Assessment of caregivers' willingness to participate in an intervention research study

Murphy, Margaret; Escamilla, Monica; Blackwell, Paula H.; Lucke, Kathy T.; Miner-Williams, Denise; Shaw, Virginia S; Lewis, Sharon L.

doi:10.1002/nur.20186

Cited by 48 publications

(54 citation statements)

References 22 publications

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“…Several of the caregivers interviewed for this study identified a "window of recruitment opportunity"-that is, a specific time when participating in a caregiver educational program would be more relevant because of some kind of triggering event (eg, being newly diagnosed, an exacerbation of illness, or a hospitalization). This finding is similar to a finding by Murphy et al 21 that caregivers of people with dementia were willing to participate in a study at a time when they felt they needed the most help and were accepting of that help. Although timeliness may be an important factor for caregivers of people with a variety of diagnoses, triggering events vary depending on the nature and course of the particular diagnosis of the care recipients (eg, whether it is progressive, has exacerbations and "Maybe [include] quotes from other caregivers that have gone through [the study program], especially for things they have dealt with, like maybe anger level" (P3, 127-130).…”

Section: Recommendations To Improve the Recruitment Materialssupporting

confidence: 89%

“…20 Despite the success of many caregiver education programs, 15,17,18,20 one common problem has been recruiting participants for caregiver education research. 21 Researchers have used a variety of recruitment strategies including convenience sampling, open enrollment, and referral by professionals, but still frequently report encountering problems recruiting participants. 19,20 During a pilot study for an education and self-management program targeting caregivers of people with multiple sclerosis (MS), we experienced similar recruitment challenges despite having used a variety of recruitment strategies (eg, flyers distributed through MS support groups, in public places, and through health-care professionals; announcements in MS society newsletters and local newspapers and on local radio stations; and direct mailing to members of the local MS society).…”

Section: Consent Processmentioning

confidence: 99%

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Recruiting for Caregiver Education Research

Preissner¹,

Finlayson²,

Henkel³

2012

International Journal of MS Care

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Caregiver education programs can support participants in a role that is often challenging. Research is needed to determine the effectiveness of these programs; however, recruitment for such studies can be difficult. The objectives of this study were to explore 1) how multiple sclerosis (MS) caregivers respond to recruitment materials for a research study evaluating a caregiver education program, including aspects of the materials that encourage or discourage their interest in participation; and 2) what recommendations MS caregivers have for improving study recruitment advertising. Qualitative interviews were conducted with seven MS caregivers. Participants were asked about their reactions to advertisements for a pilot study intended to evaluate an MS caregiver education program. Participants were also asked to reflect on factors that would influence their decision to participate in the program and to provide suggestions to improve recruitment materials. Data were analyzed using a constant-comparative approach. Study findings indicated that the language and visual design of the advertisements influenced the participants' initial responses. Some caregivers first responded to the fact that the program was part of a research study, and these caregivers had overall negative responses to the advertising, such as concern that the program was being "tested." Other caregivers first considered the personal relevance of the program. These caregivers had neutral-to-positive responses to the flyers and weighed the relevance of the program against the research and logistical aspects. Participants provided recommendations to improve the recruitment materials. While recruiting for caregiver education research can be challenging, piloting recruitment materials and using a variety of advertising options may improve response. Int J MS Care. 2012;14:188-196.

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Section: Recommendations To Improve the Recruitment Materialssupporting

confidence: 89%

Section: Consent Processmentioning

confidence: 99%

Recruiting for Caregiver Education Research

Preissner¹,

Finlayson²,

Henkel³

2012

International Journal of MS Care

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“…were not surprisingly somewhat healthier [19] with respect to sleep disordered breathing with only 3/222 snoring regularly. As the OR was calculated to be high for a not snoring child of four to continue to be not snoring through childhood, we make the assumption that at twelve years, the prevalence of children snoring regularly would be slightly lower than that reported.…”

Section: Discussionmentioning

confidence: 94%

The development of sleep disordered breathing from 4 to 12 years and dental arch morphology

