Aspects of outpatient palliative care in Germany—a survey among office-based physicians

Prenzler, Anne; Mittendorf, Thomas; Schulenburg, Johann-Matthias von der; Theidel, Ulrike; Montag, Thomas; Müller-Busch, H. Christof

doi:10.1007/s10389-010-0360-8

Cited by 4 publications

(2 citation statements)

References 10 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The best cooperation is seen with caregivers, but cooperation with psycho-social care providers should be improved. Studies are requested that focus on the collection of longitudinal data for more comprehensive insight (Prenzler et al 2011).…”

Section: Introductionmentioning

confidence: 99%

Is there an unmet medical need for palliative care services in Germany? Incidence, prevalence, and 1-year all-cause mortality of palliative care sensitive conditions: real-world evidence based on German claims data

Gothe

Brinkmann

Schmedt

et al. 2020

J Public Health (Berl.)

View full text Add to dashboard Cite

Aim To characterize palliative care patients, to estimate the incidence, prevalence, and 1-year all-cause mortality in patients in Germany who received palliative care treatment. Subject and methods The study analyzed the InGef Research Database, which covers 4 million people insured in German statutory health insurance companies. Specific outpatient and inpatient reimbursement codes were used to capture cases with palliative conditions. The prevalence was ascertained for the year 2015. The incidence was calculated for patients without documented palliative care services in the year before the observation period. The Kaplan-Meier method was used to analyze the 1-year allcause mortality. Results The incidence rate of palliative conditions was 41.3 and 34.9 per 10,000 persons in women and men, respectively. The prevalence per 10,000 persons was 61.3 in women and 51.1 in men. The 1-year all-cause mortality among patients receiving their first palliative care treatment was 67.5%. Mortality was lower in patients receiving general outpatient palliative care treatment (AAPV; 60.8%) compared to patients receiving specialized outpatient palliative care treatment (SAPV; 86.1%) or inpatient palliative care treatment (90.6%). Within the first 30 days, mortality was particularly high (~43.0%). Conclusions In Germany, more than 400,000 patients per year receive palliative care treatment, which is lower compared to estimates of the number of persons with a potential need for palliative care. This gap was observed particularly in younger to middle-aged individuals. The findings indicate a demand for methodologically sound studies to investigate the public health burden and to quantify the unmet need for palliative care in Germany.

show abstract

Section: Introductionmentioning

confidence: 99%

Is there an unmet medical need for palliative care services in Germany? Incidence, prevalence, and 1-year all-cause mortality of palliative care sensitive conditions: real-world evidence based on German claims data

Gothe

Brinkmann

Schmedt

et al. 2020

J Public Health (Berl.)

View full text Add to dashboard Cite

show abstract

“…In previous studies, various facilitators or barriers in the practices were identified, i.e. the absence of a nominated contact person for caregivers or a lack of cooperation with a nursing service [ 34 ]. Supporting or inhibiting factors associated with caregivers were also identified, i.e.…”

Section: Resultsmentioning

confidence: 99%

PalliPA: How can general practices support caregivers of patients at their end of life in a home-care setting? A study protocol

Hermann¹,

Boelter²,

Engeser³

et al. 2012

BMC Res Notes

View full text Add to dashboard Cite

BackgroundThe care of patients with a life-threatening, progressive and far advanced illness in a home-care setting requires appropriate individual care and requires the active support of family caregivers. General practice teams are usually the primary care givers and first contact and are best placed to offer support to family caregivers and to recognise and respond to the burden of care giving on family members. The aim of this project is to develop a best practice model for engaging with and supporting family caregivers.FindingsThe project is framed as an exploratory trial for a subsequent implementation study, covering phases 0, I and II of the MRC (Medical Research Council) framework for development, design and evaluation of complex interventions. The project is a multi-method procedure and has two phases. In the first phase, which has already been completed, we used a reflective practice procedure where general practice teams were asked about how they currently deal with family caregivers. In the second phase, a participatory action research approach aims to improve identification and response to when support is necessary for family caregivers. Ten participating general practice teams each enrol 40 eligible patients and their family caregiver, to identify structures and tools feasible for use in their practice. Standardised self-reported questionnaires (Burden Scale for Family Caregivers and Quality of Life Questionnaire Core 15 Palliative) are being applied at study inclusion (prior to or during the implementation period) and after 6 and 12 months to explore implementation effects. Qualitative assessment of general practice teams’ experiences will be triangulated with the quantitative evaluation of the implementation.DiscussionThis two-step approach, which is appropriate to primary palliative care in the German health care context, will enable general practice teams to develop feasible, acceptable and successful strategies for the implementation of best practice to successfully support family caregivers of patients at the end of life.

show abstract

Symptomkontrolle und Sterbeort hausärztlich versorgter Palliativpatienten

Engeser

Hermann

Szécsényi

et al. 2014

Schmerz

View full text Add to dashboard Cite

show abstract

Aspects of outpatient palliative care in Germany—a survey among office-based physicians

Abstract: Background: Currently, Palliative care is widely discussed. Aim of this study is to

Cited by 4 publications

References 10 publications

Is there an unmet medical need for palliative care services in Germany? Incidence, prevalence, and 1-year all-cause mortality of palliative care sensitive conditions: real-world evidence based on German claims data

Is there an unmet medical need for palliative care services in Germany? Incidence, prevalence, and 1-year all-cause mortality of palliative care sensitive conditions: real-world evidence based on German claims data

PalliPA: How can general practices support caregivers of patients at their end of life in a home-care setting? A study protocol

Symptomkontrolle und Sterbeort hausärztlich versorgter Palliativpatienten

Contact Info

Product

Resources

About