Assessment for home care: Negotiating solutions for individual needs

Olaison, Anna; Cedersund, Elisabet

doi:10.1016/j.jaging.2005.11.004

Cited by 40 publications

(39 citation statements)

References 28 publications

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“…The dynamic nature of caregiving has been captured by researchers who emphasize transitions (Bury, 1982;Hirst, 2005;Janlov, Halberg, & Petersson, 2006;Nolan et al, 2001;Olaison & Cedersund, 2006;Williams, 2000). Individuals move into and out of caregiving at different stages of the life course, and just as the person in need of care will be influenced by his or her life course stage, so too will the needs and experience of the family and informal caregiver be affected.…”

Section: Ethical Issues At Different Stages Of the Caregiving Careermentioning

confidence: 99%

“…So when someone' s increasing need moves him or her across a threshold, then, an exchange with health and allied care professionals is initiated. Although the implications of the process of assessment are underacknowledged, this is a significant moment in the lives of both the person in need and the family or informal caregiver (Hale et al, 2010;Janlov et al, 2006;Olaison & Cedersund, 2006;Richards, 2000). For informal caregivers, it is associated with the movement into a new social role and identity, that of caregiver.…”

Section: Separation: the Beginning Of Transitionmentioning

confidence: 99%

“…In these exchanges, the informal caregiver has a relative lack of power. Assessors are the gatekeepers of access to formal support and the information required to get that support (Olaison & Cedersund, 2006). Care plans that incorporate an assessment of what it is the family member can do are thus developed, and these assessments and plans both reflect and reinforce socially defined expectations of caregiving and might be thought of as providing a social script for carrying out informal caregiving.…”

Section: Separation: the Beginning Of Transitionmentioning

confidence: 99%

“…The experience of liminality, as Olaison and Cedersund (2006) suggest, is not only one of confusion, anxiety, and of searching for a way through bewildering new systems but also of learning to negotiate within these systems. There is an important stage of learning the game.…”

Section: Liminalitymentioning

confidence: 99%

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Ethical Issues in Family Care Today

Barrett¹,

Butler²,

Hale³

2016

Annu Rev Nurs Res

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The abstract consideration of ethical questions in family and informal caregiving might rightly be criticized for ignoring the lived experience of people. This chapter seeks to avoid such oversight by reflecting on ethical issues in family care in a way that is based on careful social scientific inquiry into the well-being of caregivers. The chapter draws on our research and experience in working with family caregivers, both professionally and personally. We step back from a practical concern with policies to support the well-being of caregivers to consider ethical issues associated with their typically hidden role. The chapter begins by noting the growing reliance on family care today. It proceeds to outline the dynamic experience of moving into and out of the caregiver role, before discussing key ethical issues associated with family care. Many of these stem from the risk that caregivers can come to share in the reduced circumstances and vulnerability of those for whom they care. Critical ethical issues are related to the typically "unboundaried" responsibility of family caregivers for the well-being of the cared-for person, something that can be contrasted with the more boundaried and intermittent responsibility of formal caregivers. Additionally, all too often, family caregivers encounter situations where their responsibilities exceed their capacities, but where a choice to not provide care will result in harm to the cared-for person. In discussing these issues, this chapter seeks to make the case for developing more responsive forms of support that promote positive benefits for both caregivers and care recipients.

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Section: Ethical Issues At Different Stages Of the Caregiving Careermentioning

confidence: 99%

Section: Separation: the Beginning Of Transitionmentioning

confidence: 99%

Section: Separation: the Beginning Of Transitionmentioning

confidence: 99%

Section: Liminalitymentioning

confidence: 99%

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Ethical Issues in Family Care Today

Barrett¹,

Butler²,

Hale³

2016

Annu Rev Nurs Res

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“…Street-level bureaucrats are highly influential in the provision of social services since their knowledge and attitude towards the target group affect their way of handling specific situations (Brodkin, 2015;Maynard-Moody & Musheno, 2000) and their routines and practices (Nedlund, 2012) will influence the policy area of social services. Assessments on social services are also a negotiation between citizens and care managers (Scourfield, 2015;Olaison & Cedersund, 2006) and how this negotiation plays out will likewise affect the substantive rights of the citizens. Accordingly, citizens need to be able to be active agents, both in forming policies as well as in the meetings with the welfare system, in order to be able to assert power over their own everyday situation.…”

Section: Formulation Of a Problem: People With Dementia Encountering mentioning

confidence: 99%

Social citizenship and people with dementia : Designing social care policies in Sweden

Nordh¹

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iii ABSTRACTPeople with dementia are commonly in need of some form of social care from the social services in order to manage their everyday situations. However, social services are shaped by the construction of policy targets, i.e. the construction of people with dementia as citizens. The aim of this dissertation is to explore the social citizenship of people with dementia. Social citizenship for people with dementia is explored by studying how people with dementia have, in policy documents, been constructed as a target group, and also by studying how policies are enacted in practice by care managers, in their work and in their meetings with people with dementia. This is illustrated by studying policy documents from national level which range over nearly 40 years. It is shown that, if and when people with dementia are visible in policy documents, they commonly have a negative construction based on their cognitive and communicative abilities, and they are constructed as a burden, disturbing and incapable, wherein focus lies in their negative attributes. We further investigate in this dissertation, how street-level bureaucrats, in this case care managers, experience meeting with people with dementia when they apply for social services. This part of the dissertation is built upon 19 interviews with care managers from four different organisations, which show that care managers experience difficulties in their meetings with people with dementia. These difficulties comprise the exchange of information between care managers and people with dementia, refusal of social services by the person with dementia, the influence of relatives and other professions as well as moral dilemmas, such as the relations between the person with dementia and their relatives. The study also shows that care managers have little support from policies, e.g. legislation and guidelines, in how to handle these dilemmas, and must thus create their own local ways of handling these situations. This requires that care managers are influential policy actors concerning the policy target group of people with dementia.The policy processes which this dissertation illustrates, affect the social citizenship of people with dementia. It is shown that they, to an extent, have difficulties in influencing their own everyday situation concerning social services. Finally, the policy processes, such as the construction of people with dementia as well as the policy practice in which they encounter care managers, will affect their possibility to influence their social citizenship.Keywords: Social citizenship, people with dementia, policy, policy practice, policy actors, street-level bureaucrats, social work, care managers, rights Abstract iv Personer med demenssjukdom behöver vanligtvis någon form av socialt stöd från socialtjänsten för att kunna hantera sin egen vardag. Emellertid så är socialt stöd format av konstruktionen av policymålgrupper, dvs konstruktionen av personer med demenssjukdom som medborgare. Syftet med denna avhandling är att undersöka det ...

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Discourse and Aging

and¹,

Hamaguchi²

2015

The Handbook of Discourse Analysis

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Assessment for home care: Negotiating solutions for individual needs

Cited by 40 publications

References 28 publications

Ethical Issues in Family Care Today

Ethical Issues in Family Care Today

Social citizenship and people with dementia : Designing social care policies in Sweden

Discourse and Aging

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