Assessing the perceived impact of diabetes on quality of life: Psychometric validation of the DAWN2 Impact of Diabetes Profile in the second Diabetes MILES – Australia (MILES-2) survey

Holmes‐Truscott, Elizabeth; Skovlund, Søren E.; Hendrieckx, Christel; Pouwer, Frans; Peyrot, Mark

doi:10.1016/j.diabres.2019.03.020

Cited by 33 publications

(40 citation statements)

References 33 publications

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“…However, the prioritization of brevity may be at the cost of comprehensiveness and specificity. For example, the DIDP does not assess life domains shown to be compromised among adults with diabetes, and responsive to intervention, such as dietary freedom or independence [26].…”

Section: Second Generation Measures Of Diabetes-specific Quality Of Lifementioning

confidence: 99%

“…In contrast to the >40‐item ADDQoL and DSQOLS, the DIDP measures the perceived impact of diabetes with six items: physical health; emotional health; financial situation; leisure; work; and family/social life . Known‐groups validity has been demonstrated for diabetes type, treatment type, and absence/presence of complications and severe hypoglycaemia , while responsiveness (sensitivity to change) is yet to be determined. The DIDP has been used to quantify and benchmark the impact of diabetes on people's lives across different life stages, types of diabetes and cultures, in 17 countries .…”

Section: What Has the Past 25 Years Of Research Shown?mentioning

confidence: 99%

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Assessing the impact of diabetes on quality of life: what have the past 25 years taught us?

et al. 2020

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Over the past 25 years, there has been significant acknowledgement of the importance of assessing the impact of diabetes on quality of life. Yet, despite the development of several diabetes‐specific quality of life measures, the challenges we faced in 1995 remain. There is little consensus on the definition of quality of life because of the complexity and subjectivity of the concept. General quality of life comprises several domains of life, and these are highly individualized. Assessing the impact of diabetes on these life domains adds to the complexity. While comprehensive diabetes‐specific quality‐of‐life measures typically increase respondent burden, brief questionnaires may not capture all relevant/important domains. Today, the lack of resolution of these challenges may explain why the impact of diabetes on quality of life is not systematically assessed in research or clinical care. Few researchers report detailed rationales for assessment, there is often a mismatch between the concept of interest and the measure selected, and data are misinterpreted as assessing the impact of diabetes on quality of life when, in reality, related but distinct constructs have been assessed, such as diabetes distress, treatment satisfaction or health status. While significant efforts are being made to increase routine monitoring of psychological well‐being and understand the lived experience, no guidelines currently recommend routine clinical assessment of diabetes‐specific quality of life, and there is no consensus on which questionnaire(s) to use. The gaps identified in this review need urgent attention, starting with recognition that assessment of diabetes‐specific quality of life is as important as biomedical markers, if we are to improve the lives of people with diabetes.

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Section: Second Generation Measures Of Diabetes-specific Quality Of Lifementioning

confidence: 99%

Section: What Has the Past 25 Years Of Research Shown?mentioning

confidence: 99%

Assessing the impact of diabetes on quality of life: what have the past 25 years taught us?

et al. 2020

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“…The oldest scale retrieved is from 1988 (Diabetes Quality of Life [31]), while the most recent are from 2017 [28,35,42] and 2019 [29]. On average, identified measures have 37 items with a high variability, ranging between the 7-items Appraisal of Diabetes Scale [43] and the 234-items Diabetes Care Profile [44].…”

Section: Bibliometrics and Structurementioning

confidence: 99%

Measuring the Quality of Life in Diabetic Patients: A Scoping Review

Palamenghi

Carlucci

Graffigna

2020

Journal of Diabetes Research

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Background. Diabetes mellitus is a widely diffused chronic condition which impacts on several aspects of patients’ lives. In the current clinical practice, the implementation in the clinical routine of monitoring systems of patients’ outcomes has led to an increased generation and use of several measures for the assessment of patients’ quality of life (QOL). Nevertheless, this construct appears to be particularly complex, and its operationalization is variable across different measures. The purpose of this paper is to offer an updated review of the diabetes-specific QOL measures present in scientific literature with a specific focus on the broad domains assessed. Methods. A scoping review was carried out with the purpose of identifying the existing measures in literature and describing their implicit representation of QOL in diabetes care. Five different databases (Scopus; Web of Science Core Collection; Medline; PsycInfo; and Cochrane Central Register of Controlled Trials) were searched with a string including validation studies of adult-only, diabetes-specific QOL measures. Each measure was then qualified according to its structure, a qualitative assessment of the broad domains of QOL it comprises, and finally an overview of the psychometric properties of its first validation. Results. 30 scales were identified and assessed. Theme analysis shows that QOL is operationalized with multidimensional surveys comprising of both mental, physical, and social health components. Some scales also consider the impact of societal attitudes, public policies, and context on QOL. Conclusion. Several self-report measures of QOL specifically developed for diabetic patients exist in scientific literature. The present scoping review reports scales structure, broad domains of QOL, and development purpose. This may help in understanding the concept of QOL in diabetic patients and may also serve the purpose of guiding the reader in the choice of the most appropriate instrument or in the development of a new one.

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“…Caregiving exposes the informal caregiver to a number of unexpected and stressful situations that require changes in their lifestyles (6,7). Other perspectives point out that not all caregivers develop illnesses or stress exhaustion, suggesting that individuals show variability in responses to changes, that differ from individual to individual and over time (43,44). In this study, caregivers with low levels of stress showed higher levels of mental quality of life over time, thus emphasising the adverse role of continuous stress.…”

Section: Discussionmentioning

confidence: 55%

Longitudinal changes on the quality of life in caregivers of type 2 diabetes amputee patients

Costa

Machado

Pereira

2020

Scandinavian Caring Sciences

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Longitudinal changes on the quality of life in caregivers of type 2 diabetes amputee patients Purpose: To explore changes in the quality of life of caregivers of amputees due to type 2 diabetes ten months after amputation. Methods: This is a longitudinal study with three moments of evaluation (T1: one month after surgery, T2: 7 months, T3: 10 months). The sample comprised 110, 101, and 84 caregivers of amputated patients with type 2 diabetes. Caregivers answered a Socio-demographic questionnaire; the Self-Assessment Caregiver; the Family Disruption from Illness Scale; and the Short Form Health Survey (SF36). Results: Stress levels were not significantly reflected in changes on mental quality of life over time, except in the caregivers who presented less stress, emphasizing the adverse role of stress when experienced on a continuous basis for ten months on the caregivers' mental well-being. Caregivers presented greater number of physical symptoms at T2 that decreased at T3. Conclusions: According to the results, in order to promote caregivers' physical and mental quality of life, it would be important to evaluate stress levels especially in patients who presented somatic complaints.

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Assessing the perceived impact of diabetes on quality of life: Psychometric validation of the DAWN2 Impact of Diabetes Profile in the second Diabetes MILES – Australia (MILES-2) survey

Cited by 33 publications

References 33 publications

Assessing the impact of diabetes on quality of life: what have the past 25 years taught us?

Assessing the impact of diabetes on quality of life: what have the past 25 years taught us?

Measuring the Quality of Life in Diabetic Patients: A Scoping Review

Longitudinal changes on the quality of life in caregivers of type 2 diabetes amputee patients

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