Approach of pulmonologists in Turkey to noninvasive mechanical ventilation use at home for chronic respiratory failure

A, Özsancak Uğurlu; H, Berk Takır; Ergan, Begüm; E, İn; Özyılmaz, Ezgi; Ö, Ertan Edipoğlu; Acartürk, Eylem; E, Güleç Balbay; A, Görek Dilektaşlı; Kıvanç, Tülay; P, Korkmaz Ekren; S, Sarınç Ulaşlı; Dogrul, Ilgaz; E, Yılmazel Uçar; Yıldızeli, Şehnaz Olgun; Devran, Özkan; Ergün, Recai; Karakurt, Zühal

doi:10.5578/tt.8651

Cited by 4 publications

(3 citation statements)

References 14 publications

(31 reference statements)

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“…These countries were, therefore, not included in figures 2 and 3 . By decreasing order of GDP per capita, middle and low-income countries developing HMV include Thailand, 30 China, 31 Brazil, 32 Iran, 33 South Africa, 34 Tunisia, 35 Malaysia, 36 Turkey, 37 Argentina, 38 Serbia, 39 India 40 and Pakistan. 41 …”

Section: Prevalencementioning

confidence: 99%

Building a home ventilation programme: population, equipment, delivery and cost

Toussaint

Wijkstra

McKim

et al. 2022

Thorax

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Home mechanical ventilation (HMV) improves quality of life and survival in patients with neuromuscular disorders (NMD). Developing countries may benefit from published evidence regarding the prevalence, cost of equipment, technical issues and organisation of HMV in NMD, facilitating the development of local turn-key HMV programmes. Unfortunately, such evidence is scattered in the existing literature. We searched Medline for publications in English and French from 2005 to 2020. This narrative review analyses 24 international programmes of HMV. The estimated prevalence (min–max) of HMV is ±7.3/100 000 population (1.2–47), all disorders combined. The prevalence of HMV is associated with the gross domestic product per capita in these 24 countries. The prevalence of NMD is about 30/100 000 population, of which ±10% would use HMV. Nocturnal (8/24 hour), discontinuous (8–16/24 hours) and continuous (>16/24 hours) ventilation is likely to concern about 60%, 20% and 20% of NMD patients using HMV. A minimal budget of about 168€/patient/year (504€/100 000 population), including the cost of equipment solely, should address the cost of HMV equipment in low-income countries. When services and maintenance are included, the budget can drastically increase up to between 3232 and 5760€/patient/year. Emerging programmes of HMV in developing countries reveal the positive impact of international cooperation. Today, at least 12 new middle, and low-income countries are developing HMV programmes. This review with updated data on prevalence, technical issues, cost of equipment and services for HMV should trigger objective dialogues between the stakeholders (patient associations, healthcare professionals and politicians); potentially leading to the production of workable strategies for the development of HMV in patients with NMD living in developing countries.

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Section: Prevalencementioning

confidence: 99%

Building a home ventilation programme: population, equipment, delivery and cost

Toussaint

Wijkstra

McKim

et al. 2022

Thorax

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“…Domiciliary NIV is used in the treatment of chronic diseases such as chronic obstructive pulmonary disease (COPD), obesity hypoventilation syndrome, neuromuscular diseases, and restrictive chest wall disorders [2]. In a study from Turkey, NIV's main indications were COPD (75%), OHS (10%) of COPD and OHS overlap (10%), and restrictive lung disorders (5%) [3].…”

Section: Introductionmentioning

confidence: 99%

Difficulties experienced by geriatric patients regarding respiratory devices and access to health services: A cross-sectional study

Çelik¹,

Bulut²

2021

Journal of Surgery and Medicine

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“…However, other LMICs made efforts to develop their local turn‐key HMV programs. These include Thailand, 5 China, 6 Brazil, 7 Iran, 8 South Africa, 9 Tunisia, 10 Malaysia, 11 Turkey, 12 Argentina, 13 Serbia, 14 India, 15 and Pakistan 16 . In addition, inspiring examples of international cooperation, such as between Serbia and France 17 and Chile and Germany, 18 suggest that HMV can develop in developing countries despite limited financial resources and inexperience regarding the use of HMV.…”

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confidence: 99%

Mechanical ventilation in Duchenne muscular dystrophy: A pilot project in Ukraine

Царенко

Trofimov²,

Shatillo

et al. 2022

Pediatrics International

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Background Home mechanical ventilation (HMV) prolongs survival in patients with Duchenne muscular dystrophy (DMD) until ±35 years of age. This study evaluates the implementation of a HMV pilot project in children with DMD in Ukraine. Methods Children with DMD were invited to Kirovograd Regional Children’s Clinical Hospital, Kropyvnytskyi, Ukraine, for 5 days’ training with non‐invasive ventilation. Donated equipment comprised second‐hand Covidien PB560 ventilators from Belgium. Due to the absence of carbon dioxide pressure and pulse oximetry monitoring, indications for HMV included sleep‐related symptoms, restrictive lung function test, loss of ambulation for more than 1 year, or age greater than 17 years. Master class lectures on HMV were conducted for Ukrainian doctors in conjunction with patient training. Results Twelve Ukrainian physicians took part in face‐to‐face master classes and 50 Ukrainian physicians participated in online master classes. Simultaneously, eight Duchenne inpatients, mean age 15.4 (SD: 1.8) years and body mass index 25.8 (SD: 4.0), were included in the study. All patients chose nasal masks and volume‐pressure‐assisted control mode. After 6 weeks, one patient stopped HMV, two others used HMV partially during sleep, and 5/8 used nocturnal HMV increasingly with few complaints. Follow up via phone call was organized after hospitalization. Conclusions Implementation of HMV is feasible in DMD inpatients in Ukraine. In the short term, the Ukrainian parliament should recognize official centers for HMV, and define the funding policy of equipment for HMV, and its maintenance. Local distributors should deliver equipment for HMV and devices for monitoring carbon dioxide pressure and pulse oximetry in specialized centers for HMV.

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Approach of pulmonologists in Turkey to noninvasive mechanical ventilation use at home for chronic respiratory failure

Cited by 4 publications

References 14 publications

Building a home ventilation programme: population, equipment, delivery and cost

Building a home ventilation programme: population, equipment, delivery and cost

Difficulties experienced by geriatric patients regarding respiratory devices and access to health services: A cross-sectional study

Mechanical ventilation in Duchenne muscular dystrophy: A pilot project in Ukraine

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