Arab American Women’s Lived Experience With Early-Stage Breast Cancer Diagnosis and Surgical Treatment

Obeidat, Rana; Lally, Robin M.; Dickerson, Suzanne S.

doi:10.1097/ncc.0b013e318231db09

Cited by 28 publications

(57 citation statements)

References 31 publications

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“…Living with and beyond cancer is an experience that disrupts implicit assumptions about life and forces people to reconstruct their perspectives on self and future . The disruption of living with and beyond cancer has been associated with both “relinquishing control” and “taking charge,” and while living with and beyond cancer is associated with loss and altered life, included studies also report positive changed attitudes and views of life after a cancer diagnosis . The thematic analysis of the 73 included studies of conceptualisations of living with and beyond cancer yielded three interlinked common themes on how people make sense of their cancer experience: Adversity (realising cancer), Restoration (readjusting life with cancer) and Compatibility (reconciling cancer), resulting in the overarching ARC framework.…”

Section: Resultsmentioning

confidence: 99%

Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis

et al. 2019

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Objective The concept of living with and beyond cancer is now emerging in policy and literature. Rather than viewing this notion simply as a linear timeline, developing an agreed understanding of the lived experience of people affected by cancer will aid the development of person‐centred models of care. Methods A systematic review was conducted. The review question was “What does the term ‘living with and beyond cancer’ mean to people affected by cancer?” The protocol for the review was preregistered in the PROSPERO database (PROSPERO CRD42017059860). All included studies were qualitative, so narrative synthesis was used to integrate descriptions and definitions of living with and beyond cancer into an empirically based conceptual framework. Results Out of 2345 papers that were identified and 180 that were reviewed, a total of 73 papers were included. The synthesis yielded three interlinked themes: Adversity (realising cancer), Restoration (readjusting life with cancer), and Compatibility (reconciling cancer), resulting in the ARC framework. Conclusions Three themes describe the experience of living with and beyond cancer: adversity, restoration, and compatibility. The ARC framework provides an empirically informed grounding for future research and practice in supportive cancer care for this population.

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Section: Resultsmentioning

confidence: 99%

Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis

et al. 2019

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“…Using religious practices and spirituality for coping with breast cancer and its treatment is also evident in other research (Al-Azri, Al-Awizi, Al-Rasbi, & Al-Moundhri, 2014;Finney et al, 2015;Lackey, Gates, & Brown, 2001;Lagman, Yoo, Levine, Donnell, & Lim, 2014;Obeidat, Lally, & Dickerson, 2012). Using religious practices and spirituality for coping with breast cancer and its treatment is also evident in other research (Al-Azri, Al-Awizi, Al-Rasbi, & Al-Moundhri, 2014;Finney et al, 2015;Lackey, Gates, & Brown, 2001;Lagman, Yoo, Levine, Donnell, & Lim, 2014;Obeidat, Lally, & Dickerson, 2012).…”

Section: Discussionmentioning

confidence: 68%

“…show that healthcare professionals should be attentive to immigrant women's views about religious matters. Using religious practices and spirituality for coping with breast cancer and its treatment is also evident in other research (Al-Azri, Al-Awizi, Al-Rasbi, & Al-Moundhri, 2014;Finney et al, 2015;Lackey, Gates, & Brown, 2001;Lagman, Yoo, Levine, Donnell, & Lim, 2014;Obeidat, Lally, & Dickerson, 2012). An inclusive and open approach by healthcare professionals would allow women to feel that their faith is also an essential part of managing their diagnosis and treatment.…”

Section: Discussionmentioning

confidence: 68%

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The narrow treatment road to survival: Everyday life perspectives of women with breast cancer from Iraq and the former Yugoslavia undergoing radiation therapy in Sweden

et al. 2018

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This study aimed at exploring how women from Iraq and the former Yugoslavia, diagnosed with breast cancer and living in Sweden, experience their everyday life during radiation therapy. A qualitative research design was used comprising interviews with ten women, five originating from Iraq and five from the former Yugoslavia. Striving to survive, the women experienced their everyday life during radiation therapy as extremely challenging. This experience can be placed into three categories: strategies for survival, keeping up appearances and staying in control. Because of these specific challenges, immigrant women may need additional information and guidance in conjunction with the diagnosis, which may enable them to identify possible sources of support from those closest to them. Also, greater attention should focus on acknowledging the woman behind the diagnosis, regardless of her origin, to develop an individualised support programme to help her cope with everyday life during radiation therapy.

