An online non-meditative mindfulness intervention for people with ALS and their caregivers: a randomized controlled trial

Pagnini, Francesco; Phillips, Deborah; Haulman, Anne; Bankert, Matthew; Simmons, Zachary; Langer, Ellen J.

doi:10.1080/21678421.2021.1928707

Cited by 23 publications

(37 citation statements)

References 29 publications

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“…This suggests that the skills acquired during a short three-week online intervention can be transferred to some extent to everyday life. Despite the lack of quantitative changes, the subjective reports seem in line with the results obtained with a similar intervention on people with ALS (Pagnini et al, 2021).…”

Section: Discussionsupporting

confidence: 82%

“…The mindfulness group reported higher quality of life and lower levels of negative emotions, anxiety, and depressive symptoms compared to a waitlist control. Similarly, the caregivers reported lower levels of care burden, depression, and anxiety, and improved well-being and social functioning (Pagnini et al, 2021). Most differences remained stable over time, indicating a sustained effect of the mindfulness intervention, at least short-term.…”

Section: Introductionmentioning

confidence: 79%

“…The intervention was accessible via a computer or a smartphone and was hosted on the USC Biokinesiology and Physical Therapy continuing education platform Desire2learn (D2L, Kitchner, Canada). The content was adapted from an intervention for individuals with ALS and caregivers (Pagnini et al, 2021) by experienced clinicians, stroke rehabilitation researchers, stroke survivors, and mindfulness experts. Strokespecific exercises were incorporated to ensure relevance for stroke survivors and caregivers.…”

Section: Interventionmentioning

confidence: 99%

“…Our research team adapted the mindfulness intervention initially developed for individuals with ALS (Pagnini et al, 2021) with the aim to increase stroke survivors' and caregivers' mindfulness and improve psychological state. The Desire2Learn platform (D2L, Kitchner, Canada) was used to deliver the intervention, a platform used for higher education, but not adapted for clinical populations.…”

Section: Insert_table_1_near_herementioning

confidence: 99%

“…One example is an online Langerian mindfulness intervention for individuals with amyotrophic lateral sclerosis (ALS) and their caregivers. The mindfulness group reported higher quality of life and lower levels of negative emotions, anxiety, and depressive symptoms, and for caregivers, lower levels of care burden compared to a waitlist control (Pagnini et al, 2021). Most differences remained stable over time, indicating a sustained effect of the mindfulness intervention, at least short-term.…”

Section: Introductionmentioning

confidence: 98%

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Feasibility of an online Langerian mindfulness program for stroke survivors and caregivers

Demers

Pagnini

Phillips

et al. 2021

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Background: Mindfulness is promising for individuals with neurological disorders and caregivers to improve psychological well-being. The potential application of a Langerian mindfulness intervention, focused on the attention to symptom variability, however, is still unknown. Objective: To determine the usability and satisfaction towards an online mindfulness intervention for stroke survivors and caregivers, and the potential effectiveness on psychological well-being. Methodology: Using a mixed-methods design, 11 stroke survivors and 3 caregivers participated in a three-week, online, Langerian mindfulness intervention promoting attention to variability. A semi-structured interview assessed the intervention's usability and gathered feedback. Self-reported measures about psychological well-being were documented remotely three times (pre, post, one-month). Results: Participants were highly satisfied with the intervention. None of the outcome measures changed over time, yet participants reported subjective benefits. Conclusion: Valuable insights were gained from a small sample of stroke survivors and caregivers for the development of a user-friendly and relevant online mindfulness intervention.

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Section: Discussionsupporting

confidence: 82%

Section: Introductionmentioning

confidence: 79%

Section: Interventionmentioning

confidence: 99%

Section: Insert_table_1_near_herementioning

confidence: 99%

Section: Introductionmentioning

confidence: 98%

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