Hultcrantz

Tidestrom

2009

International Journal of Pediatric Otorhinolaryngology

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Objective: To track the development of sleep disordered breathing (SDB) as well as dentofacial morphology in cohort of children by having them complete a questionaire at ages 4, 6 and 12 . Clinical examination, sleep studies (at ages 4 and 12) and orthodontic evaluation were carried out on all who were reported to snore regularly and children who did not snore at all. Results: Out of the original group of 615 children, 64% (393) answered the inquiry on all three occasions. Of those, 27 snored regularly and 231 did not snore at all at the age of twelve.There were differences between those groups on all answers, especially prevalence of oral breathing: 78% versus 5% (p< 0.001). The prevalence of OSA decreased from 3.1% at the age of four to 0.8% at age 12 and the severity decreased from a mean AHI 14.8 at four to a mean AHI of 1.95 at age 12. The minimum prevalence of snoring regularly was estimated to 4.2% at 12 yrs compared to 5.3% at four, calculated for the original cohort of 644 children. The odds for a child who snored regularly at four or six years to be snoring regularly also at age 12 was 3.7 times greater than for a not snoring child in spite of surgery (OR 3.7, 95% CI 2.4-5.7). 63 children had undergone surgery due to snoring by age 12. 14 of them never snored and 17 snored regularly at the age 12. The dental arch was narrower in the children snoring regularly at four, six and 12 years compared to not snoring children. Cross-bites were more common among snoring children than among non snoring children, at four and six as well as at twelve. Conclusion: The prevalence of regular snoring is about the same from four to twelve years independent of surgery, but the prevalence of OSA decreased considerably. The children snoring regularly generally have a narrower maxilla compared to children not snoring. Surgery in young children is necessary but -cures‖ the snoring only temporary.

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“…Out of the 118 invited families 37 declined enrolment in the study, which is to be expected when the randomization is performed prior to the invitation to the study (28). Since the number of children who did not get enrolled was about the same for TE and TT, no extra analysis of them as a group was regarded as necessary.…”

Section: Not-s Examinationmentioning

confidence: 99%

“…Since the number of children who did not get enrolled was about the same for TE and TT, no extra analysis of them as a group was regarded as necessary. However, the proportion of children with oral motor disturbances might have been slightly higher among the participants than among the children who were not enrolled, reflecting a greater interest in the study for families experiencing the problems to be investigated (28).…”

Section: Not-s Examinationmentioning

confidence: 99%

Oral motor dysfunction in children with adenotonsillar hypertrophy—effects of surgery

Lundeborg

McAllister

Graf

et al. 2009

Logopedics Phoniatrics Vocology

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Full terms and conditions of use: http://www.informaworld.com/terms-and-conditions-of-access.pdf This article may be used for research, teaching and private study purposes. Any substantial or systematic reproduction, re-distribution, re-selling, loan or sub-licensing, systematic supply or distribution in any form to anyone is expressly forbidden.The publisher does not give any warranty express or implied or make any representation that the contents will be complete or accurate or up to date. The accuracy of any instructions, formulae and drug doses should be independently verified with primary sources. The publisher shall not be liable for any loss, actions, claims, proceedings, demand or costs or damages whatsoever or howsoever caused arising directly or indirectly in connection with or arising out of the use of this material. Department of Nursing Science, School of Health Sciences, Jönköping, SwedenAbstract Adenotonsillar hypertrophy is associated with a wide range of problems. The enlargement causes obstructive symptoms and affects different functions such as chewing, swallowing, articulation, and voice. The objective of this study was to assess oral motor function in children with adenotonsillar hypertrophy using Nordic Orofacial Test-Screening (NOT-S) before and 6 months after surgery consisting of adenoidectomy combined with total or partial tonsil removal. A total of 67 children were assigned to either tonsillectomy (n 033) or partial tonsillectomy, 'tonsillotomy' (n034); 76 controls were assessed with NOT-S and divided into a younger and older age group to match pre-and post-operated children. Most children in the study groups had oral motor problems prior to surgery including snoring, open mouth position, drooling, masticatory, and swallowing problems. Post-surgery oral motor function was equal to controls. Improvement was independent of surgery method.

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Assessment of caregivers' willingness to participate in an intervention research study

Cited by 48 publications

References 22 publications

Recruiting for Caregiver Education Research

Recruiting for Caregiver Education Research

The development of sleep disordered breathing from 4 to 12 years and dental arch morphology

Oral motor dysfunction in children with adenotonsillar hypertrophy—effects of surgery

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