Assessment of impact of information booklets on use of healthcare services: randomised controlled trial Commentary: What's wrong with opting out? Commentary: Public opinion may force researchers to seek "opt in" consent for all

Heaney, David; Wyke, Sally; Wilson, Philip M.; Elton, R. A.; Rutledge, Philip

doi:10.1136/bmj.322.7296.1218

Cited by 30 publications

(14 citation statements)

References 8 publications

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“…Several possible mechanisms have been identified by which UGC and, in particular, others’ experiences may affect health, such as finding information, feeling supported, and experiencing health services [ 5 ]. Therefore, our results are congruent with the contingent model of health information use, which suggests that health information is one important component of a health care experience, rather than as something that displaces or reduces use of health services [ 28 ].…”

Section: Discussionsupporting

confidence: 82%

User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom

O’Neill¹,

Ziébland²,

Valderas³

et al. 2014

J Med Internet Res

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BackgroundThe production of health information has begun to shift from commercial organizations to health care users themselves. People increasingly go online to share their own health and illness experiences and to access information others have posted, but this behavior has not been investigated at a population level in the United Kingdom.ObjectiveThis study aims to explore access and production of user-generated health content among UK Internet users and to investigate relationships between frequency of use and other variables.MethodsWe undertook an online survey of 1000 UK Internet users. Descriptive and multivariate statistical analyses were used to interpret the data.ResultsNearly one-quarter of respondents (23.7%, 237/1000) reported accessing and sharing user-generated health content online, whereas more than 20% (22.2%, 222/1000) were unaware that it was possible to do this. Respondents could be divided into 3 groups based on frequency of use: rare users (78.7%, 612/778) who accessed and shared content less than weekly, users (13.9%, 108/778) who did so weekly, and superusers (7.5%, 58/778) who did so on a daily basis. Superusers were more likely to be male (P<.001) and to be employed (P<.001), but there were no differences between the groups with respect to educational level (P=.99) or health status (P=.63). They were more likely to use the Internet for varied purposes such as banking and shopping (P<.001).ConclusionsAlthough this study found reasonably widespread access of user-generated online health content, only a minority of respondents reported doing so frequently. As this type of content proliferates, superusers are likely to shape the health information that others access. Further research should assess the effect of user-generated online content on health outcomes and use of health services by Internet users.

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Section: Discussionsupporting

confidence: 82%

User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom

O’Neill¹,

Ziébland²,

Valderas³

et al. 2014

J Med Internet Res

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“…A wide range of information is available for parents and families, including written material (leaflets, pamphlets, and booklets) or on websites. However, parents do not always know about this material and even if they do, awareness does not seem to make an impact on service use when children are acutely sick at home (15 –17). The increase in consultation rates for nonurgent care (18, 19) suggests that more effective information sources are needed.…”

Section: Introductionmentioning

confidence: 99%

Understanding Parents’ Experiences and Information Needs on Pediatric Acute Otitis Media: A Qualitative Study

Meherali

Campbell

Hartling

et al. 2018

Journal of Patient Experience

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Background: Acute otitis media (AOM) is the most common pediatric bacterial ear infection, affecting up to 75% of children younger than 5 years. Despite the high incidence of AOM in children, the condition presents a number of challenges to parents. The objectives of this study were to describe parents’ experiences of taking care of a child with AOM and to identify their information needs to manage their child with AOM. Methods: A qualitative, descriptive design was used to gain insight into information needs of parents’ of children with AOM. Participants were recruited from a specialized pediatric emergency department in a major Canadian urban center (Edmonton, Alberta). Individual semi structured interviews were conducted with 16 parents. Results: Seven major themes were identified and described: (1) frequency of AOM, (2) symptoms of AOM experienced by children and parents, (3) AOM symptom management strategies used by parents, (4) parent’s beliefs about AOM, (5) parent’s satisfaction with treatment prescribed by physicians, (6) the effect of AOM on family’s quality of life, and (7) parent’s information needs about AOM. Findings indicate that AOM has considerable negative outcomes for both children and families and that parents would benefit from having more evidence-based resources. Conclusions: This study provides important information around parents’ experiences and information needs for pediatric AOM. Identifying parents’ information needs and developing innovative and communicatively responsive educational approaches for parents are warranted that reflect patient-centered nursing care.

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“…This finding is important for physician consultations and the design of public health interventions which would act wisely to focus on relieving measures for patients’ discomfort in combination with providing information on the natural disease course. Given that the mere distribution of written patient information has little effect [ 25 , 26 ], future research needs to identify the complexity of interventions necessary to promote a rational use of evidence-based self-care for common colds.…”

Section: Discussionmentioning

confidence: 99%

Self-care for common colds: A European multicenter survey on the role of subjective discomfort and knowledge about the self-limited course - The COCO study

Thielmann

Gerasimovska-Kitanovska

Koskela

et al. 2018

PLoS ONE

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IntroductionCommon colds are the most frequently encountered disease worldwide and the most frequent reason for self-care. According to the cross-sectional European Common Colds study (COCO), patients use as many as 12 items on average for self-care. Little is known about the influence of discomfort and knowledge on self-care for common colds.Main objectiveTo understand the influence of patients’ discomfort during a cold and their knowledge about the self-limited disease course on the use of self-care measures.Materials and methodsThis COCO analysis included 2,204 patients from 22 European primary care sites in 12 countries. Each site surveyed 120 consecutive adults with a 27-item questionnaire asking about patients’ self-care, subjective discomfort during a cold (discomfort: yes/no), and knowledge about the self-limited course (yes/no). Country-specific medians of the number of self-care items served as a cut-off to define high and low self-care use. Four groups were stratified based on discomfort (yes/no) and knowledge (yes/no).ResultsParticipants’ mean age was 46.5 years, 61.7% were female; 36.3% lacked knowledge; 70.6% reported discomfort. The group has discomfort/no knowledge exhibited the highest mean item use (13.3), followed by has discomfort/has knowledge (11.9), no discomfort/no knowledge (11.1), and no discomfort/has knowledge (8.8). High use was associated with discomfort (OR 1.8; CI 1.5–2.2), female gender (OR 1.7; 1.4–2.0), chronic pain/arthritis (OR 1.6; 1.2–2.1), more years of education (OR 1.3; 1.1–1.6), age <48 years (OR 1.3; 1.0–1.5), and lack of knowledge (OR 1.2; 1.0–1.4).DiscussionCounseling on common colds should address patients’ discomfort and soothing measures in addition to providing information on the natural disease course.

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Assessment of impact of information booklets on use of healthcare services: randomised controlled trial Commentary: What's wrong with opting out? Commentary: Public opinion may force researchers to seek "opt in" consent for all

Cited by 30 publications

References 8 publications

User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom

User-Generated Online Health Content: A Survey of Internet Users in the United Kingdom

Understanding Parents’ Experiences and Information Needs on Pediatric Acute Otitis Media: A Qualitative Study

Self-care for common colds: A European multicenter survey on the role of subjective discomfort and knowledge about the self-limited course - The COCO study

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