Assessing the quality of health research from an Indigenous perspective: the Aboriginal and Torres Strait Islander quality appraisal tool

Harfield, Stephen; Pearson, Odette; Morey, Kim; Kite, Elaine; Canuto, Karla; Glover, Karen; Gomersall, Judith Streak; Carter, Drew; Davy, Carol; Aromataris, Edoardo; Braunack-Mayer, Annette

doi:10.1186/s12874-020-00959-3

Cited by 178 publications

(272 citation statements)

References 9 publications

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“…1 2 This has led Indigenous communities around the world to call for more ethical processes in the conduct of research and evaluation. [1][2][3][4] In Australia, national documents guiding research with Aboriginal and Torres Strait Islander people (Aboriginal and Torres Strait Islander peoples are hereafter referred to respectfully as Indigenous Australians, acknowledging cultural and historical diversity) specify that all research must be underpinned by values and principles that are important to, and defined by Indigenous people. 5 6 Despite this, the available literature provides limited critical reflection and evaluation of how such research principles are meaningfully implemented.…”

Section: Introductionmentioning

confidence: 99%

Principles guiding ethical research in a collaboration to strengthen Indigenous primary healthcare in Australia: learning from experience

et al. 2021

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IntroductionIndigenous communities worldwide are leading calls for all research involving Indigenous people to be underpinned by values and principles articulated by them. Many researchers are explicitly adopting these principles to guide what, where, how and when research is undertaken with Indigenous people. With critical reflection to support the implementation of such principles largely absent from published literature, this paper explores both the implementation of, and the outcomes from a set of guiding principles used in a large-scale Australian research collaboration to improve Indigenous health.MethodsIn this inductive qualitative study, we adopted a principles-focused evaluation approach. Based on interviews with 35 actors in the collaboration and a review of project documents, we generated themes that were then iteratively discussed, refined and categorised into (1) ‘strategies’—activities by which implementation of our guiding principles were recognised; (2) ‘outcomes’—results seen from implementing the principles and (3) ‘conditions’—aspects of the context that facilitated and constrained implementation of the principles.ResultsRespondents found it difficult to articulate how the guiding principles were actually implemented, and frequently referred to them as part of the fabric of the collaboration. They viewed the set of principles as mutually reinforcing, and as providing a rudder for navigating complexity and conflict. Implementation of the principles occurred through five strategies—honouring the principles; being dynamic and adaptable; sharing and dispersing leadership; collaborating purposefully and adopting a culture of mutual learning. Outcomes included increased Indigenous leadership and participation; the ability to attract principled and values-driven researchers and stakeholders, and the development of trusting and respectful relationships. The conditions that facilitated the implementation of the principles were collaborating over time; an increasing number of Indigenous researchers and taking an ‘innovation platform’ approach.ConclusionOur findings show that principles guiding collaborations are valuable in providing a focus, direction and a way of working together when they are collaboratively developed, hold genuine meaning for all members and are implemented within a culture of continuous critical reflection, learning and adaptation, with ongoing reinterpretation of the principles over time.

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Section: Introductionmentioning

confidence: 99%

Principles guiding ethical research in a collaboration to strengthen Indigenous primary healthcare in Australia: learning from experience

et al. 2021

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“…These factors are complex and were not discussed in detail in the studies included in this review, but they must be addressed to improve nutrition in these communities. Further, when designing future initiatives in an indigenous community context, researchers and health promotion practitioners should recognise and consider using culturally safe, respectful and appropriate quality appraisal tools to guide research design and implementation 51 …”

Section: Discussionmentioning

confidence: 99%

Beyond the black stump: rapid reviews of health research issues affecting regional, rural and remote Australia

