Assessing and promoting partnership between patients and health‐care professionals: Co‐construction of the CADICEE tool for patients and their relatives

Pomey, Marie‐Pascale; Clavel, Nathalie; Normandin, Louise; Grande, Claudio Del; Ghadiri, Djahanchah Philip; Fernandez-McAuley, Isabel; Boivin, Antoine; Flora, Luigi; Janvier, Annie; Karazivan, Philippe; Pelletier, Jean‐François; Fernandez, Nicolas; Paquette, Jesseca; Dumez, Vincent

doi:10.1111/hex.13253

Cited by 17 publications

(30 citation statements)

References 55 publications

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“…The patient questionnaire comprises eight questions that evaluate isolation (n = 1) [ 13 ], the courtesy calls (n = 2) and the relationship of trust with the volunteer (n = 1) [ 14 ]. It also includes sociodemographic questions (n = 4).…”

Section: Methodsmentioning

confidence: 99%

“…A review of the literature did not identify any questionnaires that met the specific objectives of our study, so we drew inspiration from two questionnaires: one dealing with psychological distress [ 13 ] and the other with the partnership relationship with stakeholders [ 14 ]. The goal was to construct two questionnaires that would take into consideration the health crisis context.…”

Section: Methodsmentioning

confidence: 99%

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Reducing social isolation during the COVID-19 pandemic: Assessing the contribution of courtesy phone calls by volunteers

Normandin

Wong²,

Dumez

et al. 2022

PLoS ONE

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Context During the COVID-19 pandemic, restrictions were imposed on visits in hospitals in the province of Quebec, Canada in an effort to reduce the risk of viral exposure by minimizing face-to-face contact in order to protect patients, visitors and staff. These measures led to social isolation for patients. In order to reduce this isolation, CHUM (the Centre hospitalier de l’Université de Montréal, a teaching hospital) shifted from in-person visits to courtesy telephone calls delivered by volunteers from CHUM’s Volunteers, Recreation and Leisure Department. Objectives To study: (1) the contribution made by these calls to reducing isolation and their limitations, (2) how the calls can be improved, and (3) whether they should be maintained, based on the views of patients and volunteers. Methodology This study examined two populations. The first one consisted of 189 adult patients hospitalized at CHUM who received a courtesy phone call from a volunteer and the second one consisted of the 25 CHUM volunteers who made these calls. Quantitative data were collected from patients and volunteers through questionnaires and a Smartsheet. The patient questionnaire evaluated isolation, the courtesy phone calls, the relationship of trust with the volunteer and sociodemographic questions. The volunteer questionnaire evaluated the appropriateness of the technology for the intervention, the support and training received, the impacts of the courtesy phone call on both the patients and the volunteers, an experience report and sociodemographic information. In addition, a focus group was held with 7 volunteers. Then the verbatim were transcribed and analyzed using QDA miner software. Results From April 27, 2020 to September 5, 2020 more than 11,800 calls were made, mainly concerning hospitalization conditions or home follow-ups (n = 83), and relationships with relatives, friends, and family (n = 79). For 73.6% of hospitalized patients, the courtesy calls from volunteers were a good response to their needs, and 72% of volunteers agreed. 64.5% of patients felt less isolated and 40% of volunteers felt useful. Conclusion Our data suggest that patients felt less isolated during their hospitalization because of the courtesy calls made by the volunteers, that smartphones could also be used for video calls and, finally, that maintaining this type of service seems as relevant after as during a pandemic to provide social interactions to people isolated for medical reasons.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Reducing social isolation during the COVID-19 pandemic: Assessing the contribution of courtesy phone calls by volunteers

Normandin

Wong²,

Dumez

et al. 2022

PLoS ONE

Self Cite

View full text Add to dashboard Cite

show abstract

“…(20); 3) The utilization capacity of the telehealth platforms (userfriendliness, usefulness, problems encountered, etc.) (21); and 4) The sociodemographic characteristics of the COVID-19 patients who used the two platforms (20).…”

