Ascertainment Corrected Rates: Applications of Capture-Recapture Methods

McCarty, Daniel J.; Tull, Eugene S.; Moy, Claudia S.; Kwoh, C. Kent; LaPorte, Ronald E.

doi:10.1093/ije/22.3.559

Cited by 169 publications

(120 citation statements)

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“…The best method to achieve this is to use an alternative independent source of case ascertainment, and apply capture-recapture analysis. 11 Unfortunately, for studies completed to date, these sources have not been available. In these circumstances, one approach to investigating ascertainment levels may be a comparison of the rate at which a selected sample of 'good reporters' sees new cases per head of population, with the overall rate from the study to provide an estimate of ascertainment.…”

Section: Case Ascertainmentmentioning

confidence: 99%

The British Ophthalmological Surveillance Unit: an evaluation of the first 3 years

Foot

Stanford

Rahi³

et al. 2003

Eye

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We report an evaluation of the British Ophthalmological Surveillance Unit (BOSU), a nationwide active surveillance scheme to assist with the case ascertainment of rare eye conditions. The evaluation assessed participation rates, study applications and research outputs. In addition, through an anonymous postal survey we ascertained the opinions of ophthalmologists regarding the usefulness, levels of feedback, barriers to participation and levels of case ascertainment. Over the first 3 years, the 4-month mean participation rate has improved from 58% to 71%. Ten studies have used this system for case ascertainment. To date three journal publications and 10 conference presentations have reported findings from these studies. It was observed that 582/870 (68%) questionnaires were returned by ophthalmologists, of whom 95% considered BOSU as very or quite useful. In all, 71% reported overall feedback to be sufficient. However, 34% requested greater feedback from research groups. Reported barriers to effective participation were 'having to remember the patient's identity' (52%) and paying for return postage of cards (22%). However, 72% of respondents did not consider the work involved in reporting a case to be prohibitive. Self-reported levels of case ascertainment by ophthalmologists for completed studies ranged between 72% and 95%. This population-based surveillance system provides an effective method for prospective case identification and subsequent data collection. It enables the study of sufficiently representative samples to allow meaningful epidemiological analysis and avoid bias. Its success relies upon the high level of support that it currently receives from ophthalmologists.

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Section: Case Ascertainmentmentioning

confidence: 99%

The British Ophthalmological Surveillance Unit: an evaluation of the first 3 years

Foot

Stanford

Rahi³

et al. 2003

Eye

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“…Death certificate only and Mortality/Incidence Ratio indicators are among the indicators used normally to estimate the hidden population in registry systems (Shanmugaratnam, 1989), but they are indirect indicators that are strongly associated with the fatality rate of disease. When two or more incomplete lists of the number of cancer cases are available, capture-recapture (CR) method will be used to estimate the number of available cases in society, which is considered as a direct indicator for estimating cancer 1 Alireza Mosavi-Jarrahi 1 , Toraj Ahmadi-Jouibari 2 , Farid Najafi 3 , Yadollah Mehrabi 1 , Abbas Aghaei 2 * incidence (Robles et al, 1988;Hilsenbeck et al, 1992;Laporte et al, 1992;Tull and McCarty, 1992;McCarty et al, 1993;Suwanrungruang et al, 2011). Among the techniques described in IARC reports, capture-recapture method has been considered at the same level of the best methods.…”

Section: Introductionmentioning

confidence: 99%

Estimation of Esophageal Cancer Incidence in Tehran by Log-linear Method using Population-based Cancer Registry Data

Mosavi‐Jarrahi

Ahmadi-Jouibari²,

Najafi³

et al. 2013

Asian Pacific Journal of Cancer Prevention

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Background: Having knowledge or estimation of cancer incidence is necessary for planning and implementation of any cancer prevention and control programs. Population-based registries provide valuable information to achieve these objectives but require extra techniques to estimate the incidence rate. The present study aimed to estimate the esophageal cancer incidence using a log-linear method based on Tehran population-based cancer registry data. Materials and Methods: New cases of esophageal cancer reported by three sources of pathology reports, medical records, and death certificates to Tehran Metropolitan Area Cancer Registry Center during 2002-2006 were entered into the study and the incidence rate was estimated based on log-linear models. We used Akaike statistics to select the best-fit model. Results: During 2002-2006, 1,458 new cases of esophageal cancer were reported by the mentioned sources to the population-based cancer registry. Based on the reported cases, cancer incidence was 4.5 per 100,000 population and this was estimated to be 10.5 per 100,000 by the log-linear method. Conclusions: Based on the obtained results, it can be concluded that an estimated incidence for 2004 of 8.3 per 100,000 population could be a good benchmark for the incidence of esophageal cancer in the population of Tehran metropolis.