Osborne¹,

Piper²,

Alston³

et al. 2020

Medical Journal of Australia

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Chapter 1: Retail initiatives to improve the healthiness of food environments in rural, regional and remote communities Objective: To synthesise the evidence for effectiveness of initiatives aimed at improving food retail environments and consumer dietary behaviour in rural, regional and remote populations in Australia and comparable countries, and to discuss the implications for future food environment initiatives for rural, regional and remote areas of Australia. Study design: Rapid review of articles published between January 2000 and May 2020. Data sources: We searched MEDLINE (EBSCOhost), Health and Society Database (Informit) and Rural and Remote Health Database (Informit), and included studies undertaken in rural food environment settings in Australia and other countries. Data synthesis: Twenty‐one articles met the inclusion criteria, including five conducted in Australia. Four of the Australian studies were conducted in very remote populations and in grocery stores, and one was conducted in regional Australia. All of the overseas studies were conducted in rural North America. All of them revealed a positive influence on food environment or consumer behaviour, and all were conducted in disadvantaged, rural communities. Positive outcomes were consistently revealed by studies of initiatives that focused on promotion and awareness of healthy foods and included co‐design to generate community ownership and branding. Conclusion: Initiatives aimed at improving rural food retail environments were effective and, when implemented in different rural settings, may encourage improvements in population diets. The paucity of studies over the past 20 years in Australia shows a need for more research into effective food retail environment initiatives, modelled on examples from overseas, with studies needed across all levels of remoteness in Australia. Several retail initiatives that were undertaken in rural North America could be replicated in rural Australia and could underpin future research. Chapter 2: Which interventions best support the health and wellbeing needs of rural populations experiencing natural disasters? Objective: To explore and evaluate health and social care interventions delivered to rural and remote communities experiencing natural disasters in Australia and other high income countries. Study design: We used systematic rapid review methods. First we identified a test set of citations and generated a frequency table of Medical Subject Headings (MeSH) to index articles. Then we used combinations of MeSH terms and keywords to search the MEDLINE (Ovid) database, and screened the titles and abstracts of the retrieved references. Data sources: We identified 1438 articles via database searches, and a further 62 articles via hand searching of key journals and reference lists. We also found four relevant grey literature resources. After removing duplicates and undertaking two stages of screening, we included 28 studies in a synthesis of qualitative evidence. Data synthesis: Four of us read and assesse...

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“…It requires an active engagement of those whose lives are impacted by the issue being researched in each stage of the study [ 33 ]. The study methods follow both the Consolidated Criteria for Reporting Qualitative Research (COREQ) [ 34 ] and Aboriginal and Torres Strait Islander Quality Appraisal Tool [ 35 ] reporting criteria.…”

Section: Methodsmentioning

confidence: 99%

Older Aboriginal Australians’ Health Concerns and Preferences for Healthy Ageing Programs

Wettasinghe

Allan

Garvey

et al. 2020

IJERPH

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While there is strong evidence of the need for healthy ageing programs for older Aboriginal Australians, few are available. It is important to understand older Aboriginal Australians’ perspectives on healthy ageing in order to co-design culturally-appropriate programs, including views on technology use in this context. Semi-structured interviews were conducted with 34 Aboriginal Australians aged 50 years and older from regional and urban communities to explore participants’ health concerns, preferences for healthy ageing programs, and receptiveness to technology. Qualitative data were analyzed using a grounded theory approach. This study found that older Aboriginal Australians are concerned about chronic health conditions, social and emotional well-being, and difficulties accessing health services. A range of barriers and enablers to participation in current health programs were identified. From the perspective of older Aboriginal people, a successful healthy ageing program model includes physical and cognitive activities, social interaction, and health education. The program model also provides culturally safe care and transport for access as well as family, community, cultural identity, and empowerment regarding ageing well as central tenets. Technology could also be a viable approach for program delivery. These findings can be applied in the implementation and evaluation of culturally-appropriate, healthy ageing programs with older Aboriginal people.

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Assessing the quality of health research from an Indigenous perspective: the Aboriginal and Torres Strait Islander quality appraisal tool

Cited by 178 publications

References 9 publications

Principles guiding ethical research in a collaboration to strengthen Indigenous primary healthcare in Australia: learning from experience

Principles guiding ethical research in a collaboration to strengthen Indigenous primary healthcare in Australia: learning from experience

Beyond the black stump: rapid reviews of health research issues affecting regional, rural and remote Australia

Older Aboriginal Australians’ Health Concerns and Preferences for Healthy Ageing Programs

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