An integrated and sustainable EU health information system: national public health institutes’ needs and possible benefits

Bogaert, Petronille; Oyen, Herman Van

doi:10.1186/s13690-016-0171-7

Cited by 23 publications

(19 citation statements)

References 2 publications

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“…According to a survey of European members, it was agreed necessary and desirable to improve the integration of HISs at the national level. Better sharing of these health data allows for more and better comparative health research, international benchmarks, and national and EU-wide public health monitoring [60]. However, some countries lack the resources to implement the program properly or even specify the financial resources for the preparation of the program in the budget, which may challenge the desired integration.…”

Section: Policy Implicationsmentioning

confidence: 99%

Routine Health Information Systems in the European Context: A Systematic Review of Systematic Reviews

Saigí-Rubió

Pereyra‐Rodriguez

Torrent‐Sellens

et al. 2021

IJERPH

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(1) Background: The aim of this study is to provide a better understanding of the requirements to improve routine health information systems (RHISs) for the management of health systems, including the identification of best practices, opportunities, and challenges in the 53 countries and territories of the WHO European region. (2) Methods: We conducted an overview of systematics reviews and searched the literature in the databases MEDLINE/PubMed, Cochrane, EMBASE, and Web of Science electronic databases. After a meticulous screening, we identified 20 that met the inclusion criteria, and RHIS evaluation results were presented according to the Performance of Routine Information System Management (PRISM) framework. (3) Results: The reviews were published between 2007 and 2020, focusing on the use of different systems or technologies and aimed to analyze interventions on professionals, centers, or patients’ outcomes. All reviews examined showed variability in results in accordance with the variability of interventions and target populations. We have found different areas for improvement for RHISs according to the three determinants of the PRISM framework that influence the configuration of RHISs: technical, organizational, or behavioral elements. (4) Conclusions: RHIS interventions in the European region are promising. However, new global and international strategies and the development of tools and mechanisms should be promoted to highly integrate platforms among European countries.

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Section: Policy Implicationsmentioning

confidence: 99%

Routine Health Information Systems in the European Context: A Systematic Review of Systematic Reviews

Saigí-Rubió

Pereyra‐Rodriguez

Torrent‐Sellens

et al. 2021

IJERPH

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show abstract

“…Given the value of harmonization and standardization of health information, many national and international projects aimed at developing a common health information system have been initiated in recent years, e.g. the Digital Health Initiative program from the United States Agency for International Development (USAID) ( www.usaid.gov ), the European Union project ‘Bridging Information and Data Generation for Evidence-based Health policy and Research (BRIDGE Health) [ 12 ], or the Health Data Collaborative as an informal partnership of international agencies, governments, academics and other donators ( www.healthdatacollaborative.org ).…”

Section: Introductionmentioning

confidence: 99%

Content comparison and person-centeredness of standards for quality improvement in cardiovascular health care

et al. 2021

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Background Quality standards are important for improving health care by providing compelling evidence for best practice. High quality person-centered health care requires information on patients' experience of disease and of functioning in daily life. Objective To analyze and compare the content of five Swedish National Quality Registries (NQRs) and two standard sets of the International Consortium of Health Outcomes Measurement (ICHOM) related to cardiovascular diseases. Materials and methods An analysis of 2588 variables (= data items) of five NQRs—the Swedish Registry of Congenital Heart Disease, Swedish Cardiac Arrest Registry, Swedish Catheter Ablation Registry, Swedish Heart Failure Registry, SWEDEHEART (including four sub-registries) and two ICHOM standard sets–the Heart Failure Standard Set and the Coronary Artery Disease Standard Set. According to the name and definition of each variable, the variables were mapped to Donabedian’s quality criteria, whereby identifying whether they capture health care processes or structures or patients’ health outcomes. Health outcomes were further analyzed whether they were clinician- or patient-reported and whether they capture patients’ physiological functions, anatomical structures or activities and participation. Results In total, 606 variables addressed process quality criteria (31%), 58 structure quality criteria (3%) and 760 outcome quality criteria (38%). Of the outcomes reported, 85% were reported by clinicians and 15% by patients. Outcome variables addressed mainly ‘Body functions’ (n = 392, 55%) or diseases (n = 209, 29%). Two percent of all documented data captured patients’ lived experience of disease and their daily activities and participation (n = 51, 3% of all variables). Conclusions Quality standards in the cardiovascular field focus predominately on processes (e.g. treatment) and on body functions-related outcomes. Less attention is given to patients’ lived experience of disease and their daily activities and participation. The results can serve as a starting-point for harmonizing data and developing a common person-centered quality indicator set.

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“…Findings on knowledge development demonstrate broad interest in country level information, data, and research. Several other studies have documented the potential of regional integration of health surveillance systems (Onyebujoh et al, 2016) as well as the potential for integrating health management information systems (Bogaert & Van Oyen, 2017). Overall, the literature considers knowledge generation as a core function of NPHIs.…”

Section: Discussionmentioning

confidence: 99%

National public health institutes: A scoping review

Myhre

French

Bergh

2021

Global Public Health

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During the last century, national public health institutes emerged to address enduring and emergency public health challenges. Previous outbreaks often compelled countries to establish national institutes of public health. Despite historic legacies and contributions to public health, no review of this literature has been published. The aim of this scoping review is to provide an overview of this literature and map characteristics including format, authorship, geographic focus, methods, language, focal topic and public health capacity building domains. The scoping review was guided the Arksey and O'Malley methodological framework and utilised the PRISMA-ScR checklist. A systematic search of Medline OVID and Scopus databases yielded 5731 records. In total, 43 articles met the eligibility criteria. Articles were published in English, Spanish, French and Russian and included perspectives from over 20 countries in Africa, Europe, North America and South America. Three reported methods or collected primary data. Findings reveal a longstanding international interest in leveraging national institutes to address complex public health challenges. Lack of studies reporting methods reveals the need for future research utilising robust methodology. Several articles recommend investment in national public health institutes as a strategy to respond to crises and strengthen countries' public health systems.

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An integrated and sustainable EU health information system: national public health institutes’ needs and possible benefits

Cited by 23 publications

References 2 publications

Routine Health Information Systems in the European Context: A Systematic Review of Systematic Reviews

Routine Health Information Systems in the European Context: A Systematic Review of Systematic Reviews

Content comparison and person-centeredness of standards for quality improvement in cardiovascular health care

National public health institutes: A scoping review

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