Anticipated stigma and associated factors among chronic illness patients in Amhara Region Referral Hospitals, Ethiopia: A multicenter cross-sectional study

Salih, Mohammed Hassen; Mekonnen, Hussen; Derseh, Lema; Lindgren, Helena; Erlandsson, Kerstin

doi:10.1371/journal.pone.0273734

Cited by 2 publications

(2 citation statements)

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“…The fear of stigmatization could result in less social engagement and therefore, even intensify pain. This is important to consider as socio-cultural stigma in light of chronic illness can have a severely negative impact on a person’s health with an increased risk of morbidity and mortality [ 62 ].…”

Section: Discussionmentioning

confidence: 99%

“I could not bear it”: Perceptions of chronic pain among Somali pastoralists in Ethiopia. A qualitative study

Baum,

Abdi,

Probst-Hensch

et al. 2023

PLoS ONE

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Background Pain is a major public health problem in the Global South, particularly among marginalized communities, such as Somali pastoralists. Yet, the topic of chronic pain has not yet been comprehensively studied in Sub-Saharan Africa, specifically in the Somali region of Ethiopia. Therefore, this study aims to explore the perceptions and notions of chronic pain among Somali pastoralists in this context. Methods This study used an explorative qualitative design. We performed semi-structured, face-to-face interviews with 20 purposively selected female and male Somali pastoralists with chronic pain. For data analysis, we applied the Framework Method by Gale et al. and explained patterns drawing on the Enactive Approach to Pain proposed by Stilwell and Harman. Findings Six different themes emerged: (1) “Pain as a symptom of harsh daily life”, (2) “Pain descriptions and dimensions”, (3) “Temporality of pain”, (4) “Pain-related stigma and stoicism” (5) “Mediating role of spirituality”, and (6) “Impact of pain on daily life activities”. Conclusions Somali pastoralists described their chronic pain as a multicausal and relational experience. Pastoralists (especially women) commonly refrained from communicating their pain and represented aspects of social stigma and stoicism. The mediating role of spirituality aided pastoralists to make sense of their pain and to ease its impact on their harsh daily life. The findings of this study can contribute to raise awareness of chronic pain issues among pastoralists. They highlight the need for policymakers to prioritize the improvement of pastoralist-specific pain management. Necessary resources and skills should be available within health care facilities. Pain management should be accessible, affordable and culturally acceptable for this population.

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Section: Discussionmentioning

confidence: 99%

“I could not bear it”: Perceptions of chronic pain among Somali pastoralists in Ethiopia. A qualitative study

Baum,

Abdi,

Probst-Hensch

et al. 2023

PLoS ONE

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“…Different types of stigma are indirectly correlated with quality of life (15,16). As it hinders access to services, increases harmful coping strategies (like cigarette smoking and alcohol consumption), and declines support-seeking behavior and disclosure or treatment adherence, it is socially and economically restricting and negatively affects the participation and decision-making of a patient (17)(18)(19)(20).…”

Section: Introductionmentioning

confidence: 99%

Living with Stigmatized Identity: An Interpretative Phenomenological Analysis of the Lived Experiences of patients with Chronic Illness in Ethiopia

Hassen

Mekonnen

Derseh

et al. 2023

Preprint

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Introduction: - Anticipated stigma or the fear of future prejudice, discrimination, and stereotyping is a bad experience that harms the mental and physical well-being of individuals with chronic illnesses. Exploring the lived experiences of anticipated stigma is crucial for enhancing the standard of care for all patients, especially in countries with few resources. With this context, the goal of this study was to explore the experiences of chronic illness patients who attended follow-up clinics in the Amhara Region Referral Hospitals in Ethiopia. Methods: Twelve participants with chronic illnesses were interviewed using semi-structured questions after being purposefully chosen from the University of Gondar Specialized Hospital and Felege Hiwot Specialized Hospital. The data were analyzed using an interpretative phenomenological inductive approach. Results: - The overarching category was "Living with stigmatized identities." The three main themes identified were chronic illness, altered self, and suggested solutions to handle disease-related consequences and the disease outcome. Behavioral changes, discrimination, health service-related factors, stigma, solutions, and signs of the disease outcome were the six superordinate themes. Conclusion: - Our conclusion that a stigmatized identity incorporates significant experiences related to chronic illnesses and an altered self leads us to recommend solutions that address both the disease's symptoms and its side effects. Reorganizing chronic care systems, using evidence-based protocols, improving patient education about opportunities and challenges, expanding access to senior chronic care experts, such as chronic care nurses, and expanding the availability of clinical management at the closest healthcare facility are among the interventions that are effective in improving outcomes in this group of patients.

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Anticipated stigma and associated factors among chronic illness patients in Amhara Region Referral Hospitals, Ethiopia: A multicenter cross-sectional study

Cited by 2 publications

References 56 publications

“I could not bear it”: Perceptions of chronic pain among Somali pastoralists in Ethiopia. A qualitative study

“I could not bear it”: Perceptions of chronic pain among Somali pastoralists in Ethiopia. A qualitative study

Living with Stigmatized Identity: An Interpretative Phenomenological Analysis of the Lived Experiences of patients with Chronic Illness in Ethiopia

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