Asian women are less likely to express interest in infertility research

Johnstone, Erica; Sandler, J.R.; Addauan-Andersen, C.; Sohn, Sae H.; Fujimoto, Victor Y.

doi:10.1016/j.fertnstert.2009.08.011

Cited by 17 publications

(8 citation statements)

References 44 publications

(47 reference statements)

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“…We have previously reported that Asian patients from our center are less likely to express interest in research participation, with the effect being more pronounced among those born outside the U.S. (17). Indeed, in the present study we found that plans to donate embryos for research were closely aligned with interest in clinical research participation.…”

Section: Discussionsupporting

confidence: 67%

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Asian immigrants to the United States are less likely to donate cryopreserved embryos for research use

Sharma

Johnstone

Gates

et al. 2011

Fertility and Sterility

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Section: Discussionsupporting

confidence: 67%

“…Within our infertility clinic population, we have reported that Asian women of various nationalities are less likely than European women to express interest in research participation (17). Whether donation of cryopreserved embryos would mirror clinical research participation in our population is unknown.…”

mentioning

confidence: 90%

Asian immigrants to the United States are less likely to donate cryopreserved embryos for research use

Sharma

Johnstone

Gates

et al. 2011

Fertility and Sterility

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“…We examine ways to develop effective, culturally-appropriate communication strategies to recruit Chinese- and Vietnamese-American women into cervical cancer prevention studies that include biosampling. The methodology follows the recommendations of Johnstone et al [25] and Culley et al [26] to use focus groups to identify barriers and provide a gateway to participation in research. We used thematic content analysis of narrative data to answer the specific research questions: what are the barriers to participation in research among Asian American women at-risk for cervical cancer; and what specific recruitment strategies could enhance study enrollment?…”

Section: Methodsmentioning

confidence: 99%

Research Participation Among Asian American Women at Risk for Cervical Cancer: Exploratory Pilot of Barriers and Enhancers

Giarelli

Bruner

Nguyen

et al. 2011

J Immigrant Minority Health

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The purposes of this exploratory pilot were to describe perceived barriers to participation in cervical cancer prevention research, and identify culturally-appropriate communication strategies to recruit Asian women into cancer prevention research. This thematic analysis of transcripts, from focus groups and in-depth interviews, was conducted in English, Vietnamese, and Mandarin Chinese, at a community clinic in Philadelphia, Pennsylvania. Thirty participants were either Vietnamese (35%) or Chinese (65%). Mean age was 36.8 (SD 9.9 years). Reasons for non-participation were: lack of time, inconvenience, mistrust of institutions and negative experiences, lack of translated materials, feeling intimidated by English, and the lack of translation of key words or terms. Enhancers of participation were: endorsement by a spouse, monetary compensation, and a personalized approach that offers a benefit for Asian women. To increase participation, first one must remove language barriers and, preferably, use specific dialects. Second, one must specify if benefits are indirectly or directly related to the family or cultural group. Asian research participants in our study consistently expressed that a significant motivator was their desire to be of help, in some way, to a family member or to the Asian community in general.

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“…Therefore, it is important to include a representative sample of Asian Americans in health research. However, past research has consistently found that Asian Americans have lower research participation rates than other racial/ethnic groups [6][7][8][9][10][11][12] and that they are underrepresented in cardiovascular disease research [13], mental health research [14,15], cancer research [16], women' health research [12] and community-engaged research [17].…”

Section: Introductionmentioning

confidence: 99%

Asian Americans are less willing than other racial groups to participate in health research

Liu

Elliott

Strelnick

et al. 2019

J. Clin. Trans. Sci.

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Background:Asian Americans constitute 5% of the U.S. population. Their willingness to participate in research is important to examine because it influences participation rates and the representativeness of study results.Methods:A total of 17,339 community members participated from six diverse Clinical and Translational Award (CTSA) sites. Community members were asked about their willingness to volunteer for eight different types of health research, their expectation of monetary compensation for research participation, their trust in research and researchers, their preferred language to receive health information, and their socio-demographic background. We examined Asian Americans’ willingness to participate in various types of health research studies and compared their perceptions with other racial/ethnic groups (i.e., Asian n = 485; African-American n = 9516; Hispanic/Latino n = 1889; Caucasian n = 4760; and other minority n = 689).Results:Compared to all other racial/ethnic groups, Asian Americans were less willing to participate in all eight types of health research. However, Asian Americans reported a lower amount of fair compensation for research participation than African-Americans and Hispanics/Latinos but were as likely to trust researchers as all other racial/ethnic groups.Conclusion:Asian Americans are less willing to participate in health research than other racial/ethnic groups, and this difference is not due to dissatisfaction with research compensation or lower trust in researchers. Lack of trust in research and language barriers should be addressed to improve representativeness and generalizability of all populations in research.

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Asian women are less likely to express interest in infertility research

Cited by 17 publications

References 44 publications

Asian immigrants to the United States are less likely to donate cryopreserved embryos for research use

Asian immigrants to the United States are less likely to donate cryopreserved embryos for research use

Research Participation Among Asian American Women at Risk for Cervical Cancer: Exploratory Pilot of Barriers and Enhancers

Asian Americans are less willing than other racial groups to participate in health research

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