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“…Previous qualitative studies exploring the experiences of women with breast cancer and belonging to an ethnic minority involved ten (Lagman et al, 2014;Obeidat et al, 2012) and 13 (Lackey et al, 2001) participants.…”

Section: Ofmentioning

confidence: 99%

On a journey for survival : everyday life during radiation therapy from the perspectives of women with breast cancer and their families

Holst-Hansson¹

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To everyone who has believed in me Vi människor är sociala varelser. Vi kommer till denna värld som ett resultat av andras handlingar. För vår överlevnad är vi ömsesidigt beroende av varandra. Vare sig vi vill eller inte finns det inte en enda stund i livet då vi inte drar nytta av sådant som andra har gjort eller gör. Det är därför knappast förvånande att det mesta av vår lycka uppstår i relationer med andra. Inte heller är det anmärkningsvärt om vår största glädje uppstår när vi motiveras av omsorg om andra. Men det är mera än så. Allt tyder på att altruistiska handlingar inte bara skapar lycka, utan att de också minskar vår upplevelse av lidande. Vårt beteende mot andra blir automatiskt positivt när vi handlar av omsorg mot dem. Det är för att vi inte har plats för några misstankar när hjärtat är fyllt av kärlek. Det är som en inre dörr öppnas och låter oss komma ut. ABSTRACTThis thesis focuses on women diagnosed with breast cancer and their family members. Since a breast cancer diagnosis and its subsequent treatment are a strenuous experience not only for the woman afflicted but also for her family members, this thesis aimed to explore the experiences of everyday life during radiation therapy from the perspectives of the woman with breast cancer and her family, as well as exploring families' experiences of participating in short family health conversations (SFamHC). All included studies were interview studies (Papers I, II, III & IV), where 30 women (20 in Paper I and 10 in Paper II) with breast cancer, 19 family members including the women with breast cancer (Paper III) and 9 families (Paper IV) were interviewed. The data from the interviews was analysed using qualitative content analysis (Papers I & II), a hermeneutical phenomenological method (Paper III) and thematic analysis (Paper IV).The women's experiences of breathing adapted radiation therapy (BART) (Paper I) were identified in an overall theme, The breath of life, as the women experienced the breathing as a way to influence their treatment and thus their survival. The overall theme could be divided into one main category: Participating in one's treatment, for good or ill, with four subcategories: Knowing one has done something good, Getting an extra bonushealthwise, The experience of being in control and Being in a hightechnology environment.Women born in Iraq and the former Yugoslavia, diagnosed with breast cancer and living in Sweden, experienced their everyday life during radiation therapy as a narrow and challenging treatment road to survival (Paper II). Their experiences were structured into three categories: Strategies for survival, Keeping up appearances and Staying in control. More focus should be on acknowledging the woman behind the diagnosis, regardless of her origin, in order to 10 develop individualised support programmes to help women cope with everyday life during radiation therapy.The families' lived experience when a family member is diagnosed with breast cancer (Paper III) was described as a challenging endeavour to regain an or...

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Arab American Women’s Lived Experience With Early-Stage Breast Cancer Diagnosis and Surgical Treatment

Cited by 28 publications

References 31 publications

Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis

Conceptual framework for living with and beyond cancer: A systematic review and narrative synthesis

The narrow treatment road to survival: Everyday life perspectives of women with breast cancer from Iraq and the former Yugoslavia undergoing radiation therapy in Sweden

On a journey for survival : everyday life during radiation therapy from the perspectives of women with breast cancer and their families

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