systematic lupus erythematosus. Tools of data collection: Two tools were used; a structured interviewing questionnaire and structured observational checklists to gather data about systemic lupus erythematosus from mothers and their children. Results: More than two thirds (68.3%) of the studied mothers had unsatisfactory knowledge about systemic lupus erythematosus, while most (82.5%) of them had incomplete reported practices level. Also, there was a statistically significant differences between mother's total knowledge level and their educational level with p<0.05 and there was a highly statistically significant difference between mother's total practices and their educational level with p< 0.001. Conclusion:The majority of the studied mothers had unsatisfactory knowledge and incomplete practices regarding systemic lupus erythematosus. Recommendations: Continuous educational program for mothers having children with systemic lupus erythematosus to increase their knowledge and practices regarding care of their children.

Effect of implementing Family Empowerment Model on the Quality of Life and SelfEfficacy of Mothers of Children with Systematic Lupus Erythema

“…Also, most children with chronic disease have cared at home without nursing or other health care services and the mother must assume the role as a care coordinator for their children with SLE. Therefore, so, mother requires receiving extensive training skills, knowledge , instructions about the child's care, and guidance about proper nutrition, exercise ,sun protection, , vaccination, and management of comorbid conditions, which leading to better self efficacy and quality of life for mothers and improve child's health outcomes (7) . Self-efficacy was refers to the ability of performing a particular function that a children expects from his/her ability to do in different situations.…”