BackgroundAmelogenesis Imperfecta (AI) can be challenging to manage, due to the complexity and variation of presentation. Clear care pathways between general practice, specialist Paediatric Dentistry and adult services are required.
AimTo assess the provision of specialist care and transitional care arrangements for paediatric patients with AI in the UK.
MethodAn online survey was disseminated to members of the British Society of Paediatric Dentistry in January 2020. Descriptive analysis was used to interpret the quantitative and qualitative results.
Results• 115 clinicians across all four nations participated.• Most respondents (54% n=66), were based in the Hospital Dental Service.• Overall, 29% (n=33) were Consultants and 24% (n=28) Specialists in Paediatric Dentistry.• The most common patient age group seen was 6-12 years-old.• No clear AI referral pathway into specialist care was reported by 49% (n=47).• A clear transitional care pathway was deemed not to exist by 77% (n=72), with 85.9% (n=73) indicating a need. • Qualitative analysis themes included: 'Unclear care pathways,' and 'Specialist care access problems.'
ConclusionAccess to specialist paediatric dental care and transition to adult services is not readily available throughout the UK for AI patients. There is a clear need to establish and improve existing pathways.
Research in Brief• Access to specialist paediatric dental care and transition to adult services is not readily available nationally for AI paediatric patients.• There is a need for to establish and improve care pathways for paediatric AI patients throughout the UK.• There is enthusiasm in the UK Paediatric Dentistry workforce for improvement to AI care pathways to be made. Education, addressing workforce shortages and refining pathways are areas that require further development