ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families

Cohen, Stephen S.; Miguel, Jessica; Trejos, Jessica

doi:10.1007/s10803-022-05512-3

Cited by 3 publications

(1 citation statement)

References 72 publications

(105 reference statements)

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“… 14 Lower-income patients from racial or ethnic minority groups are less likely to be referred to specialists based on developmental monitoring. 15 Studies suggest that such disparities are correlated with factors such as immigration, economic, linguistic, employment, and transportation status, 16 - 19 fragmented primary care, 20 , 21 maternal education level, 22 and general prejudices held by clinicians. 23 …”

Section: Introductionmentioning

confidence: 99%

Diagnostic Evaluation of Autism Spectrum Disorder in Pediatric Primary Care

Nasir,

Strong-Bak,

Bernard

2024

J Prim Care Community Health

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Background and Objectives: Children with autism spectrum disorder (ASD) continue to experience significant delays in diagnosis and interventions. One of the main factors contributing to this delay is a shortage of developmental-behavioral specialists. Diagnostic evaluation of ASD by primary care pediatricians (PCPs) has been shown to be reliable and to decrease the interval from first concern to diagnosis. In this paper, we present the results of a primary care ASD diagnosis program in which the PCP serves as the primary diagnostician and leverages the infrastructure of the primary care medical home to support the child and family during the pre- and post-diagnostic periods, along with data on parental satisfaction with this model. Methods: Retrospective data from a cohort of patients evaluated through this program were analyzed to determine the mean age at diagnosis and interval from referral for evaluation to diagnosis. We used survey methodology to obtain data from parents regarding their satisfaction with the process. Results: Data from 8 of 20 children evaluated from April 2021 through May 2022 showed a median age of diagnosis of 34.5 months compared to the national average of 49 months. Mean interval from referral for evaluation to diagnosis was 3.5 months. Parental survey responses indicated high satisfaction. Conclusions: This model was successful in shortening the interval from referral to diagnosis resulting in significant decrease of age at diagnosis compared with the national average. Widespread implementation could improve access to timely diagnostic services and improve outcomes for children with ASD.

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Section: Introductionmentioning

confidence: 99%

Diagnostic Evaluation of Autism Spectrum Disorder in Pediatric Primary Care

Nasir,

Strong-Bak,

Bernard

2024

J Prim Care Community Health

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It’s our job to bridge the gap: Perspectives of bilingual autism providers on heritage language care

Martin Loya,

Meadan

2024

Autism

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Autistic children from heritage-language-speaking homes in the United States are a growing group that would benefit from tailored support that honors their linguistic heritage. Bilingual autistic adults share benefits of their bilingualism abilities and report childhood learning environments as necessary for facilitating language learning or maintenance. Caregivers of young autistic children also report the desire to maintain their heritage languages but sometimes struggle to do so due to misconceptions and a lack of resources such as bilingual personnel. This study was the first to explore U.S.-based bilingual providers’ ( N = 16) experiences and perceptions of providing bilingual care for autistic children. Data analysis was conducted using reflexive thematic analysis, and resulted in five themes, including (a) You Don’t Have to Change Who You Are: Experiences and Beliefs About Bilingualism, (b) Having the “Other” Perspective: Empathy and Intersectionality, (c) Services as a Gateway: Beliefs Rooted in Social Justice, (d) He Was Like a Different Child: Impacts of Receiving Heritage-Language Support, and (e) It Was Just Business: Impacts of Not Receiving Same Language Support. Findings from this study suggest that autistic children and their families benefit from heritage language care, and the recruitment and retention of a linguistically diverse workforce is recommended. Additional implications for research and practice are discussed. Lay abstract In the United States, many people have heritage languages they speak in their homes other than English, such as Chinese or Spanish. Autistic children whose families speak different languages could benefit from support and teaching in their heritage languages. Still, caregivers have reported that it is challenging to do so. Many autism professionals make suggestions that are not based on research. To date, researchers have not examined the perspectives of the small group of bilingual professionals in the United States who provide bilingual support for autistic children. Therefore, this study explored how bilingual autism providers in the United States talked about their work, bilingualism, and the impacts their bilingual work has on autistic children and families. The bilingual providers in this study reported many positive outcomes for autistic children when they can learn and use their heritage languages and some negative outcomes when providers cannot communicate in the same language. Recommendations from this study highlight the need to recruit more bilingual providers in the field of autism.

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Intersection between Autism, Autism Spectrum Disorder (ASD), and Immigration: A Scoping Review

Cruz Puerto,

Vázquez

2024

Interdisciplinary Rehabilitation / Rehabilitacion Interdiscipli

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Introducción: En los últimos años ha aumentado el número de investigaciones sobre una potencial conexión entre el trastorno del espectro autista (TEA) y la migración. Este artículo presenta una revisión de alcance de la relación entre TEA y migración, que se enfoca en factores culturales, étnicos y experiencias migratorias. Método: Se empleó un método de revisión de alcance, analizando los artículos identificados en categorías como influencias culturales, barreras, diagnóstico, intervención temprana, perspectivas de los padres y el estigma asociado al autismo. Resultado: Se resalta la importancia de abordar la interacción de factores culturales, sistémicos e individuales para mejorar el apoyo y los resultados en personas y familias con un diagnóstico de TEA en comunidades de migrantes. Conclusión: La evidencia sugiere la existencia de barreras comunes en los trastornos neurodesarrollo y el TEA en poblaciones que migrantes, incluyendo factores estructurales, socioeconómicos, sociales y culturales, como la falta de seguros médicos, la fragmentación de servicios, el apoyo social insuficiente y la carencia de recursos culturalmente apropiados.

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ASD Diagnosis and Treatment Experiences Among Mexican Heritage Families

Cited by 3 publications

References 72 publications

Diagnostic Evaluation of Autism Spectrum Disorder in Pediatric Primary Care

Diagnostic Evaluation of Autism Spectrum Disorder in Pediatric Primary Care

It’s our job to bridge the gap: Perspectives of bilingual autism providers on heritage language care

Intersection between Autism, Autism Spectrum Disorder (ASD), and Immigration: A Scoping Review

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