Application of the World Café to Disability Issues: A Systematic Review

Bumble, Jennifer L.; Carter, Erik W.

doi:10.1177/1044207320949962

Cited by 17 publications

(15 citation statements)

References 26 publications

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“…World Cafés are a flexible participatory method that have been used widely to explore issues that are important to communities [ 11 ] and are an inclusive tool to engage with diverse communities [ 12 ]. Central to the approach is fostering an environment where communities involved can have “conversations that matter”, through creating an environment where people can communicate constructively, enabling access to “collective intelligence and creating innovative possibilities for action” (p. 3) [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned

McGrath,

Kennedy,

Gibson

et al. 2023

Res Involv Engagem

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Background Certain communities are underserved by research, resulting in lower inclusion rates, under researched health issues and a lack of attention to how different communities respond to health interventions. Minoritised ethnic groups are often underserved by research and services. They experience health inequalities and face significant barriers to accessing health services. It is recognised that new approaches are needed to reach underserved communities and make research more relevant. The purpose of this work was to utilise World Cafés, a participatory method, to explore research agendas with diverse communities. Methods Two World Cafés were conducted as research agenda setting activities with individuals from minoritised ethnic communities in Bristol, UK. World Café 1 explored Black and Asian women’s perspectives about supporting mental health. World Café 2 with men from the Somali community, focused on prostate cancer. Community members co-developed the focus and questions of each World Café and were also instrumental in recruiting individuals to the sessions and facilitating discussions, including translation. Audio and written records were made of the discussions and from these key issues about each topic were identified, and a visual representation of the discussion was also generated. These were shared with participants to check for accuracy. Results Community members identified a range of issues that are important to them in relation to mental health and prostate cancer, including barriers to help seeking and accessing primary and secondary care, ideas for service improvements and a need for health information that is accessible and culturally relevant. Conclusions World Cafés are a flexible method that can be successfully adapted for research agenda setting with individuals from minoritised ethnic communities. The role of community members in co-developing the focus of sessions, recruiting community members and co-facilitating sessions is crucial to this success. The discussions at both World Cafés provided a rich insight into the experiences of participants in relation to the topics mental health and prostate cancer and identified issues that are important to these communities that will be followed-up with communities, researchers and clinicians to co-develop research and service improvement strategies.

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Section: Introductionmentioning

confidence: 99%

World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned

McGrath,

Kennedy,

Gibson

et al. 2023

Res Involv Engagem

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“…This theme informs our efforts to expand and sustain engagement with stakeholder groups. Our face-to-face meetings broadly reflected a useful structure for facilitating engagement called community conversations ( 33 , 34 ). We found that the structured but flexible approach of bringing diverse groups of stakeholders together and engaging them in complex topics involving local and systemic factors was a highly productive process.…”

Section: Discussionmentioning

confidence: 99%

Community Conversations: Stakeholder-Identified Research Priorities to Foster Community Participation for Individuals With Intellectual and Developmental Disability

Bendixen¹,

Benevides²,

Ideishi³

et al. 2022

Front. Rehabilit. Sci.

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To identify future research priorities and meaningful outcomes focused on community-level interventions for children and youth with intellectual and developmental disabilities and families, a group underrepresented in research, we established a diverse patient-centered outcomes research (PCOR) community. We focused on engaging regionally and nationally-diverse stakeholders—individuals, families, healthcare professionals, community, and policy experts—in research development activities that would build partnerships and research capacity. This community of stakeholders also represented the matrix of systems, services, and programs that people frequent in their communities (e.g., cultural arts, worship, sports and recreation, and transportation). We present the engagement process and methods for including individuals with intellectual and developmental disabilities as stakeholders in research planning and processes. The results of planning, completing, and evaluating three face-to-face research capacity-building meetings and their subsequent stakeholder engagement activities include: (1) individuals with intellectual and developmental disabilities and their families clearly expressed a desire to be included and to feel good about their participation in community settings, (2) many of our stakeholders wanted action and change to happen in their communities now, and often did not realize or understand that research takes time, (3) organizations expressed a need for mentoring related to best practices for access and inclusive programming. Overarching issues around societal inclusion, equal opportunities, and life chances for individuals with intellectual and developmental disabilities and their families were front and center across communities and multi-stakeholder groups, and achieving change remains valued and a high priority.

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“…Best practices in self-direction: what we've learned Using a World Caf e format (Bumble and Carter, 2020), Match participants came to consensus on best practices to ensure self-direction is implemented effectively and in alignment with the values of self-determination and social justice. These best practices, described below, are implemented to varying degrees across the world.…”

Section: Experiences Of People Who Self-directmentioning

confidence: 99%

International advances in self-direction: themes from a disability leadership exchange

Bradley

Kwak

Rich³

et al. 2021

JICA

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PurposeSelf-direction–also known as participant direction, personalization and self-directed care–is a service delivery model that enables people to manage their personal budget and purchase services and supports tailored to their needs based on a person-centered plan. This paper, the outcome of an international learning exchange on self-direction, describes approaches across four countries’ successful strategies, unresolved questions and recommendations to enhance self-direction globally.Design/methodology/approachThe findings are a product of discussions at the 2019 International Initiative for Mental Health Leadership and International Initiative for Disability Leadership Exchange on Advances in Self-Direction. Participants included people who are self-directing, providers and caregivers who support people who are self-directing, advocates, fiscal agents and public managers who administer self-direction from the United States, England, Australia and New Zealand.FindingsIn all four countries, people who self-direct exercise high levels of choice and control and are able to individualize their services and supports to promote a good life in the community. The exchange also revealed challenges and possible solutions to improve and expand self-direction.Practical implicationsThe results of the meeting provide guidance for public managers, providers and advocates for initiating and expanding self-direction.Originality/valueThis international meeting was a unique opportunity to compare self-direction across four different countries and across multiple perspectives, including people with disabilities, caregivers, providers and administrators.

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Application of the World Café to Disability Issues: A Systematic Review

Cited by 17 publications

References 26 publications

World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned

World Cafés as a participatory approach to understanding research agendas in primary care with underserved communities: reflections, challenges and lessons learned

Community Conversations: Stakeholder-Identified Research Priorities to Foster Community Participation for Individuals With Intellectual and Developmental Disability

International advances in self-direction: themes from a disability leadership exchange

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