Assessment of Caregiver Burden in Families of Persons with Multiple Sclerosis

Buhse, Marijean

doi:10.1097/01376517-200802000-00005

Cited by 152 publications

(141 citation statements)

References 22 publications

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“…One study found that caregiver resentment strongly predicted potentially harmful behavior (Shaffer et al, 2007), while a related study concluded that the caregiver feeling like a victim and blaming the person with disabilities were salient predictive variables . The unpredictable and progressive nature of MS puts particular strain on caregiver partners (Buhse, 2008), and may increase the risk of mistreatment.…”

Section: Factors Associated With Mistreatmentmentioning

confidence: 99%

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

Shapiro

Wiglesworth

Morrison³

2013

Multiple Sclerosis and Related Disorders

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Both female and male persons with MS are at increased risk for various forms of physical, sexual, and disability-specific abuse. An ongoing study revealed a subset of respondents in which the caregiver acknowledged mistreatment of the person with MS, but that person either denied or minimized mistreatment Methods:In an effort to understand this phenomenon, we conducted 4 focus groups of male caregivers, female caregivers, male persons with MS, and female persons with MS (total n =15). Data were analyzed using qualitative methodology Results: Results included the surprising finding that, despite participants having been identified as recipients or perpetrators of mistreatment, all denied any form of abuse in the focus group setting. We concluded that attitudes toward mistreatment in these discrepant couples varied based on gender. Specifically, male caregivers may disclose abuse as a cry for help, whereas female caregivers may feel such behavior is justified because of the perceived ''provocations'' of the person with MS. Women with MS appeared reluctant to acknowledge abuse because they feared loss of their primary relationship; while men with MS calculated that putting up with a certain amount of mistreatment was worthwhile Conclusion: More attention should be paid in identifying and understanding this subset of persons with MS and their informal caregivers.

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Section: Factors Associated With Mistreatmentmentioning

confidence: 99%

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

Shapiro

Wiglesworth

Morrison³

2013

Multiple Sclerosis and Related Disorders

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“…39 Depression was also positively associated with hours per week spent caregiving and total duration of caregiving, which is consistent with previous research, because those who have been in a caregiving role for longer are more likely to experience negative outcomes. 7,13,40 …”

Section: Relations Between Mental Health and Caregiver Demographic Chmentioning

confidence: 99%

“…6 In addition, MS caregivers have reported experiencing guilt, anger, resentment, and feelings of inadequacy. 13 Research has also shown that self-esteem is linked to various aspects of caregiver reactions (eg, control, challenge), specifically in the context of caring for an individual with MS. 11 MS caregiver mental health has been shown to be particularly reduced when patients' quality of life and overall health are low. 14,15 In addition to poorer mental health, MS caregivers have reduced health-related quality of life (HRQOL), sample size of 81 caregivers.…”

mentioning

confidence: 99%

“…[6][7][8][9][10][11][12] A variety of studies have shown the deleterious effects that caregiving can have on MS caregiver mental health. [9][10][11][12][13] One study, for example, found that of 35 MS caregivers from Greece, 22 met the clinical criteria for anxiety (5 mild and 17 moderate) and 12 were above the clinical threshold for depression (4 mild and 8 moderate). 6 In addition, MS caregivers have reported experiencing guilt, anger, resentment, and feelings of inadequacy.…”

mentioning

confidence: 99%

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Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico

Leibach¹,

Stern²,

Arelis³

et al. 2016

International Journal of MS Care

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“…This is connected with an increased disability and the necessity of greater involvement of family and friends of SM patients. It is often stated that providing care for patients with permanent deficits in their functional states has also negative impact on the caretakers in the form of burden and worsening their quality of life [34,35]. Understanding the essence of the disease, symptoms, possible side effects of the treatment for the caretakers are also important steps in preparing them for the role.…”

Section: Preparing Patients For Self-administration Of Medication In mentioning

confidence: 99%

Course of Care of a Multiple Sclerosis Patient in the Context of Pharmacotherapy

Smelkowska¹,

Wilkiewicz²,

Grabowska-Fudala³

et al. 2015

PNIN

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Multiple sclerosis (SM) is an incurable, advancing, demyelinating illness with inflammatory background. It constitutes the most frequent cause of disability among young people, between 20 and 40 years of age. Despite the identification of multiple factors causing the disease, its pathomechanism has not been yet completely discovered. For this reason, finding an effective cure for multiple sclerosis continues to present a challenge (for modern scientists). The currently available treatment for SM aims to halt its progress and to minimalize complications related to the disease. The goal of the work was to provide an overview of the therapies currently available to those suffering from SM. Selecting an appropriate form of treatment and medication as well as preparing the patient and continuation of monitoring during the therapy constitute important elements of conducting an effective SM therapy.

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Assessment of Caregiver Burden in Families of Persons with Multiple Sclerosis

Cited by 152 publications

References 22 publications

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

Views on disclosing mistreatment: A focus group study of differences between people with MS and their caregivers

Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico

Course of Care of a Multiple Sclerosis Patient in the Context of Pharmacotherapy

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