Are family‐centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy?

Darrah, Johanna; Wiart, Lesley; Magill‐Evans, Joyce; Ray, Lynne; Andersen, John

doi:10.1111/j.1365-2214.2010.01160.x

Cited by 66 publications

(68 citation statements)

References 25 publications

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“…This adaption process, as described by Piggot and colleagues () and later by Rentinck and colleagues (), found that parent adaptation was related to change in their child's development and in stages of family life over time. Similarly, Darrah and colleagues () also noted that preferences of families may change over time.…”

Section: Discussionmentioning

confidence: 90%

Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review

Kruijsen-Terpstra

Ketelaar

Boeije

et al. 2013

Child

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Understanding the experiences of parents with their child's intervention might help meet the needs of parents and, subsequently get them engaged in their child's intervention. As parents' early beliefs regarding their child's intervention has consequences for treatment participation, it is important to understand these parental perspectives. The aim of this mixed studies review was to give an overview of the experiences and related factors of parents of young children (0-5 years of age) with cerebral palsy in relation to the physical and/or occupational therapy of their child in a rehabilitation setting. The literature was searched systematically for qualitative and quantitative studies published between January 1990 and July 2011. Inclusion criteria were (1) the study population consisted of parents of children with cerebral palsy, with at least 25% of children under the age of five; (2) children had received physical and/or occupational therapy in a rehabilitation setting; and (3) the experiences of the parents with their child's therapy were addressed. Data were synthesized with the framework synthesis method resulting in a conceptual framework describing the factors that are related to the parents' experiences with their child's interventions. A total of 13 studies (eight qualitative and five quantitative) were included and evaluated. Parents expressed various aspects in context, process and outcomes when asked about their experiences with their child's intervention. They had different needs over time and needed time to build a collaborative relationship with their child's therapists. The proposed framework acknowledges the various aspects in context, process and outcomes that parents reported when asked about their experiences. Knowing this, the importance of the broader context of the child in a family should be acknowledged; realizing the impact that the demands of daily life, supports and resources provided to parents, attitudes in the community and culture have on parental experiences.

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Section: Discussionmentioning

confidence: 90%

Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review

Kruijsen-Terpstra

Ketelaar

Boeije

et al. 2013

Child

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“…; Darrah et al . ), full implementation of these concepts is difficult to achieve (Bailey et al . ).…”

Section: Introductionmentioning

confidence: 99%

Parents' perceptions of the services provided to children with cerebral palsy in the transition from preschool rehabilitation to school‐based services

Alsem

Verhoef

Gorter

et al. 2016

Child

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“…A stronger view of the hemodialysis unit as child-focused could be expanded to include that also of family-centred principles that includes collaboration, information-sharing and recognition and respect for the uniqueness of each family (Darrah, Wiart, Magill-Evans, Ray & Andersen, 2010). In their study that investigated the practices of family-centred service in pediatric rehabilitation programmes for children with cerebral palsy in Alberta, Canada, Darrah, et al (2010) found that although some programmes espoused a commitment to family-centred care, indicators of this approach and formal processes for its delivery often were deficient.…”

Section: Implications For Health Care Practices and Policymentioning

confidence: 99%

“…In their study that investigated the practices of family-centred service in pediatric rehabilitation programmes for children with cerebral palsy in Alberta, Canada, Darrah, et al (2010) found that although some programmes espoused a commitment to family-centred care, indicators of this approach and formal processes for its delivery often were deficient.…”

Section: Implications For Health Care Practices and Policymentioning

confidence: 99%

Doing ‘technological time’ in a pediatric hemodialysis unit: An ethnography of children

et al. 2014

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Are family‐centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy?

Cited by 66 publications

References 25 publications

Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review

Parents’ experiences with physical and occupational therapy for their young child with cerebral palsy: a mixed studies review

Parents' perceptions of the services provided to children with cerebral palsy in the transition from preschool rehabilitation to school‐based services

Doing ‘technological time’ in a pediatric hemodialysis unit: An ethnography of children

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