Section: Methodsmentioning

confidence: 99%

“…Patient engagement and partnership (participation, collaboration, trust, empathy, recognition, relationship with the care team, etc.) ( 20 );…”

Section: Methodsmentioning

confidence: 99%

Remote Patient Monitoring Program for COVID-19 Patients Following Hospital Discharge: A Cross-Sectional Study

Bouabida

Malas

Talbot

et al. 2021

Front. Digit. Health

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Background: The COVID-19 pandemic created an urgent need to act to reduce the spread of the virus and alleviate congestion from healthcare services, protect healthcare providers, and help them maintain satisfactory quality and safety of care. Remote COVID-19 monitoring platforms emerged as potential solutions.Objective: The purpose of this study was to evaluate the capacity and contribution of two different platforms used to remotely monitor patients with COVID-19 to maintain quality, safety, and patient engagement in care, as well as their acceptability, usefulness, and user-friendliness from the user's perspective. The first platform is focused on telecare phone calls (Telecare-Covid), and the second is a telemonitoring app (CareSimple-Covid).Methods: We performed a cross-sectional study. The data were collected through a phone survey from May to August 2020. Data were analyzed using descriptive statistics and t-test analysis. Participants' responses and comments on open-ended questions were analyzed using content analysis to identify certain issues and challenges and potential avenues for improving the platforms.Results: Fifty one patients participated in the study. Eighteen participants used the CareSimple-Covid platform and 33 participants used the Telecare-Covid platform. Overall, the satisfaction rate for quality and safety of care for the two platforms was 80%. Over 88% of the users on each platform considered the platforms' services to be engaging, useful, user-friendly, and appropriate to their needs. The survey identified a few significant differences in users' perceptions of each platform: empathy toward users and the quality and safety of the care received were rated significantly higher on the CareSimple-Covid platform than on the Telecare-Covid platform. Users appreciated four aspects of these telehealth approaches: (1) the ease of access to services and the availability of care team members; (2) the user-friendliness of the platforms; (3) the continuity of care provided, and (4) the wide range of services delivered. Users identified some technical limitations and raised certain issues, such as the importance of maintaining human contact, data security, and confidentiality. Improvement suggestions include promoting access to connected devices; enhancing communications between institutions, healthcare users, and the public on confidentiality and personal data protection standards; and integrating a participatory approach to telehealth platform development and deployment efforts.Conclusion: This study provides preliminary evidence that the two remote monitoring platforms are well-received by users, with very few significant differences between them concerning users' experiences and views. This type of program could be considered for use in a post-pandemic era and for other post-hospitalization clienteles. To maximize efficiency, the areas for improvement and the issues identified should be addressed with a patient-centered approach.

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“…To attract enough PPI contributors, they must be adequately compensated financially, beyond any non-material benefits they may experience by contributing. This argument favours having more PPI contributors considered active members of a project team (Pomey et al 2021) and on the project's payroll.…”

Section: Ppi Considerations: Compensation and Self-managementmentioning

confidence: 99%

The evolving practice of patient and public involvement in Europe and the United States

Haerry¹,

Brooke²,

Dutarte³

et al. 2021

Regulatory Affairs Watch

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Patient and public involvement (PPI) in academic human research has been evolving in the United States and Europe since the early 1980s, when it was jump-started by activists responding to the HIV pandemic. This article provides a brief look at the development of PPI in academic human research in the US and Europe, highlights the PPI initiatives of several US and European organisations, discusses how PPI is gaining momentum in health technology assessment bodies, and provides recommendations for various stakeholders on how to incorporate more PPI into academic human research.

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Assessing and promoting partnership between patients and health‐care professionals: Co‐construction of the CADICEE tool for patients and their relatives

Cited by 17 publications

References 55 publications

Reducing social isolation during the COVID-19 pandemic: Assessing the contribution of courtesy phone calls by volunteers

Reducing social isolation during the COVID-19 pandemic: Assessing the contribution of courtesy phone calls by volunteers

Remote Patient Monitoring Program for COVID-19 Patients Following Hospital Discharge: A Cross-Sectional Study

The evolving practice of patient and public involvement in Europe and the United States

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