Ascertaining breast cancer patient experiences through a journey map: A qualitative study protocol

Ciria‐Suarez, Laura; Jiménez‐Fonseca, Paula; Palacín-Lois, María; Antoñanzas, Mónica; Férnández-Montes, Ana; Manzano-Fernández, Aránzazu; Castelo, Beatriz; Asensio-Martínez, Elena; Hernando-Polo, Susana; Calderón, Caterina

doi:10.1371/journal.pone.0244355

Cited by 8 publications

(10 citation statements)

References 30 publications

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“…We conducted a qualitative study to explore the pathway of standard care for women with breast cancer and to develop a schematic map of their journey based on their experiences. A detailed description of the methodology is reported in the published protocol “Ascertaining breast cancer patient experiences through a journey map: A qualitative study protocol” [ 39 ].…”

Section: Methodsmentioning

confidence: 99%

Breast cancer patient experiences through a journey map: A qualitative study

et al. 2021

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Background Breast cancer is one of the most prevalent diseases in women. Prevention and treatments have lowered mortality; nevertheless, the impact of the diagnosis and treatment continue to impact all aspects of patients’ lives (physical, emotional, cognitive, social, and spiritual). Objective This study seeks to explore the experiences of the different stages women with breast cancer go through by means of a patient journey. Methods This is a qualitative study in which 21 women with breast cancer or survivors were interviewed. Participants were recruited at 9 large hospitals in Spain and intentional sampling methods were applied. Data were collected using a semi-structured interview that was elaborated with the help of medical oncologists, nurses, and psycho-oncologists. Data were processed by adopting a thematic analysis approach. Results The diagnosis and treatment of breast cancer entails a radical change in patients’ day-to-day that linger in the mid-term. Seven stages have been defined that correspond to the different medical processes: diagnosis/unmasking stage, surgery/cleaning out, chemotherapy/loss of identity, radiotherapy/transition to normality, follow-up care/the “new” day-to-day, relapse/starting over, and metastatic/time-limited chronic breast cancer. The most relevant aspects of each are highlighted, as are the various cross-sectional aspects that manifest throughout the entire patient journey. Conclusions Comprehending patients’ experiences in depth facilitates the detection of situations of risk and helps to identify key moments when more precise information should be offered. Similarly, preparing the women for the process they must confront and for the sequelae of medical treatments would contribute to decreasing their uncertainty and concern, and to improving their quality-of-life.

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Section: Methodsmentioning

confidence: 99%

Breast cancer patient experiences through a journey map: A qualitative study

et al. 2021

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“…The journey map concept has been used in prior research to explore needs across different stages in case of patients with cancer [ 43 , 44 ] or patients undergoing surgical interventions [ 45 ]. With the help of these ideas, we were able to interpret our findings; for example, by mapping the types of questions against different stages of the patient journey ( Figure 3 ).…”

Section: Resultsmentioning

confidence: 99%

Mapping Information Needs of Patients With Sexually Transmitted Infections Using Web-Based Data Sources: Grounded Theory Investigation

et al. 2021

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Background According to the World health organization (WHO), more than 1 million sexually transmitted infections (STIs) are acquired each day across the world. The incidence rates of STIs in the United States are at a record high for the fourth consecutive year. Owing to the stigma associated with the incidence of STI, there is a general reluctance to seek information in person. Instead, web-based information sources remain the primary avenues of information-seeking. However, these sources are designed without a comprehensive understanding of the information needs of individuals who have contracted STIs. Objective This study aimed to investigate the information needs of individuals who have or suspect they have contracted an STI. A better understanding of their information needs can drive the design of more effective digital interventions. Methods This is a qualitative and analytical study of 549 transcripts (consisting of queries posted over the last 10 years) from web-based forums of the American Sexual Health Association (ASHA), which allows patients, volunteers, and health care providers connect anonymously. The analysis follows a grounded theory (GT) approach with multiple coding stages to uncover categories and themes. Results Three categories of information needs emerged. The first two, clinical and logistical, are similar to other contexts. However, our analysis shows that there is a significant need for the last category—psychosocial information. Approximately 59% of instances are linked to concerns such as confusion, discretion, remorse, and others. These needs vary across the stages of a patient’s journey from symptom manifestation to treatment maintenance. Conclusions Responding to the needs of individuals who have or suspect they have contracted an STI requires compassionate and personalized responses (beyond factual clinical and logistical information). Web-based forums provide anonymity but do not adequately incorporate mechanisms, practices, or incentives to respond to diverse psychosocial concerns. Innovative approaches to add such support can make the digital interventions more effective for this group of individuals.

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“…An intentional sampling procedure will be used to recruit participants for the study based on their age, sex and experience with robot-assisted surgery. The aim is to access the various levels of experience and promote transferability of the findings 44. Participation will be voluntary.…”

Section: Methods and Analysismentioning

confidence: 99%

“…The aim is to access the various levels of experience and promote transferability of the findings. 44 Participation will be voluntary. Surgeons will receive no compensation (financial or gift) for their participation.…”

Section: Methods and Analysismentioning

confidence: 99%

Understanding the surgeon’s behaviour during robot-assisted surgery: protocol for the qualitative Behav’Robot study

et al. 2022

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IntroductionRobot-assisted surgery is spreading worldwide, accounting for more than 1.2 million procedures in 2019. Data are sparse in the literature regarding the surgeon’s mechanisms that mediate risk-taking during a procedure, especially robot-assisted. This study aims to describe and understand the behaviour of the surgeons during robot-assisted surgery and the change in their behaviour with increasing experience in using the robot.Methods and analysisThis is a qualitative study using semistructured interviews with surgeons who perform robot-assisted surgery. An interview guide comprising open questions will be used to ensure that the points to be discussed are systematically addressed during each interview (ie, (1) difference in behaviour and preparation of the surgeon between a standard procedure and a robot-assisted procedure; (2) the influence of proprioceptive modifications, gain in stability and cognitive biases, inherent in the use of a surgical robot and (3) the intrinsic effect of the learning curve on the behaviour of the surgeons. After transcription, interviews will be analysed with the help of NVivo software, using thematic analysis.Ethics and disseminationSince this project examines professional practices in the field of social and human sciences, ethics committee was not required in accordance with current French legislation (Decree no 2017-884, 9 May 2017). Consent from the surgeons is implied by the fact that the interviews are voluntary. Surgeons will nonetheless be informed that they are free to interrupt the interview at any time.Results will be presented in peer-reviewed national and international congresses and submitted to peer-reviewed journals for publication. The communication and publication of the results will be placed under the responsibility of the principal investigator and publications will be prepared in compliance with the ICMJE uniform requirements for manuscripts.Trial registration numberNCT04869995.

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Ascertaining breast cancer patient experiences through a journey map: A qualitative study protocol

Cited by 8 publications

References 30 publications

Breast cancer patient experiences through a journey map: A qualitative study

Breast cancer patient experiences through a journey map: A qualitative study

Mapping Information Needs of Patients With Sexually Transmitted Infections Using Web-Based Data Sources: Grounded Theory Investigation

Understanding the surgeon’s behaviour during robot-assisted surgery: protocol for the qualitative Behav’Robot study

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