Are healthcare professionals aware and trained in dealing with Adult Congenital Heart Disease patients with learning difficulties? A questionnaire-based study

Abstract

Children with CHD are at increased risk of cognitive and motor disabilities. 1,2 Those with complex CHD and, particularly, cyanotic lesions are at the highest risk for neurodevelopmental impairment. 3,4 With the increasing survival of patients with CHD into adulthood, consequently 10% of Adult CHD patients have some form of learning disability. 5 According

Cardiovascular Complications of Down Syndrome: Scoping Review and Expert Consensus

“… 83 , 95 Health care professionals looking after people with CHD and learning difficulties rarely receive formal training and are often not aware of the resources available for these individuals. 96 …”

“…83,95 Health care professionals looking after people with CHD and learning difficulties rarely receive formal training and are often not aware of the resources available for these individuals. 96 The presentation of complications, such as PH and heart failure, in people with DS and CHD may be challenging in the setting of profound learning or communication difficulties. Studies assessing the effects of these issues on timely diagnosis and management are lacking.…”