Assessing the reliability of epidemiologic data obtained from medical records

Horwitz, Ralph I.; Yu, Eunice

doi:10.1016/0021-9681(84)90015-8

Cited by 67 publications

(47 citation statements)

References 3 publications

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“…This report suggests that the data abstracted by these clerks generally showed a high level of agreement with data independently abstracted from hospital records for another study. This finding confirms observations on the reliability of abstraction of data made in the United States (Horwitz & Yu, 1984). In particular it was reassuring that the dates of initial treatment and death, which may be used in analysis of patient survival, appeared to be reliably recorded in the cancer registry records for the majority of cases.…”

Section: Discussionsupporting

confidence: 81%

The reliability of Cancer Registry records

Gulliford

Bell²,

Bourne³

et al. 1993

Br J Cancer

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SummaryData from the Thames Cancer Registry were compared with data independently abstracted from medical records for 466 patients with confirmed cancer of the bladder diagnosed in 1982. High levels of agreement were observed for five continuous variables and for tumour morphology. Data England is one of a small number of countries with a national system of population based cancer registries (Waterhouse et al., 1982). The data collected are published at national level (Office of Population Censuses and Surveys, 1985) and provide information concerning the incidence and duration of survival with cancer (Cancer Research Campaign, 1982). Cancer registry data also have uses in epidemiological research and health service planning (Office of Population Censuses and Surveys, 1990), their value as a starting point for auditing the effectiveness of cancer treatment has also been emphasised (Gillis et al., 1991). As cancer registry data may be put to a number of practical uses it is important to evaluate their quality. The completeness with which cases are ascertained by registries has been investigated in several studies (Nwene & Smith, 1982 ResultsThe selection of cases has been reported previously (Gulliford et al., 1991a;Gulliford et al., 1991b

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Section: Discussionsupporting

confidence: 81%

The reliability of Cancer Registry records

Gulliford

Bell²,

Bourne³

et al. 1993

Br J Cancer

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“…Given that static epidemiologic data extracted from patient charts often only attain moderate agreement among graders, we believe our preliminary reliability to be promising. 18,19 Furthermore, our findings reflect the initial experience using this scale. Such efforts at creating and applying grading scales are likely to improve with experience; for example, precision and reliability of the Gleason scoring system, used routinely by pathologists to characterize the aggressive potential of prostate cancer, have been shown to improve over time with training and exposure.…”

Section: Limitationssupporting

confidence: 66%

Endoscopic Evidence That Randall's Plaque is Associated with Surface Erosion of the Renal Papilla

Cohen

Borofsky

Anderson

et al. 2017

Journal of Endourology

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Objective: This study was conducted to assess the reliability and precision of an endoscopic grading scale to identify renal papillary abnormalities across a spectrum of equipment, locations, graders, and patients. Materials and Methods: Intra-and interobserver reliability of the papillary grading system was assessed using weighted kappa scoring among 4 graders reviewing a single renal papilla from 50 separate patients on 2 occasions. Grading was then applied to a cohort of patients undergoing endoscopic stone removal procedures at two centers. Patient factors were compared with papillary scores on the level of the papilla, kidney, and patient. Results: Graders achieved substantial (kappa >0.6) intra-and inter-rater reliability in scored domains of ductal plugging, surface pitting, and loss of contour. Agreement for Randall's Plaque (RP) was moderate. Papillary scoring was then performed for 76 patients (89 kidneys, 533 papillae). A significant association was discovered between pitting and RP that held both within and across institutions. A general linear model was then created to further assess this association and it was found that RP score was a highly significant independent correlate of pitting score (F = 7.1; p < 0.001). Mean pitting scores increased smoothly and progressively with increasing RP scores. Sums of the scored domains were then calculated as a reflection of gross papillary abnormality. When analyzed in this way, a history of stone recurrence and shockwave lithotripsy were strongly predictive of higher sums. Conclusions: Renal papillary pathology can be reliably assessed between different providers using a newly described endoscopic grading scale. Application of this scale to stone-forming patients suggests that the degree of RP appreciated in the papilla is strongly associated with the presence of pitting. It also suggests that patients with a history of recurrent stones and lithotripsy have greater burdens of gross papillary disease.

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“…Details on the strategy and implementation of documenting cancer-screening procedures were scant, and determining the intensity of documentation was generally not possible. The quality of the sources and strategies used to document survey answers might influence conclusions about self-report accuracy in this meta-analysis (67)(68)(69). In particular, we thought that studies with a more rigorous documentation strategy would yield higher (and more accurate) specificity and positive predictive value estimates; however, there was little evidence to suggest that this was true.…”

Section: Discussionmentioning

confidence: 99%

Accuracy of Self-Reported Cancer-Screening Histories: A Meta-analysis

Rauscher

Johnson

Cho

et al. 2008

Cancer Epidemiology, Biomarkers &Amp; Prevention

440

395

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Background: Survey data used to study trends in cancer screening may overestimate screening utilization while potentially underestimating existing disparities in use. Methods: We did a literature review and meta-analysis of validation studies examining the accuracy of selfreported cancer-screening histories. We calculated summary random-effects estimates for sensitivity and specificity, separately for mammography, clinical breast exam (CBE), Pap smear, prostate-specific antigen testing (PSA), digital rectal exam, fecal occult blood testing, and colorectal endoscopy.

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Assessing the reliability of epidemiologic data obtained from medical records

Cited by 67 publications

References 3 publications

The reliability of Cancer Registry records

The reliability of Cancer Registry records

Endoscopic Evidence That Randall's Plaque is Associated with Surface Erosion of the Renal Papilla

Accuracy of Self-Reported Cancer-Screening Histories: A Meta-analysis

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