Anxious attachment style and hopelessness as predictors of burden in caregivers of patients with disorders of consciousness: A pilot study

Romaniello, Caterina; Farinelli, Marina; Matera, Nunzio; Bertoletti, Erik; Pedone, Vincenzo; Northoff, Georg

doi:10.3109/02699052.2014.989402

Cited by 24 publications

(21 citation statements)

References 87 publications

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“…These results suggest to carefully evaluate caregivers' burden to properly answer to caregivers' needs, especially in case of need for information and communication (13). In this regard, a recent study demonstrated that preoccupied attachment style and hopelessness together play a relevant role in predicting burden variability (14).…”

Section: Introductionmentioning

confidence: 99%

Caregivers of patients with disorder of consciousness: burden, quality of life and social support

et al. 2015

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Study results provided innovative information about caregivers' poor QoL, difficulties in social support and high levels of burden. Time dedicated to care is not strictly related to burden, while social support perceived is highly associated with caregivers' depressive symptoms that are strong predictor of poor QoL. Supportive intervention able to integrate psychological, social and environmental levels is needed.

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Section: Introductionmentioning

confidence: 99%

Caregivers of patients with disorder of consciousness: burden, quality of life and social support

et al. 2015

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“…Of course, this issue did not disappoint them completely and the caregivers often experienced a fluctuation of hope. 53 …”

Section: Discussionmentioning

confidence: 99%

The Resilient Care of Patients with Vegetative State at Home: a Grounded Theory

et al. 2018

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Introduction: The care of patients in vegetative state at home is difficult because they need continuous medical interventions and extensive care. The present study aims to explain the process of home care of patients in vegetative state at home. Methods: This study was a qualitative research with a grounded theory approach. The participants were 22 people (included 17 family caregivers and 5 professional caregivers) who were enrolled in a purposive sampling. Data was gathered through unstructured interviews, observations and field notes. Data collection was continued to saturation. Data analysis was performed through the Strauss and Corbin 1998 approach. The MAXQDA10 software was used to facilitate data analysis. Results: The data analysis led to emerge four main concepts included "erosive care", "erosive expenditures", "seeking solver education" and "lasting hope" as the axes of the study. Participants' experiences showed that the main concern of family caregivers of vegetative patients was "playing an inevitable role in care", in which they did not hesitate to make any effort, and they tolerated all the problems and issues. Therefore, "resilient care" was extracted as the underlying idea of this study. Conclusion: The process of resilient care of vegetative patients at home showed planning by policy makers in health system is very important and underscored the necessity for supporting families and family caregivers of these patients. So some changes in the health system for this goal might include considering home care and supporting them in various aspects, especially information, financial and emotional dimensions.

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“…Moules and Chandler found that the relative's psychological distress was associated with the level of needs' satisfaction [7]. A recent study on the caregivers of patients with disorders of consciousness found that the combination of a preoccupied attachment style and a high degree of hopelessness predicted 49% of the total variability of burden [31]. In our study, the presence of anxiety and depressed feelings also seems to be related to the degree of needs' satisfaction, as the relatives with lower quality of life were also the ones with a higher percentage of unmet needs.…”

Section: Discussionmentioning

confidence: 99%

Assessment of needs, psychological impact and quality of life in families of patients with locked-in syndrome

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Pellas

Blandin³

et al. 2017

Brain Injury

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Anxious attachment style and hopelessness as predictors of burden in caregivers of patients with disorders of consciousness: A pilot study

Abstract: These data suggest that caregivers need psychological assessment and support in order to keep under control the level of burden and to help themselves be a better resource for their relatives.

Cited by 24 publications

References 87 publications

Caregivers of patients with disorder of consciousness: burden, quality of life and social support

Caregivers of patients with disorder of consciousness: burden, quality of life and social support

The Resilient Care of Patients with Vegetative State at Home: a Grounded Theory

Assessment of needs, psychological impact and quality of life in families of patients with locked-in syndrome

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