Assessing the quality of support and discovering sources of resilience during COVID-19 measures in people with intellectual disabilities by professional carers

Scheffers, Femke; Moonen, Xavier; Vugt, Eveline van

doi:10.1016/j.ridd.2021.103889

Cited by 36 publications

(45 citation statements)

References 34 publications

(55 reference statements)

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“…It is important that the feelings, experiences, awareness and the unique concerns of people with intellectual disability and their families should be prioritised and not overlooked, forgotten or neglected [55,56]. Furthermore, research is needed on strategies of improving the health protection measures for people with intellectual disability during the outbreak [57] and identify resilience measures [58].…”

Section: Discussionmentioning

confidence: 99%

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Doody

Keenan

2021

Annals of Medicine

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Background: People with an intellectual disability are a vulnerable group during COVID-19 due to multi-morbidity, frailty, underlying conditions/health problems, social circumstances and limitations in understanding. This place them at greater risk of more severe outcomes from COVID-19. Objective: To chart the evidence of the effects of the COVID-19 pandemic on people with intellectual disability and their carers reported in the research. Methods: A scoping review method was used to review literature published across eight databases in 2020 and included manual searches of reference lists of included articles. Results: Sixteen studies were selected for inclusion. The findings highlight that professionals, people with intellectual disability and their carers were keen to comply with pandemic related public health guidance. However, implementing infection prevention and control measures in certain contexts for people with intellectual disability was challenging. Thereby a rights-based, person-centred approach to care is essential and professionals need to extend their understanding and practice of collaborative working to include people with intellectual disability and their family/carers. The findings highlight that compliance with public health guidance and infection control measures can be difficult for people with intellectual disability to implement. Conclusions: There is limited good quality robust research on COVID-19 and people with intellectual disability and/or their carers experiences.

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Section: Discussionmentioning

confidence: 99%

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

Doody

Keenan

2021

Annals of Medicine

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“… 26 Not only do PWIDD have less control over their lives than ever before, they have also seen their services and routines disrupted, decreased quality of support, and a rotating door of support staff, if they were lucky enough to not lose support altogether. 5 , 7 , 12 , 22 , 24 , 27 …”

Section: Discussionmentioning

confidence: 99%

“…People with intellectual and developmental disabilities (PWIDD) are contracting and dying of COVID-19 at significantly greater rates than nondisabled people and people with other disabilities. 1 , 2 , 3 , 4 , 5 While intellectual and developmental disabilities (IDD) themselves puts people at more risk, PWIDD are also more likely to have co-morbidities that increase their risk for contracting and dying of COVID-19. 1 Many PWIDD also experience greater risks because they live in congregate settings where they not only live with many other people, but also may not be able to isolate because of the presence of housemates, the need for personal care, and/or a rotation of support staff coming into the house.…”

mentioning

confidence: 99%

“…Like all people, 11 many PWIDD are more stressed, isolated, and traumatized from the pandemic. 5 , 12 , 13 Yet, PWIDD also face unique challenges as a result of the pandemic compared to other populations. For example, COVID-19 has radically disrupted Home- and Community-Based Services (HCBS) service provision, 7 which most PWIDD rely on for their health, safety, and quality of life (QOL).…”

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confidence: 99%

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The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities

Friedman

2021

Disability and Health Journal

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Background People with intellectual and developmental disabilities (PWIDD) are contracting and dying of COVID-19 at significantly greater rates than nondisabled people and people with other disabilities. Despite the increased risk of COVID-19 for the IDD community, there has been less attention drawn to the impact of the pandemic on people with IDD, especially beyond their health and safety. Yet, PWIDD also face unique challenges as a result of the pandemic compared to other populations. Objective The purpose of this study was to explore the impact of the COVID-19 pandemic on the quality of life outcomes of PWIDD. Methods We conducted a secondary analysis of Personal Outcome Measures® interviews from 2019 to 2020 ( n = 2284). Results There were significant differences in the following quality of life outcomes of PWIDD between 2019 and 2020: continuity and security; interact with other members of the community; participate in the life of the community; intimate relationships; and, choose goals. Conclusions Our findings suggest the COVID-19 pandemic has negatively hindered the quality of life outcomes of PWIDD in a number of different areas. While the pandemic has been undoubtably hard on the IDD community, in many ways it has simply intensified an underfunded and fractured IDD service system. However the IDD service system evolves during and after the pandemic, it must be done in a way that prioritizes the quality of life of PWIDD and what is most important to them.

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“…Multiple studies have been published, showing the demanding situation for people with ID and people caring for them. Factors that are repeatedly mentioned in these studies are stress, stress-related symptoms, and anxiety due to the fear of contracting the coronavirus as well as a response to changes in daily routines ( Buono et al., 2021 ; Courtenay & Perera, 2020 ; Scheffers, Moonen, & van Vugt, 2021 ). As a matter of fact, people with ID are at higher risk for contracting Covid-19 due to physical health problems and difficulties in understanding the underlying reasons for guidelines ( Courtenay & Perera, 2020 ).…”

Section: Introductionmentioning

confidence: 99%

Deaf Residents With Intellectual Disabilities During the First Covid-19 Associated Lockdown

Salzner

Dall

Weber

et al. 2021

The Journal of Deaf Studies and Deaf Education

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Two indicators for stress (mood and aggressive behavior) were evaluated in order to investigate the effect of the restrictions taken against the spread of the coronavirus on people who are deaf and hard of hearing (DHH) and have intellectual disabilities (ID). In three therapeutic living communities, specifically designed for the visual communication needs of people who are DHH and have ID, the mood of the residents is routinely assessed by staff members and every aggressive incident is recorded with the Staff Observation of Aggressions Scale-Revised (SOAS-R). For the 38 residents who were present 8 weeks before the first lockdown (t1) and the following 8 weeks (t2), mood ratings and ratings of aggressive behavior were compared between the two time periods. In contrast to our hypothesis the mood ratings of the residents had a slight significant improvement, whereas the incidents and severity of aggressive behavior did not change significantly. These results suggest that with proper communicative support, individuals who are DHH and have ID can cope effectively with significant restrictions imposed by a pandemic-caused lockdown.

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Assessing the quality of support and discovering sources of resilience during COVID-19 measures in people with intellectual disabilities by professional carers

Cited by 36 publications

References 34 publications

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review

The COVID-19 pandemic and quality of life outcomes of people with intellectual and developmental disabilities

Deaf Residents With Intellectual Disabilities During the First Covid-19 Associated Lockdown

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