Assessing the Quality and Suitability of Multimedia Resources to Assist Patients With Patient Portal Use

Oramasionwu, Christine U.; Vitko, Michelle; Johnson, Terence L.; Sage, Adam; Chung, Arlene E.; Bailey, Stacy Cooper

doi:10.1177/1062860616667212

Cited by 3 publications

(3 citation statements)

References 9 publications

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“…Healthcare providers will also need to establish specific training activities so that health care professionals can learn how to work with the portal [11]. Finally, for successful implementation, PWPs should be supported by technicians who can help with technical problems [14,44].…”

Section: Discussionmentioning

confidence: 99%

“…Some research has shown the benefits of PWPs on disease status, patient satisfaction, or self-management, whereas others have shown no change in these parameters. Unfortunately, service accessibility varies significantly from easy to difficult [14]. One systematic review showed that self-management, communication [15], or medication adherence improved in some studies, but that there was no significant change in other studies [16,17].…”

Section: Introductionmentioning

confidence: 99%

“…When building a PWP, developers must take these difficulties into account [38-42]. A PWP should be accessible, understandable, and easy to use [39], especially for older adults [38] and patients with little or no internet experience [14]. Moreover, organizational commitment is needed to ensure successful implementation [9,43,44], focusing on training health care professionals in the proper use of the PWP [15].…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Assessing the Needs and Perspectives of Patients With Asthma and Chronic Obstructive Pulmonary Disease on Patient Web Portals: Focus Group Study

Metting¹,

Schrage²,

Kocks³

et al. 2018

JMIR Formativ Res

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BackgroundAs accessibility to the internet has increased in society, many health care organizations have developed patient Web portals (PWPs), which can provide a range of self-management options to improve patient access. However, the available evidence suggests that they are used inefficiently and do not benefit patients with low health literacy. Asthma and chronic obstructive pulmonary disease (COPD) are common chronic diseases that require ongoing self-management. Moreover, patients with COPD are typically older and have lower health literacy.ObjectiveThis study aimed to obtain and present an overview of patients’ perspectives of PWPs to facilitate the development of a portal that better meets the needs of patients with asthma and COPD.MethodsWe performed a focus group study using semistructured interviews in 3 patient groups from the north of the Netherlands who were recruited through the Dutch Lung Foundation. Each group met 3 times for 2 hours each at a 1-week interval. Data were analyzed with coding software, and patient descriptors were analyzed with nonparametric tests. The consolidated criteria for reporting qualitative research were followed when conducting the study.ResultsWe included 29 patients (16/29, 55% male; mean age 65 [SD 10] years) with COPD (n=14), asthma-COPD overlap (n=4), asthma (n=10), or other respiratory disease (n=1). There was a large variation in the internet experience; some patients hardly used the internet (4/29, 14%), whereas others used internet >3 times a week (23/29, 79%). In general, patients were positive about having access to a PWP, considering access to personal medical records as the most important option, though only after discussion with their physician. A medication overview was considered a useful option. We found that communication between health care professionals could be improved if patients could use the PWP to share information with their health care professionals. However, as participants were worried about the language and usability of portals, it was recommended that language should be adapted to the patient level. Another concern was that disease monitoring through Web-based questionnaire use would only be useful if the results were discussed with health care professionals.ConclusionsParticipants were positive about PWPs and considered them a logical step. Today, most patients tend to be better educated and have internet access, while also being more assertive and better informed about their disease. A PWP could support these patients. Our participants also provided practical suggestions for implementation in current and future PWP developments. The next step will be to develop a portal based on these recommendations and assess whether it meets the needs of patients and health care providers.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Assessing the Needs and Perspectives of Patients With Asthma and Chronic Obstructive Pulmonary Disease on Patient Web Portals: Focus Group Study

Metting¹,

Schrage²,

Kocks³

et al. 2018

JMIR Formativ Res

View full text Add to dashboard Cite

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Exploring the impact of patient-centered and online communication on cancer screening: A call for equitable health solutions

Zhang

2024

Patient Education and Counseling

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Research participation preferences as expressed through a patient portal: implications of demographic characteristics

et al. 2018

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ObjectiveAs patient portals are increasingly used for research recruitment, it is important to examine the demographic makeup of research registries that are populated via portals and the factors that influence participation in these registries.MethodsWe examined the response to a routine research preference questionnaire among patients who were enrolled in a patient portal at an academic health center and characterized the sub-population that responded and was tracked in a research preferences registry. We examined the factors that influence choices in two research preferences: future contact for research opportunities and biobanking of de-identified specimens.ResultsOut of 79 834 patients to whom the questionnaire was sent, 32% responded. Of those 74% agreed to future contact and 77% to the biobank preference. We found significantly lower odds of agreement in both preferences in minority populations, especially in the population >65 years of age when stratified by race. Individuals with higher comorbidity indexes had significantly higher odds for agreement.DiscussionThe disparities in volunteerism as expressed by agreement to future contact and willingness to participate in biobanking are exacerbated by lower levels of enrollment in the patient portal by minorities, especially in the oldest age group. Future work should examine other socioeconomic factors and the differences across age groups, sicker individuals, and payer categories.ConclusionAlthough patient portals can be more efficient for recruitment, researchers have to be cognizant of, and proactively address, potential biases when recruiting participants from these registries.

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Assessing the Quality and Suitability of Multimedia Resources to Assist Patients With Patient Portal Use

Cited by 3 publications

References 9 publications

Assessing the Needs and Perspectives of Patients With Asthma and Chronic Obstructive Pulmonary Disease on Patient Web Portals: Focus Group Study

Assessing the Needs and Perspectives of Patients With Asthma and Chronic Obstructive Pulmonary Disease on Patient Web Portals: Focus Group Study

Exploring the impact of patient-centered and online communication on cancer screening: A call for equitable health solutions

Research participation preferences as expressed through a patient portal: implications of demographic characteristics

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