An Integrative Review: Understanding Parental Use of Social Media to Influence Infant and Child Health

Pretorius, Kelly; Johnson, Karen E.; Rew, Lynn

doi:10.1007/s10995-019-02781-w

Cited by 49 publications

(58 citation statements)

References 24 publications

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“…Social media has been identified as a supportive environment in prior analyses and studies [ 15 , 24 - 26 ], which was consistent with the identified theme of support. Understanding the types of support, informational and emotional, provided among mothers and in this format is a new finding.…”

Section: Discussionsupporting

confidence: 79%

“…As of 2015, 75% of parents used social media, often for parenting information or support [ 14 ]. In a review of parental use of social media for parenting in the United States, Facebook was the most common social media format [ 15 ]. Facebook was popular among all races or ethnicities, including African Americans [ 15 ]—those most at risk for SUID [ 1 ].…”

Section: Introductionmentioning

confidence: 99%

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Sudden Infant Death Syndrome on Facebook: Qualitative Descriptive Content Analysis to Guide Prevention Efforts

Pretorius¹,

Choi²,

Kang³

et al. 2020

J Med Internet Res

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Background Sudden unexpected infant death (SUID), which includes the diagnosis of sudden infant death syndrome (SIDS), is a leading cause of infant mortality in the United States. Despite prevention efforts, many parents continue to create unsafe infant sleep environments and use potentially dangerous infant sleep and monitoring devices, ultimately leading to sleep-related infant deaths. Analyzing Facebook conversations regarding SIDS may offer a unique maternal perspective to guide future research and prevention efforts. Objective This study aims to describe and analyze conversations among mothers engaged in discussions about SIDS on a Facebook mother’s group. We were interested in understanding maternal knowledge of SIDS, identifying information sources for SIDS, describing actual infant sleep practices, exploring opinions regarding infant sleep products and monitoring devices, and discovering evidence of provider communication regarding SIDS. Methods We extracted and analyzed 20 posts and 912 comments from 512 mothers who participated in a specific Facebook mother’s group and engaged in conversations about SIDS. There were 2 reviewers who coded the data using qualitative descriptive content analysis. Themes were induced after discussion among researchers and after the study objectives were addressed. Results The theme of social support emerged, specifically informational and emotional support. A variety of informational sources for SIDS and safe sleep were identified, as was a continuum of infant sleep practices (ranging from unsafe to safe sleep per the American Academy of Pediatrics standards). There was widespread discussion regarding infant sleep products and monitoring devices. Embedded within conversations were (1) confusion among commonly used medical terminology, (2) the practice of unsafe infant sleep, (3) inconsistency in provider communication about SIDS, and (4) maternal anxiety regarding SIDS. Conclusions We uncovered new findings in this analysis, such as the commonality of infant sleep products and monitoring devices and widespread maternal anxiety regarding SIDS. Additionally, mothers who participated in the Facebook group provided and received informational and emotional support regarding SIDS via this social media format. Such results can guide future prevention efforts by informing health communication regarding SUID and safe sleep. Future provider and public health agency communication on the topic of SUID and safe sleep should be simple and clear, address infant sleep products and monitoring devices, address maternal anxiety regarding SIDS, and address the common practice of unsafe sleep.

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Section: Discussionsupporting

confidence: 79%

Section: Introductionmentioning

confidence: 99%

Sudden Infant Death Syndrome on Facebook: Qualitative Descriptive Content Analysis to Guide Prevention Efforts

Pretorius¹,

Choi²,

Kang³

et al. 2020

J Med Internet Res

Self Cite

View full text Add to dashboard Cite

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“…Parents teach each other about existing PHHC services and how to navigate paperwork, locate replacement HME, and vet PHHC agencies. When this peer mentorship occurs via public pathways (eg, Facebook), 10,11 there can be concerns regarding information quality-parents advising other parents to reuse syringes, for example, may place children at higher risk. Our study demonstrates that parents resort to strategies like reusing syringes due to unresolved PHHC gaps.…”

Section: Discussionmentioning

confidence: 99%

Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity

Boss

Raisanen

Detwiler

et al. 2019

Clin Pediatr (Phila)

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Background. For children with complex medical conditions, pediatric home health care is a chronic need. It is a clinical service delivered entirely outside of clinical settings, granting families unparalleled expertise regarding service quality. Methods. Telephone interviews with parents whose children have extensive experiences with home health care. Results: Five themes emerged: (1) benefits of home health care include child survival and family stability; (2) family life is inextricable from home health care schedules, staffing, and services; (3) home health care gaps threaten family physical, mental, and financial well-being; (4) Out-of-pocket costs are common; and (5) families must fight for services as their children’s medical conditions evolve. Conclusions. Families understand better than prescribers, providers, or policy makers what is working, and what is not, with home health care. Family expertise should be the foundation for training other families, clinicians, and home health care agencies, and should be a central component of policy and advocacy in this area.

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“…In keeping with Whittemore and Knafl's 15 approach, diverse data sources can be included to provide a holistic understanding of the phenomenon under review which allows for a combination of diverse methodologies. To illustrate, although there is widespread data on social media use, Pretorius et al 16 employed an integrative review method to gain understanding of parent use of social media to influence infant and child health, which included primary data sources using grounded theory, ethnography, focus groups, a community based qualitative study, a randomised control trial and cross sectional surveys.…”

Section: Methodsmentioning

confidence: 99%

Women's experiences with breastfeeding in public: An integrative review

2021

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Background: Much evidence around public breastfeeding does not reflect experiences of the key stakeholder, the breastfeeding woman, and focuses upon the audience. Selective evidence has explored breastfeeding experiences revealing challenges with public breastfeeding as a serendipitous finding. Although women's experiences have been explored in specific contexts, insight into commonalities reflective of an international perspective is unknown.Objective: to explore, review and synthesise published literature on women's experience with public breastfeeding.Methods: An integrative review allows inclusion of findings beyond empirical evidence. Whittemore and Knafl's approach was used to capture and analyse evidence from varied sources to provide understanding of a phenomenon from diverse methodologies. PubMed, Medline, Ovid emBase, Scopus, Science Direct, the Cumulative Index of Nursing and Allied Health Literature and PsychINFO were searched. Inclusion criteria included publications in English after 2005 offering descriptions of women's experiences. Data evaluation included assessment of literature quality. A constant comparison approach involved comparing, analysing and drawing similar concepts into themes. Findings:Integration of women's experience with public breastfeeding from 27 publications covering 12 countries revealed two key themes, what women shared as 'enhancing' and 'challenging'.Challenges included four subthemes: 'drawing attention', 'sexualisation of breasts', 'awareness of others' discomfort', and 'efforts not to be seen'. Enhancing incorporated subthemes: 'supportive audience' and 'confidence'. Conclusion:Challenges confirm an international commonality that women encounter during public breastfeeding suggesting a multilayered approach addressing community and societal behaviours is required. Insight to enhance public breastfeeding experiences offers direction to improve support.

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An Integrative Review: Understanding Parental Use of Social Media to Influence Infant and Child Health

Cited by 49 publications

References 24 publications

Sudden Infant Death Syndrome on Facebook: Qualitative Descriptive Content Analysis to Guide Prevention Efforts

Sudden Infant Death Syndrome on Facebook: Qualitative Descriptive Content Analysis to Guide Prevention Efforts

Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity

Women's experiences with breastfeeding in public: An integrative review

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