An international multicenter study on quality of life and family quality of life in children with atopic dermatitis

Chernyshov, Pavel V; Jiráková, Anna; Ho, Roger; Moed, H. D.; Caldeira, Antônio Prates; Alvarenga, Tasssiana M; Park, Chun W; Hercogová, Jana

doi:10.4103/0378-6323.104669

Cited by 55 publications

(79 citation statements)

References 2 publications

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“…35 However, for some children with skin diseases after 3 years of age, it may be a problem. 30 In our study, children with EB had the most impaired HRQoL. 36 Social exclusion was also a problem for some children in our study starting from the age of 3 years.…”

Section: Your Child's Itching or Scratching Because Of His/her Skin Dmentioning

confidence: 64%

“…28 The majority of available data on HRQoL in paediatric dermatology are related to AD. 30,31 Mood changes also play a significant role in self-assessed HRQoL changes of children with AD. The first period is from early infancy till 3 years of age.…”

Section: Discussionmentioning

confidence: 99%

“…1,5 Literature data on general tendencies of children's development, clinical course and epidemiologic tendencies of AD in different age groups make it possible to highlight three main periods in formation of self-perception and stigmatization. 32 Despite the possibility of imperfect agreement between selfreport and proxy-report, Ricci et al 33 showed that parents perceive their child's mood with great sensitivity and attention and are able to sense small alterations and changes in the child's mood. The child's problems in this period depend on parental exhaustion, emotional distress and security of the mother-child attachment.…”

Section: Discussionmentioning

confidence: 99%

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Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life

Chernyshov

Boffa

Corso

et al. 2018

Acad Dermatol Venereol

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Section: Your Child's Itching or Scratching Because Of His/her Skin Dmentioning

confidence: 64%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life

Chernyshov

Boffa

Corso

et al. 2018

Acad Dermatol Venereol

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“…Finally, an international study performed in the Czech Republic, Singapore, Brazil, the Netherlands, and South Korea on QoL and family QoL in children with AD found a similar impact of the disease as rated by parents of 419 children under the age of 4 years in all countries [34]. …”

Section: Ad and Qolmentioning

confidence: 99%

The Impact of Atopic Dermatitis on Quality of Life

Lifschitz¹

2015

Ann Nutr Metab

103

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Approximately 5-20% of children worldwide suffer from atopic dermatitis (AD), a kind of dermatitis characterized as an inflammatory, relapsing, noncontagious and itchy skin disorder. Children often develop AD during their first year of life. An increased rate of sensitization to both food and aeroallergens has been shown to coexist in patients with AD. Sensitization to well-known allergens such as cow's milk protein can occur on average in 50% of children with AD. In general, quality of life (QoL) is perceived as the quality of an individual's daily life, that is, an assessment of their well-being or lack thereof. QoL is a broad concept that includes such things as standard of living, community, and family life. Patients with skin diseases experience a wide range of symptoms ranging from trivial problems to major handicaps which affect their lives. The misery of living with AD cannot be overstated for it may have a profoundly negative effect on the health-related QoL of children and their families in many cases. Physicians taking care of children with AD should consult parents on how their child's illness has impacted their lifestyle and recommend professional intervention if deemed necessary.

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“…[28][29][30] An international study conducted in Czech Republic, Singapore, Brazil, the Netherlands and South Korea, also investigated the influence of disease on family quality of life, showed similar impact of SCORAD across cultures. Previous studies also observed that the severity of AD represented the strongest independent factor associated with impairment in family life quality.…”

Section: Discussionmentioning

confidence: 93%

Factors associated with improvement of quality of life among parents of children with atopic dermatitis: 1‐year prospective cohort study

Maksimović

Zaric²,

Reljić

et al. 2019

Acad Dermatol Venereol

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Background Previous studies exploring the impact of atopic dermatitis (AD) in children focused on factors associated with parental quality of life at one point in time. Objective To examine factors associated with change of quality of life among parents of children affected with AD. Methods The study cohort comprised 98 parent–children pairs treated for AD at the Clinic of Dermatovenereology; however, 18 parents (18.4%) were lost to follow‐up after 1 year. Children were assessed with SCORing Atopic Dermatitis Index (SCORAD) and Children Dermatology Life Quality Index (CDLQI) or the Infants’ Dermatitis Quality of Life Index (IDQOL), depending on their age. Parents filled in socio‐demographic questionnaire and Dermatitis Family Impact Questionnaire (DFI). After 1 year, both children and parents were reassessed using the same AD‐related battery of questionnaires. Results After follow‐up, a significant improvement in the average total DFI score was observed, especially for domains of fatigue/exhaustion, emotional distress and impact of helping in child treatment. Lower baseline SCORAD, greater improvement of SCORAD over follow‐up, better CDLQI/IDQOL at baseline, greater improvement in CDLQI/IDQOL over follow‐up, not having asthma and having older child with AD were associated with better parental quality of life after 1 year of follow‐up. Parental higher education level, shorter AD duration, better baseline SCORAD and greater improvement in CDLQI/IDQOL over follow‐up were associated with greater improvement in parental life quality over 1 year of follow‐up. Conclusion Contributors to parental quality of life after 1 year included clinical features of AD and child's comorbidity (asthma), but also the perception of child's quality of life and its improvement.

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An international multicenter study on quality of life and family quality of life in children with atopic dermatitis

Cited by 55 publications

References 2 publications

Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life

Creation and pilot test results of the dermatology‐specific proxy instrument: the Infants and Toddlers Dermatology Quality of Life

The Impact of Atopic Dermatitis on Quality of Life

Factors associated with improvement of quality of life among parents of children with atopic dermatitis: 1‐year prospective cohort study

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