An integrative review of the hospital experiences of people with an intellectual disability: Lack of orthopaedic and trauma perspectives

Drozd, Mary; Chadwick, Darren; Jester, Rebecca

doi:10.1016/j.ijotn.2020.100795

Cited by 9 publications

(9 citation statements)

References 29 publications

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“…This review concluded that people with intellectual disabilities continue to have poor hospital experiences. Drozd et al (2020) in their integrative review of nine studies published between 2008 and 2018 also identified communication issues, unsafe care and poor relationships with people with intellectual disabilities when in hospital. Whilst the topics in their paper are somewhat related to this systematic review, they do not exclusively relate to the experience of the adult with intellectual disabilities in an acute hospital setting.…”

Section: Introductionmentioning

confidence: 99%

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

McCormick

Marsh

Taggart

et al. 2020

Health Soc Care Community

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Adults with intellectual disabilities experience significant physical and mental health needs when compared to their typically developing peers. Previous research evidences that many people with intellectual disabilities have negative encounters within acute hospitals. The aim of this systematic review was to identify the specific views and experiences of adults with intellectual disabilities when accessing acute hospital services arising from the available literature. The review commenced in June 2019 and was updated in May 2020. A systematic search of five electronic databases including CINAHL Plus, MEDLINE, Web of Science, SCOPUS and PsycINFO was undertaken. Studies published from 2014, peer-reviewed, written in English and referred to adults with intellectual disabilities aged 18 plus and acute hospital settings were included. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines and the Critical Appraisal Skills Programme quality assurance checklist were used to review all selected papers. Five studies from a total of 421 were deemed suitable for inclusion in the review as the voices of adults with intellectual disabilities were present. Poor communication from healthcare staff towards adults with intellectual disabilities emerged in four studies while the use of the hospital passport and the intellectual disability liaison nurse to significantly improve the hospital experience for adults with intellectual disabilities was identified in two of the studies. Following a systematic and thematic analysis of the studies, three main overarching themes emerged: communication; information sharing; and compassion and respect. Despite the national and international focus on improving healthcare for people with intellectual disabilities, this review highlights lack of communication, inadequate information sharing and issues related to compassionate care and respect.The review identifies the possibility that an increased use of hospital passports and an extension of the intellectual disability liaison nursing roles may enhance the hospital experience for people with intellectual disabilities.

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Section: Introductionmentioning

confidence: 99%

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

McCormick

Marsh

Taggart

et al. 2020

Health Soc Care Community

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“…Although the PWID have the same opportunity to access hospital in western countries, the problem remains the same: communication problems, lack of facilities, lack of trained staff, and failure to make a reasonable adjustment for the patient. [ 21 ] In another study done in the United Kingdom (UK), there were reported cases of PWID where they cannot get healthcare access due to social status and language barriers. [ 21 ]…”

Section: Discussionmentioning

confidence: 99%

“…[ 21 ] In another study done in the United Kingdom (UK), there were reported cases of PWID where they cannot get healthcare access due to social status and language barriers. [ 21 ]…”

Section: Discussionmentioning

confidence: 99%

Perceptions toward healthcare and dental care services among parents and caretakers of people with intellectual disability (PWID)—A questionnaire study

Said¹,

Mohd²,

Naji³

2023

J Int Soc Prevent Communit Dent

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A BSTRACT Aim and Objective: In Malaysia, there was lack of local evidence on the perception of parents/caretakers of people with intellectual disabilities (PWID) about healthcare. Thus, this study aims to assess the perceptions toward healthcare services of parents or caretakers for PWID. Materials and Methods: Online survey using Google Forms was conducted on parents/caretakers of PWID who attended the special care dentistry clinic and special community centers in Kuantan, Pahang. A questionnaire was developed for data collection. Cronbach alpha was conducted to measure the reliability. Content and face validation was performed to establish the validity. Data entry and analysis were done using IBM statistical package for social sciences (SPSS) version 24. This study only involved univariate (descriptive) data analysis in which categorical data were summarized in actual numbers and percentages. Results: The respondents’ perceptions toward healthcare access and services were reasonably good; about 50% disagreed and strongly disagreed on having difficulty accessing healthcare facilities. 65% and 55% of parents/caretakers brought PWID for regular health and dental checkups. The majority agreed and strongly agreed (about 73%) that healthcare staff gave equal services and good support and showed positive attitudes toward PWID under their care. Insufficient healthcare information and below-par communication skills remained the main barriers faced by the parents/caretakers of PWID. About 13% of the respondents reported experiencing discrimination in receiving health and dental services for PWID under their care. The Cronbach alpha scores for sections 2 and 4 were 0.892 and 0.681, respectively. Conclusion: Most of the respondents felt that Malaysia’s healthcare services for PWID were fairly good. However, it was intriguing to find that some still experienced discrimination. This shows that education about intellectual disability is salient for healthcare workers and should be embedded in the current curriculum.

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“…The Hospital Passport is considered a useful tool to provide essential information to aid communication with people with intellectual disabilities when attending health services, however, they are often under-utilised in acute hospital settings ( Howie et al, 2021 ). Whilst there are some studies presenting the challenges and experiences of people with intellectual disabilities in acute hospital settings ( Drozd et al, 2020 ; Iacono et al, 2014 ; McCormick et al, 2020 ), and some studies reviewing Hospital Passports for people with intellectual disabilities ( Heifetz and Lunsky, 2018 ; Northway et al, 2017 ), there is an absence of studies exploring a combination of these experiences. All participants in this study championed the value of utilising the Regional Hospital Passport and there was a willingness to use it to plan and support the delivery of safe, effective and person-centred care.…”

Section: Discussionmentioning

confidence: 99%

Using a hospital passport from the perspective of adults with intellectual disabilities, family carers and health professionals: A qualitative study

McCormick

Marsh

Taggart

et al. 2022

J Intellect Disabil

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This article explores the experiences of the use of the Regional Health and Social Care Hospital Passport (Regional Hospital Passport) in Northern Ireland from the perspectives of adults with intellectual disabilities, family carers and health professionals. From semi-structured interviews three themes emerged: usefulness; facilitators; and barriers to the use of the Regional Hospital Passport. There were clear benefits of the Hospital Passport when used across hospital services and clinical practice settings such as dental and General Practices. There was participant agreement that communication and the person-centred care experiences were enhanced. Findings suggest that providers of health and social care services need to take greater responsibility and accountability for ensuring Regional Hospital Passports are promoted and used across all settings. There is a requirement to develop the wider use and uptake of hospital passports to support adults with intellectual disabilities, with potential for use with other patient groups.

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An integrative review of the hospital experiences of people with an intellectual disability: Lack of orthopaedic and trauma perspectives

Cited by 9 publications

References 29 publications

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

Experiences of adults with intellectual disabilities accessing acute hospital services: A systematic review of the international evidence

Perceptions toward healthcare and dental care services among parents and caretakers of people with intellectual disability (PWID)—A questionnaire study

Using a hospital passport from the perspective of adults with intellectual disabilities, family carers and health professionals: A qualitative study

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