Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?

Kim, Michael E.; Kasparian, Nadine A.; Zang, Huaiyu; Pater, Colleen; Chlebowski, Meghan M; Marcuccio, Elisa; Florez, Amy R.; Morales, D.L.; Madsen, Nicolas; Moore, Ryan

doi:10.1016/j.jpeds.2023.02.008

Cited by 4 publications

(2 citation statements)

References 37 publications

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“…In term of next steps, the results of the present study and all feedback received will be used to directly inform the refinement of the educational intervention. In addition, this work is complemented by work done to identify vulnerable populations who may benefit from novel educational strategies and emotional support resources for parents in the cardiology step-down unit to improve discharge readiness 33 and further the mission of a multifaceted approach to the education of parents of children with CHD. Seven participants indicated their willingness to serve as parent partners in the re-design and modification of the intervention materials for use in future studies.…”

Section: Implications For Future Research and Practicementioning

confidence: 99%

Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis

Chlebowski,

Stark,

Khoury

et al. 2023

Cardiol Young

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Objective: To evaluate the acceptability and safety of educational videos utilising visual storytelling to provide information about the cardiac ICU and post-operative care to parents. Videos were designed to educate, further encourage parents to engage in their child’s cardiac care, and address common sources of distress. Study Design: Two educational videos and survey were sent to 29 families of children previously admitted to the cardiac ICU (April 2020–March 2021). Views regarding information quality, quantity, format, and relevance were assessed, as were parents’ emotional responses. Quantitative thresholds for safety and acceptability were set a priori. An inductive approach to content analysis was applied to identify themes in qualitative data. Results: Sixteen parents participated (response rate: 55%). All acceptability and safety thresholds were met; 92% of parents rated the videos as helpful and 85% were “very” or “extremely likely” to recommend them to other families of children with CHD. No participants reported significant distress after viewing the videos. Expressions of parental engagement with their child’s care team were common (92%). In qualitative responses, parents perceived the videos as potentially helpful in reducing distress if viewed prior to cardiac ICU admission. Conclusion: Visual storytelling to orient parents to the cardiac ICU and address common stressors was found to be safe and acceptable when tested with parents of children previously admitted to the cardiac ICU. Further prospective studies are needed to test intervention effects when videos are viewed before or during cardiac ICU admission, especially for mitigating anxiety and traumatic stress associated with admission.

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Section: Implications For Future Research and Practicementioning

confidence: 99%

Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis

Chlebowski,

Stark,

Khoury

et al. 2023

Cardiol Young

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“…In their qualitative data, Driscoll et al (4) also found parents with lower family income frequently described instances of feeling excluded from medical decision-making for their child. More broadly, research consistently demonstrates that social determinants of health impact CHD outcomes and are associated with longer hospital stays (19, 20), higher emergency department (21) and readmission rates (21–23), suboptimal adherence to care (23), and increased mortality across the lifespan (24). Such disparities likely also affect mental health outcomes, since social factors and mental health are tightly related (25, 26).…”

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confidence: 99%

If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease*

Elhoff,

Kasparian

2023

Pediatric Critical Care Medicine

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The effects of a hospital-to-home care transition program on perceived stress and readiness for hospital discharge in mothers of children with congenital heart disease undergoing corrective surgery

Komijani,

Hosseini,

Nasiri

et al. 2024

Journal of Pediatric Nursing

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Are Parent Discharge Readiness Scores Effective for Patients With Congenital Heart Disease After Cardiac Surgery?

Cited by 4 publications

References 37 publications

Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis

Evaluation of the use of visual storytelling as an educational intervention in the cardiac ICU: reaching parents before they are in crisis

If Not Now, When? Taking Action to Improve Mental Health Outcomes for Families of Children With Heart Disease*

The effects of a hospital-to-home care transition program on perceived stress and readiness for hospital discharge in mothers of children with congenital heart disease undergoing corrective surgery

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