Applying the Self-determination Theory to Health-related Quality of Life for Adolescents with Congenital Heart Disease

Shackleford, Jenna; Kelley, Susan J.; Spratling, Regena

doi:10.1016/j.pedn.2019.02.037

Cited by 10 publications

(15 citation statements)

References 62 publications

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“…Self-Determination Theory, explains the results of this study (65), points out that people are willing to cultivate relationships with those who value their opinions and who are sensitive to their needs and wants (65), hinting that traditionalists are prone to experience decreased satisfaction of basic psychological needs rapidly (66) when they encounter negative external evaluation and stigmatization. This further results in reduced health-related and social-related quality of life (67). Influenced by Chinese cultural heritage, older adults with a high degree of traditionality often believe that younger individuals should show deference, be obedient, and be loyal to older groups (38).…”

Section: Traditionality Strengthened Moderated the Relationship Betwe...mentioning

confidence: 99%

Association Between Self-Perceived Stigma and Quality of Life Among Urban Chinese Older Adults: The Moderating Role of Attitude Toward Own Aging and Traditionality

Sun

Zhang

Yan

et al. 2022

Front. Public Health

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BackgroundAgeism is a global challenge, which leads to a range of adverse outcomes for elderly people worldwide, which maybe more severe among urban older adults in a competitive society. However, how self-perceived ageism influences the quality of life in a sample of urban older adults remains inconclusive.ObjectivesThe current study aims to assess the status of self-perceived stigma among urban Chinese older adults, identify its relationship with quality of life, and further explore whether both attitude toward own aging and traditionality moderate this relationship.Materials and MethodsPrimary data were collected through cross-sectional surveys among urban older adults in three provinces of China from October 2019 to December 2020. A total of 764 urban older adults were valid participants (effective response rate = 81.28%) and completed questionnaires via anonymous face-to-face interviews. Socio-demographic factors, self-perceived stigma, attitude toward own aging, traditionality, and quality of life were assessed using questionnaires that included the Self-perceived Stigma, Attitude Toward Own Aging, Traditionality, and SF-8 Scales.ResultsFor urban Chinese older adults, the average score of self-perceived stigma was 2.041 ± 0.726. Self-perceived stigma (β = −0.391, p < 0.05) and attitude toward own aging (β = −0.211, p < 0.05) both influenced quality of life. Additionally, attitude toward own aging (β = −0.530, p < 0.05) and traditionality (β = −0.525, p < 0.05) moderated the association between self-perceived stigma and quality of life. Simple slope analysis revealed that when the level of negative attitude toward own aging and traditionality was higher, the strength of the influence of self-perceived stigma on quality of life was stronger.ConclusionUrban Chinese older adults were aware of the self-perceived stigma, which contributes to decreased quality of life. Attitude toward own aging and traditionality could moderate the association between self-perceived stigma and quality of life. When negative attitudes toward own aging and traditionality are higher, self-perceived stigma has a greater effect on the quality of life. More interventions related to relieving self-perceived stigma, traditionality, and negative attitude toward own aging should be considered to build a new modern society that emphasizes health, friendliness, well-being, and dignity for all ages.

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Section: Traditionality Strengthened Moderated the Relationship Betwe...mentioning

confidence: 99%

Association Between Self-Perceived Stigma and Quality of Life Among Urban Chinese Older Adults: The Moderating Role of Attitude Toward Own Aging and Traditionality

Sun

Zhang

Yan

et al. 2022

Front. Public Health

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“…Although a number of studies have been completed considering health-related quality of life in parents of children with CHD, these have usually focused on older children > 5 years. 44,45 Denniss et al recently completed a cross-sectional study assessing health-related quality of life in families with infants or young children with CHD, with the aim of identifying factors that place mothers at greater risk of vulnerability. Lower child health-related quality of life was associated with children who had single ventricles, other physical comorbidity, feeding difficulties, and greater levels of maternal psychological stress; in contrast, maternal health-related quality of life was strongly associated with poorer family functioning, greater maternal psychological stress, difficult child temperament, and child physical comorbidity.…”

Section: Discussionmentioning

confidence: 99%

Development of feeding information for infants with CHD

et al. 2019

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Introduction:Infants with CHD often experience growth failure. Ensuring optimal growth before surgery is associated with improved outcomes and has emerged as a significant cause of parental stress. Parents have reported a perceived lack of accessible feeding information for infants with CHD. To address this gap, the aim of this study was to develop feeding information to better support parents.Materials and methods:A search for existing material on six electronic databases and an internet search for unpublished (grey) literature on feeding information for infants with CHD were carried out. Following the development of feeding information, semi-structured interview(s) with parents/health-care professionals were completed, focusing on whether the information was easy to understand, relevant, provided sufficient information around feeding/feeding difficulties, and whether there were any information gaps. Iterative changes were made to the information following each interview. The process was completed until thematic saturation was achieved.Results:A total of 23 unique articles were identified of which 5 studies were included. From the grey literature, four web pages were reviewed. A total of 22 parents and 25 health-care professionals were interviewed. All parents/health-care professionals felt that the feeding information developed provided sufficient information; however, many wanted information on how to introduce complementary food, particularly if weaning was delayed.Conclusions:This study describes the development of feeding information for infants with CHD. From parent interviews, gaps identified focused on the introduction of complementary foods and uncertainty regarding the feeding journey beyond surgery.

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“…culture, age range, and living arrangement (residential or nursing homes)] and in the measurements of the three psychological needs and well-being indicators. Furthermore, we could not locate studies that looked at the associations between the three psychological needs and HRQOL among older people, although two studies reported the three psychological needs as determinants of HRQOL among adolescents (Shackleford, Kelley, & Spratling, 2019) and haemodialysis patients (Chen, Chang, Tsai, & Hou, 2018). There is a dearth of studies to test the application of SDT to well-being among older people in China.…”

Section: What This Paper Addsmentioning

confidence: 99%

The associations between psychological needs, health‐related quality of life and subjective well‐being among Chinese older people: A cross‐sectional study

Fong

Lau

et al. 2020

Health Social Care Comm

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The present study investigated the associations between the three psychological needs (autonomy, competence and relatedness) derived from the Self-determination Theory and well-being [health-related quality of life (HRQOL) and subjective wellbeing (SWB)] among older people in Hong Kong SAR, China. A cross-sectional study was conducted from May to August 2018 in Hong Kong. A total of 230 participants aged 60-year-old or above were recruited from eight community service centres.Results from adjusted regression analysis showed that, among the three psychological needs, competence and relatedness were positively associated with SWB, while relatedness was positively associated with physical health domain of HRQOL. The three psychological needs had no significant associations with mental health domain of HRQOL. Interventions to improve HRQOL and SWB should promote older people's sense of competence and relatedness. Longitudinal studies are warranted to clarify the causal relationships and look at other physical, mental and social health outcomes.

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Applying the Self-determination Theory to Health-related Quality of Life for Adolescents with Congenital Heart Disease

Cited by 10 publications

References 62 publications

Association Between Self-Perceived Stigma and Quality of Life Among Urban Chinese Older Adults: The Moderating Role of Attitude Toward Own Aging and Traditionality

Association Between Self-Perceived Stigma and Quality of Life Among Urban Chinese Older Adults: The Moderating Role of Attitude Toward Own Aging and Traditionality

Development of feeding information for infants with CHD

The associations between psychological needs, health‐related quality of life and subjective well‐being among Chinese older people: A cross‐sectional study

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