App Chronic Disease Checklist: Protocol to Evaluate Mobile Apps for Chronic Disease Self-Management

Anderson, Kevin; Burford, Oksana; Emmerton, Lynne

doi:10.2196/resprot.6194

Cited by 64 publications

(54 citation statements)

References 44 publications

(74 reference statements)

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“…We compiled a list of all apps that participants had reported using in Study 2, combined with additional Google Play and Apple App Store self-management apps related to ME/CFS disease symptoms. We then applied the PRISMA protocol [5] for shortlisting apps for evaluation. This comprised: filtering of duplicate apps; eliminating non-English apps; removing apps requiring purchase and those not updated within the past year; and separation of apps into their core functionality (e.g.…”

Section: Study 3 -User Studymentioning

confidence: 99%

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Davies

Jones

Kelly

2019

Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

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Chronic Fatigue Syndrome (CFS) is a debilitating medical condition that is characterized by a range of physical, cognitive and social impairments. This paper investigates CFS patients' perspectives on the potential for technological support for self-management of their symptoms. We report findings from three studies in which people living with CFS 1) prioritized symptoms that they would like technologies to address, 2) articulated their current approaches to self-management alongside challenges they face, and 3) reflected on their experiences with three commercial smartphone apps related to symptom management. We contribute an understanding of the specific needs of the ME/CFS population and the ways in which they currently engage in self-management using technology. The paper ends by describing five high-level design recommendations for ME/CFS self-management technologies. CCS CONCEPTS • Human-centered computing → Empirical studies in HCI .

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Section: Study 3 -User Studymentioning

confidence: 99%

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Davies

Jones

Kelly

2019

Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

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“…Apps that provide early detection of clinical deterioration can enable personalised adjustment to treatment plans and improve health [23,24]. Other examples of environmental digital health tools include the mining of social media data to identify smoke affected areas [25], and using crowd-sourced symptom data for the surveillance of influenza-like illness [26].…”

Section: Introduction and Purposementioning

confidence: 99%

Using smartphone technology to reduce health impacts from atmospheric environmental hazards

Johnston

Wheeler

Williamson

et al. 2018

Environ. Res. Lett.

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Background: Global environmental change is exacerbating human vulnerability to adverse atmospheric conditions including air pollution, aeroallergens such as pollen, and extreme weather events. Public information and advisories are a central component of responses to mitigate the human impacts of environmental hazards. Digital technologies are emerging as a means of providing personalised, timely and accessible warnings.Method: We describe AirRater, an integrated online platform that combines symptom surveillance, environmental monitoring, and notifications of changing environmental conditions via a free smartphone app. It was developed and launched in Tasmania, Australia (population 510 000), with the aim of reducing health impacts and improving quality of life in people with conditions such as asthma and allergic rhinitis. We present environmental data, user uptake and results from three online evaluation surveys conducted during the first 22 months of operation, from October 2015 through August 2017.Results: There were 3,443 downloads of the app from all regions of Tasmania. Of the 1,959 individuals who registered, 79% reported having either asthma or allergic rhinitis. Downloads increased during adverse environmental conditions and following publicity. Symptom reports per active user were highest during spring (72%), lowest in autumn (37%) and spiked during periods of reduced air quality. In response to online surveys, most users reported that the app was useful and had improved their understanding of how environmental conditions affect their health, and in some cases had prompted action such as the timely use of medication.Conclusion: Active engagement and consistent positive feedback from users demonstrates the potential for considerable individual, clinical and wider public health benefits from integrated and personalised monitoring systems such as AirRater. The perceived health benefits require objective verification, and such systems need to address several challenges in providing timely, reliable and valid environmental data.

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“…Mobile apps can also provide information and integrate health care tasks [ 14 ]. Therefore, self-management tools provided by mobile apps could help meet the requirements of young people with Juvenile Arthritis and those involved in their care [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

Young People’s, Parents’, and Professionals’ Views on Required Components of Mobile Apps to Support Self-Management of Juvenile Arthritis: Qualitative Study

Waite-Jones¹,

Majeed‐Ariss²,

Smith³

et al. 2018

JMIR Mhealth Uhealth

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BackgroundThere is growing evidence that supporting self-management of Juvenile Arthritis can benefit both patients and professionals. Young people with Juvenile Arthritis and their healthy peers increasingly use mobile technologies to access information and support in day-to-day life. Therefore, a user-led, rigorously developed and evaluated mobile app could be valuable for facilitating young people’s self-management of Juvenile Arthritis.ObjectiveThe objective of this study was to seek the views of young people with Juvenile Arthritis, their parents or carers, and health care professionals (HCPs) as to what should be included in a mobile app to facilitate young people’s self-management of chronic Juvenile Arthritis.MethodsA qualitative approach was adopted with a purposeful sample of 9 young people aged 10-18 years with Juvenile Arthritis, 8 parents or carers, and 8 HCPs involved in their care. Data were gathered through semi-structured focus group and individual interviews with young people and their parents or carers and HCPs. Interview discussion was facilitated through demonstration of four existing health apps to explore participants’ views on strengths and limitations of these, barriers and facilitators to mobile app use, preferred designs, functionality, levels of interaction, and data sharing arrangements. Data were analyzed using the framework approach.ResultsAnalysis revealed three interlinked, overarching themes: (1) purpose, (2) components and content, and (3) social support. Despite some differences in emphasis on essential content, general agreement was found between young people with Juvenile Arthritis their parents or carers, and professionals that a mobile app to aid self-management would be useful. Underpinning the themes was a prerequisite that young people are enabled to feel a sense of ownership and control of the app, and that it be an interactive, engaging resource that offers developmentally appropriate information and reminders, as well as enabling them to monitor their symptoms and access social support.ConclusionsFindings justify and pave the way for a future feasibility study into the production and preliminary testing of such an app. This would consider issues such as compatibility with existing technologies, costs, age, and cross-gender appeal as well as resource implications.

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App Chronic Disease Checklist: Protocol to Evaluate Mobile Apps for Chronic Disease Self-Management

Cited by 64 publications

References 44 publications

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Using smartphone technology to reduce health impacts from atmospheric environmental hazards

Young People’s, Parents’, and Professionals’ Views on Required Components of Mobile Apps to Support Self-Management of Juvenile Arthritis: Qualitative Study

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