Assessing the Feasibility of a Novel mHealth App in Hematopoietic Stem Cell Transplant Patients

Racioppi, Alessandro; Dalton, Tara; Ramalingam, Sendhilnathan; Romero, Kristi; Ren, Yi; Bohannon, Lauren; Arellano, Consuelo; Jonassaint, Jude; Miller, Hilary M.; Fish, Laura J.; Choi, Taewoong; Gasparetto, Cristina; Long, Gwynn D.; Lopez, Richard D.; Rizzieri, David A.; Sarantopoulos, Stefanie; Horwitz, Mitchell E.; Chao, Nelson J.; Shah, Nirmish; Sung, Anthony D.

doi:10.1016/j.jtct.2020.10.017

Cited by 19 publications

(21 citation statements)

References 42 publications

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“…A BMT Roadmap 2 for the outpatient setting is currently being considered ( 70 ) and could also be used to help survivors claim social benefits. Further attempts to use eHealth to improve care post-transplant highlight the enormous potential of eHealth in promoting interdisciplinary collaboration and patients' satisfaction ( 71 , 72 ). However, more research is needed to validate such interventions ( 68 ).…”

Section: Discussionmentioning

confidence: 99%

“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells Transplantation Survivors in Germany

Parisek

Loss

Holler

et al. 2021

Front. Public Health

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Background: Allogeneic hematopoietic stem cell transplantation (alloHSCT) is the only curative treatment modality for many patients affected by hematologic malignancies. However, it can cause debilitating long-term effects. Understanding the impact of alloHSCT on all aspects of the patients' life is required for optimal survivorship management.Aim: To explore in-depth HSCT-survivors' experiences and needs post-transplant. Partners were included to provide further information on survivors' needs and how care could be improved in this area.Methods: We conducted semi-structured face-to-face and phone interviews with alloHSCT-survivors and their partners referred to a survivorship clinic in Germany. Theoretical sampling was used to recruit participants. Data were analyzed using framework analysis.Results: Thirty-two survivors (consent rate: 100%, response rate: 100%) and eighteen partners (consent rate: 84%, response rate: 72%) participated. Survivors were aged between 25 and 68 years (Median: 48, IQR: 25.3) and partners were aged between 26 and 64 years (Median: 54, IQR: 16, SD: 12.8). The themes emerging from the data involved survivors' needs included (i) the diversity of long-term treatment side-effects; and (ii) time post discharge as a dynamic process with individual peaks of burden. Survivors and their partners also suggested strategies for mitigating these unmet needs, i.e., (iii) transparent communication and patient empowerment; and (iv) improvement in continuity of care system and help with claiming social benefits as cornerstones of optimal survivorship care.Conclusion: To our knowledge, this is one of the first qualitative studies focused on the views of German alloHSCT-survivors on the long-term effects of alloHSCT and the first study integrating the view of their partners. Healthcare providers could better support survivors with managing their symptoms and adhering to their prescribed care by ensuring comprehensive, transparent communication that helps increase survivors' understanding and involvement in their care. Further efforts should be made to provide patient-centered, continuous survivorship care that involves additional support with navigating the healthcare and social service system. Intervention studies are required to test the effectiveness of the suggested strategies.

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Section: Discussionmentioning

confidence: 99%

“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells Transplantation Survivors in Germany

Parisek

Loss

Holler

et al. 2021

Front. Public Health

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“…For medical apps, of the 11 definitions, 6 (55%) were published in German. As for health apps, most descriptions for medical apps came from Germany (7/11, 64%) or the United States (2/11, 18%), only 9% (1/11) came from Australia [ 71 ], and 9% (1/11) came from Canada [ 72 ]. b German publications translated by the authors (MF, HHD, and TJ) into English.…”

Section: Resultsmentioning

confidence: 99%

The Definitions of Health Apps and Medical Apps From the Perspective of Public Health and Law: Qualitative Analysis of an Interdisciplinary Literature Overview

Maaß¹,

Freye²,

Pan³

et al. 2022

JMIR Mhealth Uhealth

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Background The terms health app and medical app are often used interchangeably but do not necessarily mean the same thing. To better understand these terms and better regulate such technologies, we need distinct definitions of health and medical apps. Objective This study aimed to provide an overview of the definitions of health and medical apps from an interdisciplinary perspective. We summarized the core elements of the identified definitions for their holistic understanding in the context of digital public health. Methods The legal frameworks for medical device regulation in the United States, the European Union, and Germany formed the basis of this study. We then searched 6 databases for articles defining health or medical apps from an interdisciplinary perspective. The narrative literature review was supported by a forward and backward snowball search for more original definitions of health and medical apps. A qualitative analysis was conducted on the identified relevant aspects and core elements of each definition. On the basis of these findings, we developed a holistic definition of health and medical apps and created a decision flowchart to highlight the differences between the 2 types. Results The legal framework showed that medical apps could be regulated as mobile medical devices, whereas there is no legal term for health apps. Our narrative literature review identified 204 peer-reviewed publications that offered a definition of health and medical apps. After screening for original definitions and applying the snowball method, 11.8% (24/204) of the publications were included in the qualitative analysis. Of these 24 publications, 22 (88%) provided an original definition of health apps and 11 (44%) described medical apps. The literature suggests that medical apps are a part of health apps. To describe health or medical apps, most definitions used the user group, a description of health, the device, the legal regulation, collected data, or technological functions. However, the regulation should not be a distinction criterion as it requires legal knowledge, which is neither suitable nor practical. An app’s intended medical or health use enables a clear differentiation between health and medical apps. Ultimately, the health aim of an app and its main target group are the only distinction criteria. Conclusions Health apps are software programs on mobile devices that process health-related data on or for their users. They can be used by every health-conscious person to maintain, improve, or manage the health of an individual or the community. As an umbrella term, health apps include medical apps. Medical apps share the same technological functions and devices. Health professionals, patients, and family caregivers are the main user groups. Medical apps are intended for clinical and medical purposes and can be legally regulated as mobile medical devices.