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“…With the availability of newer registry techniques and a better definition of SLE, it is now possible to obtain better estimates of disease occurrence. We have recently pointed out the critical need for accurate incidence data in the epidemiology of noncommunicable diseases and have advocated the use of capture-recapture as a method that can obtain more accurate descriptive epidemiologic results by formally calculating ascertainment-corrected incidence rates (16,30). With multiple sources of ascertainment, capture-recapture methods can be applied to provide an estimate of the total number of cases (e.g., incident cases of SLE) without requiring the identification of every case in the population (23,26,27).…”

mentioning

confidence: 99%

Incidence of systemic lupus erythematosus race and gender differences

McCarty

Manzi

Medsger

et al. 1995

Arthritis & Rheumatism

364

241

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Objective. To examine racial differences in the incidence of systemic lupus erythematosus (SLE).Methods. A population-based registry of SLE patients in Allegheny County, Pennsylvania, was used to identify incident cases of SLE diagnosed between January 1, 1985 and December 31, 1990, from 3 sources, by medical record review (University of Pittsburgh Lupus Databank, rheumatologists, and hospitals). Capture recapture methods using log-linear models were used to estimate the level of case-finding and to calculate 95% confidence intervals (CI). Incidence rates were calculated per 100,000 population.Results. A total of 191 definite and 78 probable incident cases of SLE were identified, and the overall annual incidence rates were 2.4 (95% CI 2.1-2.8) and 1.0 (95% CI 0.8-1.3), respectively. The crude incidence rates of definite SLE were 0.4 for white males, 3.5 for white females, 0.7 for African-American males, and 9.2 for African-American females. The annual incidence rates of definite SLE remained fairly constant over the study interval. African-American females with definite SLE had a younger mean age at diagnosis compared with white females (P < 0.05). Since the overall ascertainment rate was high (85%; 95% CI 78-92%), the ascertainment-corrected incidence rate for definite SLE, 2.8 (95% CI 2.6-3.2), was similar to the crude rate.Conclusion. Our rates clearly confirm previous reports of an excess incidence of SLE among females compared with males and among African-Americans compared with whites. We have used capture-recapture methods to improve the accuracy of SLE incidence rates, and we advocate their use to facilitate comparisons across studies.Accurate determination of the incidence rates of systemic lupus erythematosus (SLE) is vital to understanding the clinical and societal consequences of this disease. Unfortunately, the available data concerning the incidence and prevalence of SLE are conflicting. A number of population-based studies have estimated the incidence of SLE in the United States, Europe, and the Caribbean (1)(2)(3)(4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15). It is important to note that all these studies relied on reporting of cases through one or more sources of ascertainment rather than by population survey. Early epidemiologic investigations of SLE in the US provided important preliminary estimates of disease incidence and differences in incidence based on age, sex, and race (1,2,4). Although these studies indicated a predominance of SLE in women and an increased incidence in AfricanAmericans compared with whites, the reported rates within a given gender and within specific racial groups varied dramatically across geographic areas and over study periods within a geographic area.Recent European studies have included methodologic improvements (i.e., use of standardized case

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Ascertainment Corrected Rates: Applications of Capture-Recapture Methods

Cited by 169 publications

References 0 publications

The British Ophthalmological Surveillance Unit: an evaluation of the first 3 years

The British Ophthalmological Surveillance Unit: an evaluation of the first 3 years

Estimation of Esophageal Cancer Incidence in Tehran by Log-linear Method using Population-based Cancer Registry Data

Incidence of systemic lupus erythematosus race and gender differences

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