An investigation of the factor structure of a German version of the Eating Disorder Symptom Impact Scale (EDSIS) among parents of adolescents and young adults with anorexia nervosa

Zeiler, Michael D.; Truttmann, Stefanie; Philipp, Julia; Kahlenberg, Leonie; Wittek, Tanja; Franta, Claudia; Schneider, Andrea; Imgart, Hartmut; Zanko, Annika; Karwautz, Andreas; Wagner, Gudrun

doi:10.1016/j.eatbeh.2022.101695

Cited by 2 publications

(3 citation statements)

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“…Eating disorder related burden was measured with the Eating Disorder Symptom Impact Scale, EDSIS [ 36 , 37 ] which assesses the parental burden related to the child’s eating disorder (mealtime difficulties, illness awareness, feelings of guilt, social isolation, burden related to the child’s confrontational and binge-purging behavior). The total score ( α = 0.86; higher scores indicating higher general eating disorder related burden) and subscale scores (0.70 ≤ α ≤ 0.86) indicating burden in specific areas were used in the present study.…”

Section: Methodsmentioning

confidence: 99%

Fathers in the spotlight: parental burden and the effectiveness of a parental skills training for anorexia nervosa in mother–father dyads

Zeiler,

Philipp,

Truttmann

et al. 2023

Eat Weight Disord

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Purpose Research on the engagement of fathers in the treatment of childhood psychiatric disorders is scarce. This study aims to investigate differences between mothers and fathers of adolescents with anorexia nervosa regarding parental burden and effectiveness of a parental skills training. Methods Ninety-one mother–father dyads caring for a child with anorexia nervosa participated in an 8-week parental skills training and completed a set of questionnaires assessing parental psychopathology, eating disorder related burden, caregiver skills and expressed emotion at baseline and post-intervention. Results Fathers showed lower levels of general psychological distress, depression, anxiety and eating disorder related burden as well as lower emotional overinvolvement compared to mothers. The skills training was effective in reducing parental psychopathology, eating disorder-related burden and emotional overinvolvement as well as in increasing caregiver skills with no differences between mothers and fathers. However, session adherence and the willingness to practice skills between the sessions were slightly lower in fathers. Conclusions These findings show that fathers are a great resource for the child’s eating disorder treatment as they may counterbalance maternal emotional overinvolvement and over-protection. Furthermore, this is the first study demonstrating that fathers can profit from a parental skills training for anorexia nervosa in a similar way as mothers. Level III Evidence obtained from well-designed cohort or case–control analytic studies.

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Section: Methodsmentioning

confidence: 99%

Fathers in the spotlight: parental burden and the effectiveness of a parental skills training for anorexia nervosa in mother–father dyads

Zeiler,

Philipp,

Truttmann

et al. 2023

Eat Weight Disord

Self Cite

View full text Add to dashboard Cite

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“…We further assessed the eating disorder specific burden for parents using the Eating Disorder Symptom Impact Scale (EDSIS, Sepulveda et al., 2008, the German version used in this study is equivalent to the version published by Zeiler et al., 2023). This questionnaire measures the impact of the child's eating disorder by asking about difficulties related to family meals, feelings of guilt, the patient's dysregulated and binge/purge behaviour and social isolation.…”

Section: Methodsmentioning

confidence: 99%

“…The level of perceived caregiver skills was obtained by the Caregiver Skills Scale (CASK, Hibbs et al., 2015; the German version used in this study is equivalent to the version published by Zeiler et al., 2023). This instrument measures self‐rated skills with regard to caring for a person with an eating disorder and includes managing negative emotion, frustration tolerance, self‐care behaviour and avoiding nagging conversations).…”

Section: Methodsmentioning

confidence: 99%

Psychological distress and caregiving experience during the first two years of the COVID‐19 pandemic among parents of an offspring with anorexia nervosa

Zeiler

Schneider

Philipp

et al. 2023

Euro Eating Disorders Rev

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Objective To compare different aspects of caregiving distress and experience in parents of patients with anorexia nervosa (AN) before and during the COVID‐19 pandemic. Methods Three cohorts of parents of AN patients (cohort 1‐pre‐pandemic: N = 78, cohort 2‐first pandemic year: N = 51, cohort 3‐second pandemic year: N = 119) were recruited from child and adolescent psychiatry wards and cross‐sectionally assessed as part of the clinical routine. Quantitative measures of psychological distress, psychopathology, eating disorder (ED)‐related burden, expressed emotion and caregiver skills were obtained at the beginning of the child's inpatient or outpatient treatment. Results Cohort 2 showed lower levels of anxiety and a tendency of lower emotional overinvolvement and higher caregiving skills compared to the pre‐pandemic cohort. In contrast, the levels of general psychological distress, depression, ED‐related burden and criticism observed in cohort 3 significantly exceeded pre‐pandemic levels. The prevalence of clinically relevant depression was higher in cohort 3 (41.5%) compared to cohorts 1 (24.4%) and 2 (21.6%). Discussion The pandemic effects on parents seem to be time‐specific. Lower distress in the early phase of the pandemic may be associated with improvements in parent‐child‐relationships reported in previous studies. However, the pandemic may has negative consequences in the long‐term emphasising the need of ongoing parental support.

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An investigation of the factor structure of a German version of the Eating Disorder Symptom Impact Scale (EDSIS) among parents of adolescents and young adults with anorexia nervosa

Cited by 2 publications

References 42 publications

Fathers in the spotlight: parental burden and the effectiveness of a parental skills training for anorexia nervosa in mother–father dyads

Fathers in the spotlight: parental burden and the effectiveness of a parental skills training for anorexia nervosa in mother–father dyads

Psychological distress and caregiving experience during the first two years of the COVID‐19 pandemic among parents of an offspring with anorexia nervosa

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