Assessment of communicative competence in children with severe developmental disorders

Balkom, L.J.M. van; Deckers, Stijn; Stoep, J.M.G.M.

doi:10.1075/z.206.25van

Cited by 3 publications

(7 citation statements)

References 49 publications

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“…Every individual with PTHS should be directly assessed for level of communication and possible existing barriers to increase effective communication potential ( R35 ). Developmentally appropriate communication strategies, such as speech therapy and augmentative and alternative communication support should be considered . No studies specific for individuals with PTHS using these communication strategies are available.…”

Section: Cognition and Behaviormentioning

confidence: 99%

“…Physical and occupational therapy are recommended for development of motor coordination . Communication and language capacities should always be assessed and interpreted in light of these interwoven connections …”

Section: Cognition and Behaviormentioning

confidence: 99%

“…Developmentally appropriate communication strategies, such as speech therapy and augmentative and alternative communication support should be considered. 67,86 No studies specific for individuals with PTHS using these communication strategies are available.…”

Section: Language and Communicationmentioning

confidence: 99%

“…67 Communication and language capacities should always be assessed and interpreted in light of these interwoven connections. 78,86…”

Section: Language and Communicationmentioning

confidence: 99%

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Diagnosis and management in Pitt‐Hopkins syndrome: First international consensus statement

et al. 2019

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Pitt‐Hopkins syndrome (PTHS) is a neurodevelopmental disorder characterized by intellectual disability, specific facial features, and marked autonomic nervous system dysfunction, especially with disturbances of regulating respiration and intestinal mobility. It is caused by variants in the transcription factor TCF4. Heterogeneity in the clinical and molecular diagnostic criteria and care practices has prompted a group of international experts to establish guidelines for diagnostics and care. For issues, for which there was limited information available in international literature, we collaborated with national support groups and the participants of a syndrome specific international conference to obtain further information. Here, we discuss the resultant consensus, including the clinical definition of PTHS and a molecular diagnostic pathway. Recommendations for managing particular health problems such as dysregulated respiration are provided. We emphasize the need for integration of care for physical and behavioral issues. The recommendations as presented here will need to be evaluated for improvements to allow for continued optimization of diagnostics and care.

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Section: Cognition and Behaviormentioning

confidence: 99%

Section: Cognition and Behaviormentioning

confidence: 99%

Section: Language and Communicationmentioning

confidence: 99%

“…67 Communication and language capacities should always be assessed and interpreted in light of these interwoven connections. 78,86…”

Section: Language and Communicationmentioning

confidence: 99%

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Diagnosis and management in Pitt‐Hopkins syndrome: First international consensus statement

et al. 2019

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“…For example, looking-and-pointing behaviors, communication books, manual signs, speech-generating devices, and tables with pictograms. Given the wide array of possibilities in AAC and the need to match the needs and strengths of the child to the characteristics of AAC strategies and tools [ 15 ], it is a clinical challenge to disentangle various mechanisms that contribute to the language and communication problems that children with DS encounter, which makes this topic a relevant case for interprofessional collaboration and shared decision-making.…”

Section: Introductionmentioning

confidence: 99%

Insights into Shared Decision-Making in Interprofessional Teams for a Boy with Down Syndrome with Communication and Language Issues: Simulation-Based Training for Medical and Allied Health Students

Deckers,

van Zaalen

2024

Healthcare

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Background: Shared decision-making is one key element of interprofessional collaboration. Communication is often considered to be the main reason for inefficient or ineffective collaboration. Little is known about group dynamics in the process of shared decision-making in a team with professionals, including the patient or their parent. This study aimed to evaluate just that. Methods: Simulation-based training was provided for groups of medical and allied health profession students from universities across the globe. In an overt ethnographic research design, passive observations were made to ensure careful observations and accurate reporting. The training offered the context to directly experience the behaviors and interactions of a group of people. Results: Overall, 39 different goals were defined in different orders of prioritizing and with different time frames or intervention ideas. Shared decision-making was lacking, and groups chose to convince the parents when a conflict arose. Group dynamics made parents verbally agree with professionals, although their non-verbal communication was not in congruence with that. Conclusions: The outcome and goalsetting of an interprofessional meeting are highly influenced by group dynamics. The vision, structure, process, and results of the meeting are affected by multiple inter- or intrapersonal factors.

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A Narrative Review of the Sociotechnical Landscape and Potential of Computer-Assisted Dynamic Assessment for Children with Communication Support Needs

Norrie,

Deckers,

Radstaake

et al. 2024

MTI

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This paper presents a narrative review of the current practices in assessing learners’ cognitive abilities and the limitations of traditional intelligence tests in capturing a comprehensive understanding of a child’s learning potential. Referencing prior research, it explores the concept of dynamic assessment (DA) as a promising yet underutilised alternative that focuses on a child’s responsiveness to learning opportunities. The paper highlights the potential of novel technologies, in particular tangible user interfaces (TUIs), in integrating computational science with DA to improve the access and accuracy of assessment results, especially for children with communication support needs (CSN), as a catalyst for abetting critical communicative competencies. However, existing research in this area has mainly focused on the automated mediation of DA, neglecting the human element that is crucial for effective solutions in special education. A framework is proposed to address these issues, combining pedagogical and sociocultural elements alongside adaptive information technology solutions in an assessment system informed by user-centred design principles to fully support teachers/facilitators and learners with CSN within the special education ecosystem.

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Assessment of communicative competence in children with severe developmental disorders

Cited by 3 publications

References 49 publications

Diagnosis and management in Pitt‐Hopkins syndrome: First international consensus statement

Diagnosis and management in Pitt‐Hopkins syndrome: First international consensus statement

Insights into Shared Decision-Making in Interprofessional Teams for a Boy with Down Syndrome with Communication and Language Issues: Simulation-Based Training for Medical and Allied Health Students

A Narrative Review of the Sociotechnical Landscape and Potential of Computer-Assisted Dynamic Assessment for Children with Communication Support Needs

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