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“…(45,45%), são do ano de 2020 13,14,[16][17][18] , seguido do ano de 2021 com 2 (18,18%) das publicações 15,19 18,20 .…”

Section: Resultsunclassified

“…a grande maioria, 9 (81,81%), é proveniente do Estados Unidos13,14,16,[18][19][20][21][22][23] . Isto se dá muito provavelmente pelo fato, já conhecido e…”

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Aplicativos móveis para pacientes pós transplante de medula óssea: revisão integrativa

Sanches¹,

Herbert²,

Rabin³

2022

Revista Recien

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Revisão integrativa da literatura com objetivo de analisar produções científicas sobre uso de aplicativos móveis na área de Transplante de Medula Óssea. Busca realizada com os descritores Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Mobile Applications, nas bases de dados SCOPUS, Pubmed e LILACS, em abril de 2021. Encontrou-se 46 publicações, destas 11 foram incluídas na revisão e classificadas por: base de dados, título, autores, país de origem, periódico e ano de publicação, delineamento, grau de recomendação, nível de evidência, tema, objetivo e resultados. Dos artigos 5 (45,45%), publicados em 2020, 9 (81,81%) desenvolvidos nos Estados Unidos, 10 (90,90%), possuem grau de recomendação B e 5 (45,45%) apresentam nível de evidência 2c. Conclui-se o êxito dos aplicativos móveis como produto de tecnologia em saúde, porém é necessário investimento em mais estudos buscando disseminar a tecnologia em saúde e melhora nos níveis de evidência e qualidade das publicações na área. Descritores: Aplicativos Móveis, Transplante de Medula Óssea, Transplante de Células-Tronco Hematopoéticas, Revisão. Mobile apps for post bone marrow transplant patients: integrative review Abstract: Integrative literature review aiming to analyze scientific productions on the use of mobile applications in the area of Bone Marrow Transplantation. Search performed with the descriptors Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Mobile Applications, in SCOPUS, Pubmed and LILACS databases, in April 2021. 46 publications were found, of which 11 were included in the review and classified by: database data, title, authors, country of origin, journal and year of publication, design, degree of recommendation, level of evidence, theme, objective and results. Of the 5 articles (45.45%) published in 2020, 9 (81.81%) developed in the United States, 10 (90.90%) have a degree of recommendation B and 5 (45.45%) have a level of evidence 2c. The success of mobile applications as a health technology product is concluded, but investment in more studies is needed to disseminate health technology and improve the levels of evidence and quality of publications in the area. Descriptors: Mobile Applications, Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Review. Aplicaciones móviles para pacientes post trasplante de médula ósea: revisión integradora Resumen: Revisión integrativa de la literatura con el objetivo de analizar las producciones científicas sobre el uso de aplicaciones móviles en el área del Trasplante de Médula Ósea. Búsqueda realizada con los descriptores Bone Marrow Transplantation, Hematopoytic Stem Cell Transplantation, Mobile Applications, en las bases de datos SCOPUS, Pubmed y LILACS, en abril de 2021. Se encontraron 46 publicaciones, de las cuales 11 fueron incluidas en la revisión y clasificadas por: datos de la base de datos, título, autores, país de origen, revista y año de publicación, diseño, grado de recomendación, nivel de evidencia, tema, objetivo y resultados. De los 5 artículos (45,45%) publicados en 2020, 9 (81,81%) desarrollados en Estados Unidos, 10 (90,90%) tienen un grado de recomendación B y 5 (45,45%) tienen un nivel de evidencia 2c. Se concluye el éxito de las aplicaciones móviles como producto de tecnología sanitaria, pero se necesita invertir en más estudios para difundir la tecnología sanitaria y mejorar los niveles de evidencia y calidad de las publicaciones en el área. Descriptores: Aplicaciones Móviles, Trasplante de Médula Ósea, Trasplante de Células Madre Hematopoyéticas, Revisión.

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Assessing the Feasibility of a Novel mHealth App in Hematopoietic Stem Cell Transplant Patients

Cited by 19 publications

References 42 publications

“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells Transplantation Survivors in Germany

“This Graft-vs.-Host Disease Determines My Life. That's It.”—A Qualitative Analysis of the Experiences and Needs of Allogenic Hematopoietic Stem Cells Transplantation Survivors in Germany

The Definitions of Health Apps and Medical Apps From the Perspective of Public Health and Law: Qualitative Analysis of an Interdisciplinary Literature Overview

Aplicativos móveis para pacientes pós transplante de medula óssea: revisão integrativa

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